Join the fight for inclusion

I LOVE this video ( & echo all they say…they even touch upon some of the struggles I’ve never mentioned, & just “deal with.” I am a really big advocate for disability awareness–that’s the whole reason for my website, I just want people aware that I’m a person too, & to see some of my struggles & joys. Please join the fight for inclusion!: 

Happy Mother’s Day!

Happy Mother’s Day!  Mother’s Day is a bit different for me, as I usually have people feeding me anyway!


I keep being asked about what my favorite thing about my new home is…the thing that is my favorite changes from week to week, but what doesn’t change, is how it has increased my independence.  When we moved, a big reason was to make our home more accessible, cuz I’d “outgrown” our old home, & I was  banging into walls & things, as I tried to do more.  So our new home has wider spaces & hallways, & bigger & more open rooms—for example, I can TURN in our pantry!  Other ways I have discovered increased independence:

  • Drawers have been used a lot in my craft room, so I can do many things on my own in there now!
  • We have a “smart home”, so I can use my iPad to turn lights on/off, a TV on/off, regulate a thermostat if needed, see who’s at my front door & see in other places in my home, turn on music in rooms, etc.  I can even call people by name to certain rooms in our home!  While this is all great, what makes it even better is how this aids me as a mother—I can turn things down or off if my kids are being “kids,” I can turn off all the lights in our home if Mark is gone…& best of all, everything can be done from the comfort of my bed!
  • I love the kitchen because I can do SOOO much more in there now!  In fact, I just want to share that lately, I have fed myself 2 out of 3 meals!  It is so cool to feel hungry, & be able to go get myself food!  (That can be a good or a bad thing!)  I will share pictures of these 3 things that have made such a difference:
    • The sink—the spout is on the side, & it is touch-sensative, so I can finally wash my hands & some dishes (I actually like washing dishes, & since my kids think it’s gross to clean my cup out from my green smoothies, they are probably glad that I can do it now!)
    • The microwave—we have one down low, with a drawer, so I can do it– & I confess that at times I will cook popcorn in it, just cuz I can!
    • The fridge—it has a door I can use, but the best part is this has a drawer I can access, with things like fruit, veggies, hummus, babaganush,meals I can heat up, or eat cold…

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Busy a summer!

I’ve been busy this summer with several family affairs, & other things. It’s been quiet here now though, & I have time to type: All my kids have been in Utah (Soph was at ballroom dance camp, Jess was at EFY, & Zach is at summer school). However, they’ll all be back on Saturday–they fly back tonight, & they’re bringing a dog to join the family!

On Thursday, June 18, Zach left for summer term at college. (Yes, he’s coming home briefly before fall term begins!) When Mark flew with Zach to Utah (to set him up at BYU), I stayed home. Saying goodbye was like ripping off a band-aid, & besides the family being smaller, it seemed like we were fine. But we recently had our 1st family trip w/o him, & it just didn’t feel right w/o Zach, so we made him come out & briefly join us for a few days on our family reunion/50th wedding anniversary celebration in Hawaii!

The trip was a long flight, so I was worried, but the flight there was great: it had been broken up into 2 manageable flights, & for some reason, on the flight out, we had sleeping pods (those are usually for international flights.). It was a blessing that I could experience sleeping pods, cuz I found out I could lay completely flat, making an international flight a possibility! (Those pods are worth every penny to upgrade to 1st class!)

I was nervous about the 8-9 hour return flight not being broken up as well, & not having sleeping pods (Mark couldn’t find any), but we upgraded to 1st class, & since it was so late, I slept most of it, & since my chair was reclined for most of the flight, my butt was fine, & I never had to potty on the plane!

Anyway, these flights to Hawaii were the 1st flights in 11 years that I actually enjoyed. I’ve progressed enough that I can do minor shifts, & I can sorta’ help my ears when they hurt. Also, Mark’s been helping me learn to deal w/my anxiety, so I’m sure that helped me as well!

When Mark was in Utah w/o me (in June), I spoke to Mark on the phone! I’m not so good at it yet, so Sophie was there too, but I did it, & it was so awesome! Recently, my sister accidentally called me to wish me a Happy Birthday, & we actually carried on a short conversation! I was super tired when she called, so my speech wasn’t very clear, but we talked w/o anyone there, & w/o using my version of the morse code on the phone! Lately, I’ve had several good speaking days, & I have held several short conversations, & even introduced myself! It’s exciting!

I have also started to help clean up my house more: Starting in April, I began tidying up the kitchen, so this summer I have tried doing more this time. I have an OCD personality, so this was long over-due, & it feels good to be able to take pride in my home again!