What therapies do you do?

EQUINE (HORSE) THERAPY —

I attend equine (horse) therapy once a week, which is kind of like physical therapy.  “Horse” therapy isn’t just limited to building core strength, building endurance, or helping a person to work on their balance, but it has also strengthened my upper body, replaced many of my anxieties with confidence, & helped me to strengthen my breathe support, so after 10 years, I am finally able speak again!

 

 

MUSIC THERAPY–

Once a week, I also have a music therapist come to my home.  Music therapy is like a combination of the “traditional” therapies (speech, occupational, & physical), & the focus varies. In music therapy, currently I work a lot on my breathing & singing/speaking.   Music therapy has helped my breathing lots, where “traditional” speech therapy could not.  (I was told that I’d never speak again, but between music therapy, & horse therapy, I am able to do several words, phrases, & sentences. While I am not the easiest to understand, just as a mom would really understand her toddler when no one else does, those who are familiar with me, understand me!)  It is said that “musically-minded” people have been proven to think different, & I minored in music, so I think that helps me respond so positively to Music Therapy.( Not that u have to be musical to do Music Therapy! )

Other ways that I’ve benefited from music therapy so much (BTW, none of this surprises me:  I was a music minor, & focused on the brain’s impact when music is involved.  I also know that a “musical” brain can be wired differently, so it makes sense that this kind of therapy seems to help me so much!)–

  • Playing guitar (increases strength & other gross motor skills…& as they  have increased, I can lift heavier stuff, reach higher & farther, etc.)
  • Playing autoharp (similar to guitar but provides a horizontal, vs. vertical, arm movement, & helps strength so I can do things like open doors)
  • Playing piano (as I increase my tempo in playing piano, I type faster, & since it strengthens all my finger muscles, I am able to use all my fingers in various ways, like typing!)
  • Playing recorder (helps enlarge & control breathing, & I get an automatic response to how I’m doing)
  • Playing a variety of rhythm instruments, on the beat of a song (I learn to react quicker, & different instruments strengthen different muscles)
  • Moving my legs to a faster tempo song (helps strengthen & prepare me to walk)
  • Breathing exercises to a slower tempo song (not only has it helped to slow down & enlarge my breathing so I can talk, but it has also provided some breathing tricks to help manage my PBA & anxiety!)
  • “Singing” (I vocalize, learn vowels & consonants to form words, match pitches for inflection, etc.)

 

 

Other than these 2 therapies with professional therapists, I do the rest of my therapy at home.   I much prefer to create my own therapies (for example, when I am in bed, I may do eye exercises, arm exercises, slowed down breathing, etc.), so I personally like to challenge myself to do everyday, practical stuff for my therapy.  Here’s what I do:

 

SPEECH–

  • “Move my tongue”—use a gauze pad to catch hold of tongue, pull it to the out position, and move  it to the left side of my mouth and then to right side of my mouth.  Do 10 repetitions, 5 times  (gauze pads are on a shelf in the exercise room)  I do 30-50 of these in sets of 10.
  • “Tug-Of-War” – for about 5 minutes I have someone try to pull a washcloth out of my mouth, to strengthen my jaw muscles, but I end up using ab muscles, & supporting my weight w/my right arm as well!  (I use a washcloth that is on a shelf in the exercise room)
  •  “Candle therapy”— builds my diaphragm muscle, as I practice repeatedly blowing out a candle  (candle & lighter on the shelf in the exercise room).  This can be done several ways:
  1. Blow out the candle 30 times, & record how long it takes me
  2. See how many times I can blow out the candle in a given time period (currently, I do 30 in 2-3 minutes)
  3. Have the candle distance change
  • 5 speech programs by bungalow on my computer (Sentence Shaper , & Sights And Sounds 1, Which Does Single Words, & 2, Which  Does Phrases).
  • 7 Speech Therapy DVDs by Communications Scripts, Inc.
  • Aromatherapy – to practice smelling, & learning to inhale on command as I smell the oils
  • Blow the recorder — hold it up to my mouth (in the therapy drawer, in the craft room)
  • I try to blow  Bubbles (some are in my wheelchair pocket, & in the therapy drawer basket, in the craft room)
  • Spirometer to practice breathing (in the therapy drawer, in the craft room)
  • Speech binder with phrases & lists of words I can practice saying.  It is from when I had “formal” speech therapy, though there’s an app, “Word Vault Pro”, that does almost the same thing! (the binder is in the therapy drawer, in the craft room)
  • Repeating things I hear
  • “Candy therapy” – I suck lollipops so I can pucker my mouth, or suck other candies to build tongue movement.
  • A whistle to build breathe support (one is in my wheelchair pocket)
  • Sing “La”, or with a TV show/movie/soundtrack—the more familiar it is, the better!
  • Conversations
  • Making faces in a mirror, like trying to smile
  • Sticking my tongue
  • Eating (moves my tongue, so it’s stronger, & can form more alphabet letters)
  • Clucking My Tongue
  • Licking My Lips
  • Massage My Face

