Requests

PBA WEEK

THE OTHER WEEK WAS A PBA WEEK. I WAS ON THIN ICE ALREADY, AFTER MY COMP. VIRUS & FROM FIGHTING A "PITY PARTY," THEN HAVING 2 WAIT 4 OTHERS, WHICH ONLY I SAW THE URGENT-NESS & EVERY PASSING MINUTE COULD RESULT IN A LOST STUFF VALUABLE 2 ME!

USUALLY, I DO PRETTY WELL CONTROLLING IT, BUT THIS LAST WEEK, I WAS BOMBARDED BY STRONG ENOTIONS, & ANY EMOTION, BIG OE SMALL, CAUSES LAUGHTER OR TEARS. MY WORLD CAN APPEAR SHATTERED, & I'M FINE, PROUD, OR SHOWING RELIEF. IF I'M SOOTHED, IT CAN ME CAN MAKE IT WORSE, AS TEARS OF EMBARRASSMENT R SHED. MARK KNOWS THIS ALL 2 WELL, & PROB. APPEARS HEARTLESS AT TIMES, AS HE SEEMS 2 LET ME WORK IT OUT ALONE, THOUGH I ACTUALLY APPRECIATE IT. BY GOING AGAINST HUMAN NATURE 2 SOOTHE UNCONTROLLED LAUGHTER OR TEARS, HE'S ACTUALLY HELPING ME!

BUT SOMETIMES THE OUTCOME DOESN'T PORTRAY HOW I FEEL. (LIKE, I CAN BE FURIOUS, BUT C A SMILE THAT TRIGGERS A LAUGH, WHICH CAN BE VERY FRUSTRATING!) I SEEN AN EASY EMOTIONAL TARGET 2 READ, UNTIL THIS HAPPENS!

I THINK THE FACT I CAN VISUALIZE SOMETHING, EVEN IF IT HASN'T HAPPENED, CAN MAKE MY PBA WORSE. IT ALSO HELPS 2 "PREP" 4 IT.

SO, HERE'S A VERY SMALL AMOUNT OF TRIGGERS, RECENTLY:

1. I HAD A CLUE IT WOULD HAPPEN—IT'S BEEN SO LONG—BUT NO IDEA WHEN IT'D HAPPEN: I WAS FINALLY RELEASED FROM MY CALLING AT CHURCH! FOR ALMOST 2 YEARS, I HAVE BEEN AN ASST. ACTIVITY DAY LEADER (I PLANNED & DID A MID-WEEK ACTIVITY 2X/MONTH 4 GIRLS WHO R 8 & 9 YEARS OLD, IN MY CASE–THOUGH IT STARTED 8-12 YEARS OLD). NOW, I’M WARD HISTORIAN, WHATEVER THAT MEANS! THEY EXPLAINED STUFF, BUT THE CALLING IS NEW 2 ME…I KNOW THE GIST (TAKE A BUNCH OF PICTURES, USE SCRAPBOOKING (MAYBE), USE R WARD WEBSITE, KEEP A RECORD OF LOTS—..), BUT HOW? I PREFER NOT 2 ATTEND ACTIVITIES (I CAN’T BE SOCIAL OR PARTICIPATE & JUST SIT IF THEY EAT), & I HAVE ABSOLUTELY NO CLUE WHO’S EVEN IN R WARD, LET ALONE CHANGES IN CALLINGS!…

THE GOOD THING IS I NOW HAVE SOMETHING 2 DO AT ACTIVITIES (TAKE PICS, BUT I NEED A HORN OR SOMETHING IF STOOD IN FRONT OF) & MARK IS WARD CLERK, SO HE KNOWS STUFF I’M CLUELESS ABOUT.

2. 8/8 WAS MY B-DAY. B4 MY STROKE I WAS A CAKE DECORATOR. MARK HAS KEPT THAT ALIVE & REALLY DEVELOPED THAT TALENT. EVEN IF I WAS WELL, I'LL ADMIT I COULDN'T MAKE THAT CAKE, AS IT USED A WOOD STAND (SO HE HAD 2 USE HIS WOODWORKING TALENT, WHICH I NEVER HAD!)

