weakness can become a strength

After the trip to Utah, our family went on another Disney Cruise (so fun), but between the 2 trips & 2 weeks of horse therapy cancellations, even though I did TONS of therapy when I was home, apparently it wasn’t enough:

Ether 12:27 from the scriptures (Book of Mormon, another testament of Jesus Christ)
“And if men come unto me I will show unto them their weakness. I bive unto men weakness that they may be humble; and my grace is sufficient for all men that humble themselves before me; for if they humble themselves before me, and have faith in me, then will I make weak things become strong unto them.”

Last Tuesday I was switched 2 a saddle (from a pad) in horse therapy, which I can’t believe how much different it is! It requires much more support from my torso. My music therapist has been focusing on my breath support, & has noted how much stronger my abs are on the right side of my body, so my rt. side was ready to switch, but not my left side–on a scale of 1-10 (1 being low/hard) it was averaged to be a 5. But it was a 3 on my left, while the right side was an 8!

The last 2 weeks I’ve returned so exhausted, it’s taken me 2 days to fully recover! It wears me out! I NEVER nap or rest, but last Tuesday I did rest, & I couldn’t wait for bed, yet I was still tired the next day! This week, however, I focused on weight-bearing on my left arm, so I am able to straighten my left arm, assuming it would help me get less tired in horse therapy. I was right. A straight left elbow helps, & my therapist did a great job positioning my left arm so I could find the muscles to straighten my left arm (though, right now, I also seem to tense up my left leg as well!), cuz usually, for some reason, the muscles are easier to instigate when my hand feels something to push on! It was still hard this Tuesday – a 4 – but it really helped! I took it easy the rest of the day, but when I did therapy the following day, I was still tired again, so I have some catching up to do!

My 10th stroke-a-versary

10 years! Wow! A lot has happened…here are some highlights of the last 10 years–Some of the things listed below weren’t “achievements”, but highlights (like seeing Donny Osmond in concert):

Journalling on the scrapbook pages:

lemonade-2004-web
2004:
“The eyes are the window of the soul” Mary Anne Radmacher

• I’m alive, after a nearly fatal brainstem stroke in March 2004.
• In April 2004, I began showing voluntary neck movement to my right, & by May, I could move my right thumb and came home from the hospital at the end of the month.
• In Sept. 2004, the LDS (The Church of Jesus Christ of Latter-Day saints) prophet, President Monson wrote to me.
• In Sept. 2004, I started to develop significant movement in my right arm, so in Nov. 2004, with the help of several ward members, I went to the temple for the 1st time post-stroke.
• In Sept. & Oct. 2004, (this was a huge deal), I started to fingerspell & use a modified sign language, instead of blink spell.
• By Nov. 2004, I had gotten rid of all my tubes (trache/breathing tube–August, catheter—Sept., & feeding tube—Nov.).
• In Dec. 2004, I was the proud owner of my 1st power wheelchair!
• On New Year’s Eve I received my 1st calling/volunteer job (in the LDS church) post-stroke, as co-teacher with Mark as the teacher of the 8 year olds (Zach’s CTR8 teacher in primary).

lemonade-2005-web2005:
“When life hands you lemons, always ask for sugar.” Anonymous

• In Jan. 2005, I start doing knee bends w/help (someone pulls out my knees, & I stand up) while at a 75 degree tilt on the tilt table.
• In Feb. 2005, a friend from church taught me how to watercolor.
• On March 14, 2005, I posted for the 1st time on my website. Mark had introduced the computer about 5 months earlier, but it took that long to have the strength & ability it required to feel capable of posting.
• In March 2005, if I don’t think about it, on occasion, I am able to produce word sounds.
• April 2005, saw my long time “love” (Donny Osmond) in concert.
• In May 2005, I was introduced to digital scrapbooking.
• In June 2005, I moved to a warmer climate, where we were building an accessible home (which we moved into in Dec. 2005), & MK assumed his role as my primary caregiver & a full-time dad w/o help.
• In July 2005, I started playing the piano again, 1-handed.
• In Aug. 2005, I started moving my left shoulder (where there has been absolutely NO movement since my stroke).
• In Sept. 2005, I was asked to be co-Activity Day Leader at church, where I taught the 8-12 year old girls at church through spiritual activities.
• In Oct. 2005, I started a digital scrapbook class
• In Nov. 2005, I made 3 pies from scratch (apple, ice cream, & pumpkin)!

What are some of the most valuable lessons our parents have taught you?