 

PHYSICAL–

  • Feeding myself  (raising my arm repeatedly to strengthen it, as well as strengthening my tongue & facial muscles, which is helpful for speech)
  • Reading (small print on my iPad, my kid’s homework, the bible or any book, etc.) to strengthen my eye muscles, & increases mental abilities, like comprehension
  • Tilt table(a table that assists me in standing, which helps me strengthen myself, build my endurance, aid in my digestion, promote circulation, & more)  Sometimes I do knee bends on here, at the beginning of standing.  Knee bends usually take 5-10 minutes.  In order to do them, loosen the bottom strap, & when I am done, U tighten the bottom strap, so I can stand for additional 20-25minutes.  I can do this up to 3 times a day, for 30 minutes-1 hour.
  • Range Of Motion (ROM) Exercises to help me stretch.  I keep a green folder (that contains diagrams of these exercises) on the shelf, in the exercise room.  Do each exercise 10-20 times.  These shouldn’t hurt.  Do them slowly, especially when the neck is done (hold it there for 5 seconds).  This can take 20-40 minutes to do all the exercises, but it can be broken up, or only some of it may be done (like, just stretching the neck)
  • Stationary bike (MOTOmed Viva2)—this is made, so that I can stay it in my wheelchair (w/c) to use it, & the program I like alternates between it cycling for me, & slowing down, so I can try to cycle.  I can use a set program, which takes about 17 minutes to complete, or I can cycle as long as I want, if no program is used.   The bike more has helped with my endurance, strengthened me on both legs, & more.
  • Stationary bike arm exercises—Turn the arm handle around on the stationary bike, & I can “pedal” with my arms, & my left arm has begun to respond, bending, straightening, & sometimes even grasping! (http://www.motomed.com/en/models/motomed-viva2.html)
  • Panasonic Core Trainer (robotic horse)
  • Lift weights or Lifting heavy items, like books (in place of weights).  This is a great activity to do while watching TV/a movie, riding in a car, etc.
  • Leg lifts (raise legs while  sitting, & if I’m in my w/c, try to place my feet back on my footrests)
  • E-stimulation machine- can be done during a variety of actiivities, like reading, cleaning something, etc.
  • Ab roller—Unfold the chair in the exercise room, & help me get full range of motion, as I do sit-ups in it, by crunching up, & straightening out.  I do 10-20 of these.
  • Mat-I have a black mat in my room that is usually put in front of the TV, so I can sit & watch TV (the goal is to be “criss cross” & balance with my arms, which are by my side, but since I rarely stretch those muscles,  it can hurt).  Start with my legs bent less, & more straight in front of me, eventually making them criss cross, when I am more flexible.  I will sit for 10-30 minutes.
  • daily “sit-ups” – really, I just lift my head 20-50 times, while I’m laying down
  • “ab belt” (which is basically e-stim on my ab muscles, so I do nothing, but for a half hour it contracts my ab muscles, as if I do sit-ups for a half hour straight).    The ab belt has built up my breath support, allowing me to speak, & it has aided my digestion & it probably helps with the horse as well.
  • Peanut ball” (2 person) therapy ball, (for balance, usually, & to stand)

