Saturday/Sunday News

Jenny was a bit congested Saturday and more tired than normal, but the infectious disease docotrs feel she is free of anything contageous. As for Sunday, Jenny is still sleepy, but feels better. Little or no congestion and she has been great with her blood pressure. Her Neurologist did not appear to know she was making voluntary arm movements, and she was able to do right and left side muscle contractions on her arm. He asked if she could move her legs or feet and we told him that she could not, but when asked to try, Jenny made ever so slight movements in her left foot . The neurologist felt this was an excellent sign and sounded very positive for the first time. They feel she is ready to go to Indy on Monday if all stays the same.

It’s raining in Cleveland, but the sun in shining on Jenny

Jenny’s temp and blood pressure are fine now- just a few hours too late. However, she is making voluntary arm movements when you ask her. She can move her arms one at a time just enough to definately see that she has movement. The nurse was so proud and told us about it once we got back from lunch and Jenny is proud too every time she shows someone. The nurse claims she was able to move the fingers in the right hand. Most of the arm movement comes from the shoulders, but you can see her arm muscles flex when she tries. I guess my day is pretty good after all.

Still here

If you read the last entry, you may have remembered that Jenny hated my April Fools jokes. It seems like we got a delayed April Fools from the hospital when they said yesterday that we were going home, but they informed us that Jenny is not able to transfer today (Friday) due to low blood pressure and a midgrade fever. It was like getting a kick to the stomach. This is our second delay and since transfers do not happen over weekends, they will try again on Moday. Jenny took it better than I expected. We both miss seeing the kids who initally were only to be home a couple days before us. Now we are on a second delay. Anyhow, she states she feels good, but the hospital is being cautious.

April 1 2004

First of all, I have to thank Jenny’s brother Don for this great web site. As a matter of fact, I appreciate all the things that family and friends have done, and are doing, in our behalf. Jenny’s health has been up and down when it comes to bacteria and fever. As for now, it looks like she will go home to Indy Friday 4/2/04. She will actually be going to St Elizabeth Ann Seton for long term acute care. Jenny’s spirit has been much better lately. She hit the realization point about her condition a few days ago. The last couple days have had some points of joking around (on our part) and silent laughter (on Jenny’s part). She has pushed her toungue out and smiled on a few occassions that were voluntary movements. It sounds like a small thing, but huge in the evolution of her rehab.

Her respiratory sounds are good and her health is great- except for the obvious. She seems to swallow and she does not need a reperator. Jenny has been listening to some music selections provided by her Reiser cousins that seems to comfort her. We watched a favorite tv show together and she is still giving me orders. She finally demanded that we change our way of spelling with “blinks”. She did her own way until we finally told her that we give up and she is in charge. She requests to hear primary music, but goes to tears right away. She really misses her chorister calling in church and the kids she works with. I think she still has not got too tired of me hanging around her bed all day, but she really misses the kids who went back to Indy a week ago. Hopefully, the next entry will tell you that we are back in Indy. By the way, Jenny does not appear to like April Fools jokes this year- but it was okay when I played them on her mom.

Looking for links and books

Brian has sent me some web links and book references that talk about some miraculous recoveries from locked-in syndrome. I’m working on creating some special web pages so that this information can be shared with everyone.

While I’m putting that together, it would be nice if anyone who has found good links or book references would let me know about them. That will allow me to make these pages even more useful.