I LOVE DR. SEUESS, SO THERE WAS A DR. SEUESS THEME. EVER READ THE CAT IN THE HAT? ALL THESE CRAZY "THINGS" COME OUT THE HAT. I WAS THE CAT. THANKS 2 SHIRTS BOUGHT AT R REUNION, ALL NIECES & NEPHEWS WERE "THINGS."

3. 8/9—MY FRIENDS GAVE ME A SURPRISE B-DAY PARTY. I WAS REALLY SURPRISED! TURNED , SINCE I'D HAD COMPUTER PROBLEMS & HAVE ISOLATED MYSELF (WHICH I STILL SHOULD, BUT CAN’T HANDLE MORE). I WAS WAITING 4 A BACK-UP THAT SHOULD HAVE BEEN DONE AT 6 PM, BUT TOOK ALL NITE. PLUS, I NEEDED IT–I WAS GRUMPY ON MY B-DAY.

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OPRAH

A REMINDER 2 EMAIL OPRAH 2DAY. IF U MISS 12-1 PM, DON’T WORRY-I BET ANYTIME 2DAY IS GOOD! IF U LOOK 2 THE RT. OF MY WEBPAGE, UNDER “SPECIALS,” U WILL FIND THE ORIGINAL LETTER FROM MY YAHOO SUPPORT GROUP. IN IT IS A LETTER 2 OPRAH U CAN CUT & PASTE (I DID!) & LINKS 2 EMAIL HER. IF IT WAS EASY 4 ME, IT IS 4 U!

email Oprah– tommorrow!

Help get the word out that there are many people with aphasia ! The National
Aphasia Association want you to email Oprah! Information and links are on this website.

HELP GET THE WORD OUT!

SEND A MESSAGE TO THE OPRAH SHOW AND “O” MAGAZINE TO ENCOURAGE A FEATURED
SEGMENT ON APHASIA.

Many speech professionals and individuals affected by aphasia have written
to Oprah Winfrey individually over the years, asking her to do a show about
aphasia. But these efforts have not been successful to date. In a session
for speech professionals at the Speaking Out! 2006 conference in Boston, a
group decided that an organized effort might get results.

The National Aphasia Association (NAA) would like to support this effort and
encourages you to take part. The plan is as follows: “On Oprah’s web site,
she invites people to suggest topics for future shows. As we all know, there
is strength in numbers. An idea was put forward to do a massive e-mail
effort – all together on one day – to see if we can make our voices heard.
If Oprah received 100…200…300… messages in ONE DAY asking her to do a
show about aphasia, we might achieve our goal.

The messages need to come from EVERYONE- not just professionals – but people
with aphasia, their partners, family members and friends…

Click here to continue reading and to get
more information on Operation Oprah:
Click Here

HANDICAPPED OR DISABLED

I NEVER THOUGHT IT MATTERED WHICH WORD, HANDICAPPED OR DISABLED, WAS USED. THEY’RE JUST WORDS THAT MEAN THE SAME THING. BUT WHEN WE WENT 2 SEA WORLD (WE HAD DINNER W/SHAMU, BTW), A LADY ASKED IF I WAS HANDICAPPED. THIS IS A COMMON ? ABOUT ME, & MY 1ST THOUGHT IS, “DUH, YEAH!” THEN I USUALLY FEEL HURT. IT OCCURED 2 ME WHY, THIS TIME. “HANDICAPPED” SEEMS DEROGATORY. “IS SHE DISABLED?” SOUNDS BETTER & IS EASIER 2 TAKE.

BTW, IF I CAN I TOOT MY OWN HORN, I’M SO PROUD HOW WELL I CONTROLLED MY PBA AT THE TEMPLE-I LEARNED SOME TRICKS, SO I FOUGHT MY TEARS AMAZINGLY WELL.