 

OCUPATIONAL–

  • a stress ball (to strengthen my fingers)
  • Toe lifts (this prepares me for walking, by strengthening the appropriate muscles)
  • I use a Boogieboard from Brookstone to practice my grip & writing
  • Organizing a drawer (sort things like paper clips, &/or brads)
  • Getting lint/hair off my clothes
  • Sorting money
  • Playing with things like sand/play-dough
  • Color w/my kids
  • Reaching beyond my “normal” reach/span, for items, like a remote on a bed, or taking things out of a box)
  • Sign things, like homework, gift tags, etc.

 

 

SWIM THERAPY—

We took a class to learn the exercises, but swim therapy can be done with no training.  We do exercises we learned in the class (&/or make up our own), & if I’m held right in a pool, I can walk!

 

Equipment:

  1. I use an outdoor pool, but it can be any poll, or swimspa
  2.  neck flotation collar–mine is like the one found here: http://www.aqua-gear.net/index.php?main_page=product_info&products_id=221
  3. Life vest (optional—I started with one, but now I just rely on the neck collar)
  4. 5 lb. ankle weights—I use them on my legs, or my legs will float
  5. A floatie tube/snake (like from a toy store)–use it under your butt, so u can float, or do sitting sit-ups, or work on your balance

 

Therapy Apps I have found useful:

  • Word Vault Pro (words, phrases, conversation starters…)
  • Speech Sounds (the app version of a computer program I have)
  • Talk Path (app version of a speech website)
  • Speech Tutor (shows how to say each alphabet letter)
  • CineVox/Decibel Meter (these help increase my volume)
  • Pianist Pro (virtual piano)
  • Beat (virtual metronome)
  • Breath2Relax/My Calm Beat (these increase my breath support)
  • VAST Songs 1 & 2 (karaoke to familiar children’s songs)
  • Sing Carols (karaoke to Christmas Songs)
  • Sing inTuna/PitchBot/Pitch Graph
  • Oral Motor (Oral Motor Exercises)

 

I just want to brag!

I know it’s been awhile, but I just want to brag!  Wednesday, April 27, I got myself dinner…Now, I have gotten myself some “easy” meals, but this was not just any old dinner: I put leftover burger & fries on a plate, reheated it, & gave myself a bib.  J  I love how much more independent this house allows me to be!  (More on that later!)

Concerning my kids (u may be aware of some of this, if u follow me on Facebook &/or Instagram):

Zach opened his mission call 3/31. He leaves June 1 to serve a mission for The Church of Jesus Christ of Latter-Day Saints. He will serve for 2 years in San Diego, CA mission, ASL speaking (the letter said “u will prepare to teach the gospel in ASL” ).  In my opinion, Zach has been preparing for his mission since he was 6 years old!

Saturday, April 23, my son, Zach, came home from college (BYU), & as he unpacked, I sat in his room, & held a CONVERSATION with him!  I’ve held conversations with family & friends just sitting by me, staring at my mouth, but he was able to walk around & unpack!  I’m sure it’s not all me… In fact, I KNOW it’s not!

My youngest daughter, Sophie, competed against several middle & high school show choirs, swing, & jazz choirs in a Show Choir competition on April 1st, w/ her amazing group, the Ringtones, last   They won best vocals & grand champs:

https://www.youtube.com/watch?v=A-oSBMP-Zy4

This group of girls is so motivated!  Around December. They started hanging out here, & learning songs just for fun. In February, the choir & voice teachers heard them, & got involved, realizing something could happen, & since the school had no show/swing choir, they entered this last competition as the LTMS swing choir.