I would have to say that one of the most valuable lessons I have learned growing up is to work hard and to never give up – try and try again. Or, as the little blue engine would say, “I think I can, I think I can, I think I can.” Even when the going gets tough, or when you are too shy to try one more time… you aren’t allowed to give up — things always seem to work out in the end if you have faith, say prayers, and believe in yourself. I learned this through tough experiences in my own life where mom and dad helped me to continue on, no matter how hard it seemed. I also learned it by watching them through their examples and their trials and happy times in life. There is nothing so strong of an influence to a child as a parent’s day to day actions.

lemonade-2006-web2006:
“I am always doing things I can’t do, that’s how I get to do them.” Pablo Picasso

• Feb. 2006, I discovered that I have PBA (which is why I laugh/cry uncontrollably).
• Around June 2006, I started music therapy, & can grunt vowels–I cannot yet say stuff on the spot or if I am asked to say something.
• In June 2006, I began my current website/blog.
• Sept. 2006, I could stand &, if I was held right, I could walk in the pool.
• Oct. 2006, I took aquatic (swim) therapy.
• By Oct. 2006, I have reduced the number of times I need to be turned at night to once at night.

lemonade-2007-web2007:
“Achievement—only those who dare to fail greatly can ever achieve greatly.” Robert F. Kennedy

• Feb. 2007, my new, & current, website began.
• March 2007, all my kids are beginning to understand my ASL
• In May 2007, I met the presidential candidate, Mitt Romney.
• Aug. 2007, I was asked to be the Ward Historian, & keep a record of what we do, at our LDS church.
• In Oct. 2007, I was a presenter at an international doctor conference in Cleveland, OH.
• I was published in the April/May 2007 issue of Simple Scrapbooks Digital Scrapbooking magazine.

lemonade-2008-web2008:
“All things good to know are difficult to learn.” Mary Anne Radmacher

• Feb. 2008, I figure out that I can suck through a straw!
• In the spring of 2008, I was called as an Asst. Ward Music Chairperson, & find special musical numbers for the Sunday Meetingin our LDS church.
• In July 2008, I started to play the recorder & increase my breath support.
• In Sept. 2008, my article “Primary Songs Blessed Me,” was published in the Ensign, a church magazine for The Church of Jesus Christ of Latter-Day saints.
• In Oct. 2008, the LDS prophet, President Monson wrote to me again, & actually remembered me!
• In Dec. 2008, I performed in a church play, as the angel Gabriel, who announces christ’s birth.

lemonade-2009-web2009:
“It’s kind of fun to do the impossible.” Walt Disney

• In Feb. 2009, with the assistance of a computer program, I finally can read all of my own emails (instead of waiting to have them read to me), regardless of the font size!
• April 2009, I touched the top of my head while sitting!
• May 2009, I blew out a candle.
• June 2009, though I’ve done it on rare occasions since 2005, now, even if I am not sitting “exactly right,” I am able to use my right arm to pull myself so I can lean forward & sit back up.
• In Nov. 2009, I was asked to monthly teach the 12-18 year old girls at church

lemonade-2010-web2010:
“The greater the difficulty, the more glory in surmounting it.” Epictetus

• March 2010, I independently feed myself a whole meal, without using an arm support.
• April 2010, I start being capable of caring for my left hand.
• In June 2010, I spoke to the 12-18 year old girls at the LDS church girls’ camp.
• In Dec. 2010, I rode 2 rollercoasters at Disney World: “Tower Of Terror” & “Aerosmith’s Rockin’ Rollercoaster.”
• Again, in Dec. 2010, I performed in a church play, as the angel who announces Christ’s birth.
• About Dec. 2010, I started smiling with booth sides of my mouth, using the muscles on the left side of my mouth!

lemonade-2011-web2011:
“The flower that blooms in adversity, is the most rare & beautiful of all.” Mulan

• Jan. 2011, I can now say most of the alphabet, many words, & several phrases.
• In Feb. 2011, while casually reading an email from my yahoo stroke group, I find that I was published in a British Medical Journal, as an example of how attitude can affect us, & to show that there is life after stroke…here’s an excerpt:
“…the ability to speak was powerfully predictive of happiness, the researchers found. The odds ratio for having happiness scores of 0 to +5 was 20.47 (95% CI 1.89 to 221.45) among respondents who indicated they could say words or sentences.
Another factor that may help patients maintain a positive attitude is mental discipline, as indicated by blog posts from a patient with locked-in syndrome since 2004.
The patient, an Indianapolis woman whose name is given as Jennifer Ann Lynn, developed the condition at age 30 following a brainstem stroke. Her husband started the blog almost immediately, but Lynn herself began contributing in 2005. She regained some hand movements and was able to control a computer as well as an electric wheelchair.
She also regained some speech ability, but in a post from December 2010, she explained that whispering and shouting were still impossible.
But, Lynn wrote, “I don’t usually let myself think that, [because] it’s dangerous. It’s a matter of perspective: I can’t think, ‘I wish …, I want …,’ or dwell on what I can’t do.”
• In Aug. 2011, I went in the ocean on a family vacation to Destin, Florida.
• Although I’ve been capable of writing short things since 2005, as of Oct. 2011, my handwriting has become more legible & I can write more!
• In Oct. 2011, I was written about in an observation by Jack Rushton, a man I greatly admired.


lemonade-2012-web2012: 

“Blessings come in disguise. And challenges can be a blessing.” Actress Diane Lane

