Jenny seems to have hit a point of slowed progress, but this has happened many times along the way. She is still doing more each day, but not as rapid as the previous month. For instance, Jenny has been able to play games on the computer using a mouse. A few days ago it was highly emotional and unproductive, but she has now become functional, yet slow, at using the mouse. She will win a game of Mahjongg, but it takes an hour rather than a few minutes. Tonight, she was able to point and click her way to read e-mails. Jenny has become more emotional lately but her emotions will still tend to be inconsistant with how she really feels or the situation.

A nice progression has been the increased desire of the the children to want to interact with Jenny. They fight over who sits in her lap or lays down next to her. Sophia thinks Jenny is her own personal play thing. She can be really sweet as she brings over cups of water because she claims Jenny told her she was thirsty. I typically save Jenny before she drowns or gets too wet. I can not save Jenny from getting dressed up in jewelry. All the kids will help do range of motion exercises with thier mom when they see her resting. They usually encourage her and praise her efforts, and are typically gentle. Through the infinate wisdom of children, Jenny gets plastered with band aids because we all were taught as children that band aids fix everything.

Now that Jenny has found significant movement in her right arm, she is experinecing a joy far beyond what I am able to describe. She actually doing what I have been waiting for these past 6 months and using her movements for self help skills. These skills are at the begining stage, bit I see her adjust her glasses, rub her eyes, helps me with getting her dressed, and hugs the kids as they sit on her lap. The kids miss doing active stuff with Jenny so I had Zach play Yatzee Jr with her. Jenny could shake and roll the dice from the cup and I helped with keepig score. Jenny will laugh and cry at the same time she is able to do these new and different things because she is so happy. As for Zach, there could not have been anything in this world that he would have wanted to do more than to play a game with his mom (and get beat 3 times in a row).

Jenny has also demonstrated voluntary movement in her left arm by turning her wrist back and forth. One of her new exercise machines is a reclining stationary bike. After one week on it, Jenny appeared to push the pedal on her own. I placed her right leg so it was ready for a downward push and Jenny would hold it until I told her to push. After doing this a few times, I had her do the same with the left leg. She had similar control. We put this together and she was almost able to make a complete revolution with the pedals without help.

Just to be clear, all of her movements are wonderful, but very limited. Where she does have functional movement in her right arm, it is weak and shakey. After a couple movements, she is as worn out as if she ran a marathon. It is so very exciting to see her improve as she has.

Jenny has had a bitter sweet past couple of days. There were a bunch of great things that have happened. My father finally came out to stay with us for a while. His goals, aside from helping with Jenny, were to teach the kids to ride bikes without training wheels. That took about 10 minutes before they were both darting around like they had been riding this way all summer. It took another 10 minutes before Jessie was stunt riding and trying tricks. Zach started piano lessons and was able to learn his first little song that he played for Jenny and I. These were the good parts that Jenny admitted were things she felt that made all the things she went through well worth it.

The bitter part was when the kids would crash in front of her and she could not do a thing even though they lay hurt just a few feet away. She so much wanted to let Zach know how proud she was about his piano and to give him a long hug and kiss. Even though I was quick to tell the kids that mom was so proud of them, she indicated it was not the same as holding them in her arms and her own voice telling them what she felt. Sophia was choking yesterday and later wanted to be held and comforted, and it was the same type of result. Sophie was asked if she wanted to sit in mom’s lap (Jenny was crying because she so wanted to comfort Sophie), but Sophie refused- which happens occasionally. I finally convinced Sophie, but it is just another example of the many heart breaks Jenny experiences on a daily basis.

As for Jenny’s health, she is getting much stronger. She sits longer and with less pain when on the floor. We do more standing exercises where I help support her or she stands on a tilt table. I sat Jenny in front of the piano. I could see her right hand trying so hard to push with enough force to make sounds. The keys moved, but not with enough behind it to strike the chords. She wanted to sit longer and try more. I was so proud of her and her increased desire lately. I think she hides it if things hurt during exercises. I keep asking and she tells me that she is fine. Hopefully, she really is doing well enough that these exercises do not hurt.