Jenny continues to struggle with pain in her body due to involuntary muscle movements. We all treasure the moments when she appears to be comfortable and happy. Jenny has work well with making sounds recently. She often mouths words she wants to say, and I have noticed (after her mom pointed it out) that Jenny mouths words to songs that she listens to. For some reason, she does best at producing sound following a stimulation like laughing. Unfortunately, the thing that made her laugh the most was when she spit up at me on accident (so she claims).

Jenny is able to sit longer (2-3 hours) in an upright position and her tone in her neck and upper body get better every day. Some parts of her body are becoming more stiff, but we are trying to work out those bugs. She also seems to be getting sore muscles that are being worked in therapy. We had accessability designers and therapists from the rehab come to the house to see what needs done to get Jenny set up to come home. The house looks pretty good, but needs to add a roll-in shower. However, Jenny could come home at pretty much any time, as far as the house goes.

Jenny began showing voluntary neck movement to her right today, which has relieved the pressure on her right ear some. Therapies have focused on strengthening the neck. In just under 2 days, she has also gained more tone in her neck and she is able to sit upright in a bed with litle or no support, when she needed constant support as recent as last week. I took her outside at lunch time and Jenny just relaxed peacefully in the sun and breeze. Since Jenny is aware of her condition at all times, she sees less progress than someone like myself or less frequent visitors. There are wonderful things returning each and every day which add up to bigger improvements as time goes by.

Jenny seems to be more at ease and getting her needs taken care of at her new hospital. Rehab has been tiring for her, but I prefer the more aggressive approach. Her head does not pull as much to the left today. I had spent the past three nights with her, so I have had just as little sleep as she gets. Yesterday, while holding her head (near the temple/top of her left side) to keep her sore ear off the pillow, I fell asleep and woke to find myself smooshing her face. I jumped and Jenny had the biggest laugh. I’m sure it was uncomfortable or at least annoying, but after a while (how long I do not know) she appeared to find the humor in it.

Jenny is here next to me and she wanted me to send her love to you all. Jenny has been in real clothes the past two days and looks so very good. She gets upset when they put her back into gowns. She wants to take a bath/shower so very bad, but they want her to get better neck and back control. I think she will work that issue until she gets her way.