• In April 2012, I gave myself the bread & the water (I’ve been doing just the bread since 2010), without any help, during the sacrament for the 1st time since my stroke!
• In May 2012, I was interviewed & videotaped by Mormon Messages, & in Sept., I literally had 15 minutes of fame in a Mormon Messages video on you-tube.
• Sept. 2012, one of the greatest blessings in disguise: my falling off of a curb in June resulted in a hospital trip, which directed me to a doctor who gave me medicine for my PBA!
• In Dec. 2012, I was published in a Fortune magazine article, with my dad.

lemonade-2013-web2013:
“God has equipped us to do just what He wants us to do?When God gives an assignment, it comes with His enablement.” Dave Branon

• As the year progressed I began to have enough control over my eyesight that, while double vision remained, by the fall of 2013, I could read smaller font, & books on my mini iPad.
• Throughout this entire year, I really grew in my speech capabilities, so I was now able to say more complex & intelligible words & sentences, & often be understood by others.
• In March 2013, I was given a new calling as compassionate service leader, helpingorganize service with the women (18 years old & up) at church
• As of Sept. 2013, I’m finally independently feeding myself for every meal in our home, & most meals when we go out.
• About Oct. 2013, I start doing knee bends on my own while standing straight up on the tilt table.
• In Nov., I started equine therapy, & went horseback riding! Within 6 lessons, my trunk support was at least twice as strong!

lemonade-2014-web2014:
“Anyone who says it can’t be done, is usually interrupted by someone doing it.” Anonymous

• I was published in the Jan./Feb. Issue of LDS living magazine
• In February, I met Elder Oaks, an apostle of the Lord, from The Church of Jesus Christ of Latter-Day saints.
• As of March 2013, I start having conversations & recieve help from people who don’t know ASL, but understand me just fine

utah

Friday, I experienced some very mixed feelings that came from being a stroke survivor, mother, & wife, & I never thought I’d have 2 decide between them:
1. as a stroke survivor, I was proud of myself & cheering at my accomplishment.
2. as a parent, I was upset & slightly disappointed, because my accomplishment came from cleaning up after a disobedient child who left a mess, after several requests to clean (so i did it).
3. as a wife, i couldn’t be upset, but instead embarrassed that i didn’t follow through on my earlier request to make sure it was done, so i felt partially responsible (hence, why i attempted to clean).

In other news, my family recently went on a trip to Utah. My dad was receiving an award at his old college, so we went with a bunch of family & made a ski trip out of it.

Due to poor blood circulation (from my lack of movt.), I am always cold! (Seriously, I freeze at 70 degrees, & I’ve just become accustom to having a cold left hand!). So, I have always vetoed trips where it is cold (the entire family has asked b4 to go skiing). But i figured that my family is always making sacrifices for me, so it was my turn to make a sacrifice for them, & they’ve begged to be in snow. (Poor Soph was only 2 1/2 years old when she had her last winter w/a lot of snow, since I had my stroke & we moved to a warm climate…& while it has snowed here, it is more like a dusting, & Soph has been longing to build a snowman, & make snow angels!)

While we were gone, I didn’t do a very good job practicing my therapy! Sure, it’s vacation, but even on vacation u exercise, etc., & therapy is my exercise! But what I did a lot was talk. My therapist has said the best therapy practice I can do is talk/have conversations & luckily, that week was when I usually have my best speaking week of the month, so I enjoyed talking to my sister-in-law, her friend & friend’s daughter, who were there tending my baby neice & nephews as my family & extended family skied. We just talked a whole lot, & it was cool, cuz they got so good at understanding me, which just seemed to encourage me to talk! I actually looked forward to it (I don’t recall the last time I looked forward 2 something that way), &I felt relaxed, comfortable, & confident in my speaking skills. by not feeling pressured, I didn’t face the problems I get by “thinking or trying too hard!”

Also, I can’t explain it, but the new torso strength I already have built up (thxs 2 horse therapy) helped so much in so many ways on our trip–it was exciting! not only did it physically help, but it also eased my anxiety about my limitations!

Overall, even though I never felt “warm” (unless I sweat from the insane bedshets!), I enjoyed the trip. I rarely get to see the benefits of sacrifice, & while I know sacrifice increases your love for another person, seeing how happy every1 was, made a trip in the cold worth it.

go to the temple

Since my recent article in LDS Living magazine mentions that the 1st thing I told mk was to go to the temple, I’ve had a few questions about what Mormon temples are, & why I told mk to go there.

Honestly, I was so young when it occured, so at the time, I had very little understanding of the significance in going to the temple. But the spirit wanted me to say it so bad that it was all I could think about. It felt like those words were almost shouted at me for 3 days!, & all I could only think was, “Somehow I have to tell mk to go!” So I can’t explain the excitement I felt when mk said I could talk by blinking!

But I think temples are better explained by our church leaders! Watch this video:
http://www.youtube.com/watch?v=QfmKRBV6aCY

& on http://www.mormon.org it says:
The temple is the house of the Lord prepared and dedicated for sacred gospel ordinances. It is also a place of worship and prayer.