I know they have practiced hard!  It was good to see the “fruit of their labors”!  & I can’t believe these girls are in 8th grade, & just started seriously practicing a month ago!  They usually practice here, & I don’t get tired of hearing them!

As for my oldest daughter, Jessie, is now 16.  She has been driving for a while (she had a hardship license–since I’m disabled, but I think the license was more of a hardship for us, cuz it rarely helped us!), &  she can now date (heaven help us)!  In fact, this weekend, she is going to “Mormon Prom.”  Last year was the 1st time I got to check it  out, & it was amazing to see EVERY girl wearing a modest prom dress!  It gave a different feel to the evening that was so wonderful!  I am glad my daughter can attend such a great event!

Also, since Mark & I have been so focused on Zach’s mission call, & Sophie’s choir competition, my other daughter, Jessica, took it into her own hands to do April Fools on us this year!  I thought u’d enjoy seeing what she did…

2016-04-02 13.55.02

my 12th “stroke-aversary”

Yesterday was my 12th “stroke-aversary”, so when Mark found me in tears yesterday (I was just sick, & wanted to go to bed, but was having an anxiety attack at the same time!), he thought it was about my stroke-aversary!  Lol. Guess it kinda’ was that too, cuz I wanted to DO something, & “celebrate”!

There have been things have occurred this week that have reminded me of some things:

Life is fragile.  U never know what God’s plan is for u…I had a very different plan mapped out in my head!  I am sure my kids would’ve preferred a “normal” family, but I am grateful for all that my family does for me, & I will be eternally grateful for being blessed with a man who has stood by me & helped me to be a better person.  I have been fortunate to marry into such a supportive family, as well as for being born into a supportive family, & constantly being surrounded by supportive friends.  Most of all, I am grateful for Christ’s atonement, because I know that I am never alone, & that Christ is aware of me & my feelings.  It is hard for me to imagine the suffering He endured as He experienced not only the things for me, but for everyone!

 

Since I’m often asked what can be done for someone who is going through a “rough patch”, I thought that I would share what some of the things were that were done for me post-stroke, & maybe it will “jump-start” your brain, so u can adapt the idea to another situation:

  1. 100s of “thinking of you” & “you’re in our prayers” cards were sent, including some emails, & several people wrote to me more than 1 time
  2. Hospital & home visits from family & friends, near &far
  3. Friends placed me on LDS temple prayer rolls
  4. A small picture book was sent, w/pictures from my youth, by my seminary teacher
  5. Primary classes sent me cards & pictures of the kids
  6. Flowers & a big cookie were sent to me in the hospital
  7. My best friend recorded favorite shows for me
  8. My sister would come to the hospital & file my nails
  9. Books were sent to inspire as they were read to me
  10. A favorite picture of Christ was mailed to me
  11. Someone sent me a favorite movie
  12. Flowers were given to me weekly, once I was home by church friends
  13. A church friend recorded Sunday School classes for me, while I was in the hospital
  14. When I was in the hospital, Mark finished off selling & shipping the eBay stuff that I was in the process of selling
  15. A church friend recorded the Easter sacrament program
  16. My family held Easter & Family Home Evening (FHE) in the hospital with me.
  17. My high school best friend & her family gave up a Disney trip for spring break and went to Cleveland.
  18. My cousins gave me (my first) iPod, burned with church talks and music
  19. Bishop came to the hospital to help give me the sacrament.
  20. A family member filled our fridge with yogurts and apple sauce.
  21. A church friend was best doctor—he made house calls came in on weekends and holidays just for me
  22. Mark kept my journal for me, until I could type & keep my OWN journal again
  23. Some meals were brought in.
  24. My brother helped to get me the best hospital bed to use at home
  25. A church friend sent the Relief Society Newsletter to me
  26. Church friends let me use their pool for swim therapy
  27. Many people found creative ways to use their talents to help me…Some of those ways were:
    1. My Visiting Teacher taught me to watercolor , which increased my range of motion
    2. My brother sent me a CD he had recorded of him playing his own arrangements of hymns
    3. A church friend made a Jesus sculpture for me
    4. Deaf friends taught ASL.
    5. The Young Women from church visited me in my home, to share things they made for me at girls camp, & gave me a “candy gram”
    6. The entire primary sent me cards, & some were selected & put on a quilt for me
    7. CDs were sent that had mixes of inspirational & relaxing music
    8. My husband continually thought of ways to make me smile & laugh, but would also just spend lots of time with me.
  28. Friends took me to a Donny Osmond concert (because they knew  that I liked him!)
  29. My sister her spouse, & Mark’s parents moved to Indy to help out
  30. Friends helped with range of motion
  31. My brother & his family took my family to Disney World
  32. A church friend made preparations so I could return to the temple
  33. My Visiting Teachers often sent cards w/uplifting quotes

