Church

Jan 6, 2005

Jenny continues to do well with the power chair. I had to put her in her non-power chair because the other was caught in a sudden rain storm. It was an interesting experinece because we both realized how much better life was with the power chair. Jenny rides around on super slow speed. It was just this week that she was able to see how fast it could go. She picked Zach up at the bus stop and he drove back on her lap at full speed. She liked it, but is still too unsure to gun it. There are a couple marks on the wall (one by me), but they are easily fixed by a little paint. It is more difficult to use in crowded areas because Jenny is unable to clearly see people dart in and out. Sophia found out that we really were serious about not touching the attendent control as she backed it over her own toes. She is fine, but hopefully wiser.

Jenny is so excited about her new teaching position with me in church. We get to teach Zach’s class and she is glad to be back in Primary. What can a woman who can not move or speak do as a teacher? Well, she already has done it. As we read the first lesson together, as we planned for next week, she kept stopping me to tell me she has made visual aids for various points of the lesson- especially the parts where we are to sing songs. I will actually have visual aids and planning involved in my lessons. I just hope I have time to find or make everything she has planned.

Jenny has been feeding herself meals with her new arm support. It is incredible as she seemed to rapidly improve from meal to meal. I found out that I was not feeding her fast enough (based on how fast she is able to eat). Appearantly, I was not splashing it on her face enough either (also based on her self feeding). She is getting better and not as messy with each meal.

We are planning on two big plane trips back-to-back. We are going on a quick trip to Austin to let Jenny see the property we bought. A few days later, we will be in Florida. This will be her first time on a plane since her stroke, so I hope we work the bugs out by the second trip.

Nov 17, 2004

There have been several big events these past few days. Jenny was evaluated for a power wheel chair (which is something she has been waiting for). She was perfect at it. All that Ms PacMan really paid off for Jenny. The chair has features that allow for new freedoms. Jenny is able to tilt herself back (to relieve pressure when needed), the chair is faster than Jessie’s bike, It can elevate up and down, and it will raise and lower her legs. Most of all, I will not leave her in a room to watch the kids play and then come in later to have her left watching a pile of toys that were left by the kids who went elsewhere.

We also went to the Louisville LDS temple last weekend with the ward. It was Jenny’s first time back since just a couple days prior to her stroke, 8 months ago. It was a bit scary for her since we did not know how she would do on a long trip, at a hotel, or at the temple. The hotel and ride were easy as pie. The temple experience was wonderful, due in part to all the supportive ward members who made it possible. Jenny told me she felt a sense of peace that she has not had in a long while and that it was a needed experience. These are just more things that we have experienced and conquered. Our next big challenge is flying, but I think we will do fine with a bit of planning.

Outpatient therapy is working well. Jenny responds best to speech therapy so far. Her therapist has been on vacation this week and Jenny has actually digressed. I was stumped as to why, since the therapy they were doing was essentially the same. It dawned upon me that the only difference was that the usualy therapist and Jenny spend half the time laughing, which activates the vocal chords and allows the therapy to work better.

Occupational therapy is Jenny’s worst therapy. A quarter of the time it is really helpful, but the rest is a waste of time or frustrating to her since they want her to do things that she does not agree with (I am on Jenny’s side most of the time). As for Physical therapy, Jenny takes on a good amount of pain and works hard at everything they tell her to do.

Nov 5, 2004

Jenny is now finally tube free! Initially, they were going to sedate Jenny and put a scope down her throat to see what type of feeding tube was placed there. Prior to our first attempt on Monday, we had prayed for a successful removal without complications and felt good about it. Since they could not insert an IV, her initial tube removal date was postponed. It was confusing to have felt good about there not being any complications, but then have complications that prevented the removal. However, it appears that things worked out better off. Since they did not want to stick her 100 times looking for an IV, they contacted the hospital who inserted the tube and asked what type it was, so all they had to do at that point was skillfully pull it out in a proceedure that took a couple minutes. It makes a person wonder why they did not make the call to begin with if it could have been this nonevasive to begin with. I now realize that our prayer to avoid complications was most likely answered in the form of eliminating unnecessary proceedures that would have been performed the first time we went in.

Jenny is doing better each day still- just tiny bits at a time though. She is back to her old love of journaling again. She just does it on the computer now. Her entries are short, blunt, and filled with strong emotions. It appears to be really therapeutic for her. Jenny was able to vote this week and do a bunch more things that she has not done in a while. Outpatient therapy is wonderful for her. Her speach therapist is too much like Jenny (even the same anti-bean eating beliefs). Jenny is rapidly making improvments with her tongue, mouth, and voice through newer and inventive therapies. I really can see her speeking some day, even though she has not made any recognizable words or sounds yet.

Jenny is in her new room with her roll-in shower. It is wonderful and there is a bigger bed so I can take over more of the caregiving at night. I was initially worried that taking care of her from 7 am to 11 pm, plus get up every couple hours at night to reposition her would be too much, but as I have taken a few more nights from the night nursing aide, it does not seem to be all that taxing. I still have a nurse who relieves me 1-2 days per week so I can do a few errands or work things. I will most likely still have a nurse come in a couple night just to make sure I sleep enough. My biggest worry is what would happen if I become ill for even a short period. Jenny is still reluctant to have others do much for her besides myself (and the nurse on occassion).

Oct 12, 2004

For the past several years, our family has enjoyed the tradition of having weekly family nights. Once a month, we have a night where all we do is take turns sharing our feelings for each other, the gospel, and what ever else that person would like to share. For those familiar, it is like a testimony meeting at church, but much more intimate. The past several months have come with a void in which Jenny has not been able to be involved by sharing her thoughts during this favorite family activity- until now. Last night, Jenny was able to use her ever improving ability to finger spell her thoughts and feelings. We really miss hearing her voice, so it was wonderful to experince the miracle of her communicating her thoughts to us this way.

Jenny has told me on several occassions lately that she tries and tries, but her left side does not respond anymore. It has been 2-3 months since her voluntary movement on her left slowly went away. It was her stronger side and had more voluntary gross motor movements initially. She refuses to give up. We went through our closet this week, as a yearly tradition dictates. I was impressed that she finally got rid of some of her 80’s clothes from high school. When it came to her high heels, I asked if I could get rid of them. Jenny refuses to believe that she will not walk in them again some day. So, we kept them. Because it is Jenny, she probably will.

Oct 3, 2004

We were able to watch our church’s General Conference broadcast from our home this weekend, which was easier since we did not have to leave the house for church. I think it is because of our situation, but it seemes like many of the talks by the church leaders delt with overcoming trials and tribulations. It gave us an opportunity to discuss how Jenny was feeling these days about her struggles. Overall, Jenny felt that the conference talks brought comfort and peace, but she still suffers each day and it is difficult to be patient while healing occurs.

Jenny has become quite strong in using her right hand. I think it is because she signs with it so much and has functional uses for those movements that makes her exercise it throughout the day.

I was able to get out of the house, despite a reluctant wife, for the first time in a great while. I took a short hike with my father which was a needed break. Jenny still struggles to not have me with her at all times. I can easily lift her while providing her the care that she needs. Everyone else needs to use the overhead lift which Jenny finds to be uncomfortable and “humiliating”. I agree that the lift is not the funnest thing, but it is the best we have- and the safest option. While we were gone, I was even more afraid of getting into trouble for being late than I was prior to her stroke. She can not even talk, but I am still afraid of her wrath and getting lectured for wrong doing. Since the hike, Jenny has tightened the leash on letting me go anywhere.