Jan 27, 2005

Jenny survived her first plane trip this week. We just returned from visiting where our new home will be in Austin. The actual time on the plane was no problem at all. As a matter of fact, I finally realized who they built the plane seats to accomidate. Jenny fit good in them and was well supported, so you can blame her for uncomfortable seating if my theory is correct. The other stuff was not so smooth (cancellations, rerouting, late arrivals, missed planes, blizzard conditions etc…). Several years ago, Jenny had her bags lost and she stated, “To have my bags lost is by biggest fear of anything.” A much wiser Jenny remarked a couple days ago, “After a stroke, most problems that occur seem small and are not worth worrying about.” The real difficult part of traveling was being without her assistive equiptment such as her power chair, accessible van, accomidated bathroom, and so on. She had a rental chair that tilted back and folded up (since her other chairs do not travel well). It turned out that the chair actually made her work so hard to stay up that it wore her out.

We did attend what would be our new ward. As it turns out, a few families (all with kids our kids’ ages) live on our short street, so our kids will know their neighbors better since they will get exposure at school, church, and the neighborhood. Jenny’s favorite part was that since it was a new building, there was a ramp that led to the podium. The members were just as nice as those in Indiana, but the building its self felt more accomidating. Overall, Jenny loves the area and would love to move there! that was a big relief for other family members and myself (mostly since we are starting construction there). The weather was wonderful. Jenny has a difficult time with the cold now, so being that Austin was in the 70’s and Indianapolis was having a blizzard, it proved to be a good place to go.

Jan 17, 2005

We have been highly encouraged with Jenny’s increased strength related to her knee bends that she is able to do while strapped on the tilt table. She has definatley demonstrated the ability in doing significantly more bends each time she does them. Little things like this can still be physically exhausting for the rest of the day. I also see greater shoulder strength while Jenny is laying down, but nothing new in her shoulder while sitting up. Even the physical therapist is surprised that the movements have not carried over.

The extreme cold weather is highly difficult on Jenny. She is really looking forward to her trips to Austin and Orlando in the next few weeks.

January 13, 2005

Jenny has had a “bumpy” few days and continues to be a tough woman. She has had a number of bumps and bruises stemming from various reasons. Her new chair is awesome, but she has got her foot caught under the foot peddle as it was moving, the arms are too narrow and bruise her legs, and she pinched her toes between the table and foot rest when leaning it back. We do have an appointment to fix some of these wheel chair concerns. The worst incident was when she sneezed herself off the toilet and landed on her face. I was nearby, but not close enough. It was a weird experinece to see someone fall slowly like that, but not be able to brace their fall with her hands. It was painful, but Jenny was incredible with handleing the pain. Her face is only a little sore on her cheek, but no bruise. It did cause her to be able to pucker her lips better on command. Discomfort has always helped motivate her intentional movements. She kind of liked being able to move her left leg and foot. Instead of crying, she was laughing and excited as she told me to watch as she made her foot move. She is doing good, but has had more accidents and bruises these past two weeks than in the past 10 months.

January 10, 2005

Jenny continues to do well with driving around the house and using her arm support. We were excited to see her show some strength in her legs by being able to bend (a little) and then strengthen them (a little) while at a 75 degree tilt on the tilt table. It is a good step in the right direction. Jenny feels a mixture of some successes and a large degree of frustrations and losses. I would say that her life is still very much filled with trials and struggles that are difficult each and every day. Our big goal is to get her speech working. There are glimpses of sounds and words all the time, but nothing that is solid and permanent. I would love to hear her voice again and be able to know what she is thinking and in need of without the slow/difficult process of ASL spelling (which is still tons better than the blink spelling).

Jan 6, 2005

Jenny continues to do well with the power chair. I had to put her in her non-power chair because the other was caught in a sudden rain storm. It was an interesting experinece because we both realized how much better life was with the power chair. Jenny rides around on super slow speed. It was just this week that she was able to see how fast it could go. She picked Zach up at the bus stop and he drove back on her lap at full speed. She liked it, but is still too unsure to gun it. There are a couple marks on the wall (one by me), but they are easily fixed by a little paint. It is more difficult to use in crowded areas because Jenny is unable to clearly see people dart in and out. Sophia found out that we really were serious about not touching the attendent control as she backed it over her own toes. She is fine, but hopefully wiser.

Jenny is so excited about her new teaching position with me in church. We get to teach Zach’s class and she is glad to be back in Primary. What can a woman who can not move or speak do as a teacher? Well, she already has done it. As we read the first lesson together, as we planned for next week, she kept stopping me to tell me she has made visual aids for various points of the lesson- especially the parts where we are to sing songs. I will actually have visual aids and planning involved in my lessons. I just hope I have time to find or make everything she has planned.

Jenny has been feeding herself meals with her new arm support. It is incredible as she seemed to rapidly improve from meal to meal. I found out that I was not feeding her fast enough (based on how fast she is able to eat). Appearantly, I was not splashing it on her face enough either (also based on her self feeding). She is getting better and not as messy with each meal.

We are planning on two big plane trips back-to-back. We are going on a quick trip to Austin to let Jenny see the property we bought. A few days later, we will be in Florida. This will be her first time on a plane since her stroke, so I hope we work the bugs out by the second trip.