 

And I’m sure that I’m forgetting stuff, but maybe this list will give you ideas of what to do for someone who’s sick/hurt!

How do you stay close to the Lord despite your trials?

These are thoughts that help me stay close to the Lord:

Staying close to the Lord will not change our thoughts & feelings about a trial, & our trial may never go away…In fact, once u get a handle on things, your trial may even grow!  But by staying close to the Lord, you will be strengthened, & “bouyed” up, so u can press forward & endure to the end.

The atonement was not just for sin.  Through the atonement, Christ understands our every pain, whether physical or emotional.  I have no idea how in 1 night, Christ felt how I feel almost 12 years after my stroke, but He did!  So whenever I feel like no one can possibly understand how I feel, I think of that, & it strengthens me.

Always remember that u were prepared in the pre-existence for any trial that u must face, & if it gets too hard, tell Him!  Your problems won’t disappear, but u will be made stronger, & it will last only a little while!

If u ever feel like NOT praying, NOT reading your scriptures, NOT attending church, etc., then u probably need to!

When faced with a trial, it is easy to question the Lord & ask,”Why me?”  But instead, remember that it is through these trials that we learn to rely on the Lord & become who we want to be!   When u have a good workout, it isn’t pleasant, & your muscles get sore.  It is just as painful to stretch our “spiritual muscles,. but necessary to grow spiritually!  Staying close to the Lord gives us strength & direction on our journey.

 

I’m back!

I haven’t posted in a while, cause so much has been going on: we just moved, went on a Disney Cruise, found & trained  another person to help me, & hI ave been recovering from pain that was in my only working limb (I didn’t even know why it hurt…my guess is stress & tightened muscles didn’t mix with the lack of stretching & lack of therapy in the last few weeks, but it severely “crippled” me—I could barely type, sometimes I was unable to feed myself, etc.).  But good news: I am doing MUCH better, & even made myself my own bag of popcorn!  (Granted, I made a mess too, but it was the 1st time in almost 12 years that I made popcorn, & poured my own bowl!)

 

Since my article is being run again in LDS Living magazine again, I thought I’d share some “updates”, & share some things the original LDS Living article got wrong:

  • My stroke occurred in my Indianapolis, Indiana home – we moved to Austin, Texas to build an accessible home, & be by family.
  • I used to be the compassionate service leader, & a Young Womens (YW) teacher before that, but now  I am the YW Personal Progress Leader (check out this remarkable youth program)–& recently earned my medallion again, along with both of my daughters (who were 13 & 15 at the time)!
  • “I Love to See the Temple” is one of my favorite primary (children)songs, but not THE favorite! (It’s this.)
  • I speak a LOT now.  As u may be aware, I started horse therapy after this article 1st came out (which has been AMAZING & strengthened my core so much!), & my therapist jokes that when we 1st started, I could only say a few words, but “now (she) can’t get me to shut up!”  If u get to know my Sophie, she’s so much like me, & she talks all the time, just as I used to do—so my therapist is correct in her explanation!
  • Our 20th wedding anniversary was in 2014.