Jenny finally had her long awaited ENT appointment today. As it turns out, Jenny demonstrated the skills needed to begin the process of having the trache removed. the plan is that they will put in a smaller trache this week that she can breathe around easier and when she can tollerate the trache being plugged for 24 hours, she is then able to have it removed. It will be a great day in the Lynn household when this happens. We celebrated by eaing lunch at O’Charleys- which was her first time going out to eat. It was a pleasant experience and Jenny seemed quite okay with everything. Her days of not wanting to go out because people will stare at her seem to be coming to an end. She has began to accept more invites to go place with us. I fear that we may have a problem in the future of Jenny wanting to go out too much. She is already talking about going on a vacation to Disney. I guess she feels like she is getting better- finally!
July 23, 2004
I just returned from a 2 night trip out of state. In the past 4 months, I have been by Jenny’s side for no fewer than 8 hours per day, so it seemed weird not to be with her- even though I typically am not a clingy person. Jenny had a couple big new movments to show off that she had perfected in just the 2 days I was gone. I hear others talk about her drastic improvements, but it is nice to finally see what it looks like. It gives so much more, but I am afraid Jenny will not have our luxury of stepping away for a couple days. One of the new movwements is a secret that she wants to show to a few family and friends and the other is the ability to pick up and move her right arm and move it in various directions in large movements. The right side is really getting active, and the left side is showing movement again. Respiratory is great and Jenny still has not needed suctioning for over 10 days! I sill hope for the trache to come out soon- very soon.
July 20, 2004
We continue to do pool therapies as well as the others and Jenny seems to be having larger movements in her right side, and has began moving more of her left side as of today. If anything, she is eating well and she can drink water as long as it is given by dropper or spoonful. We have an ENT appointment Monday and we hope for the best (meaning that the trache will come out). Jenny has not needed suctioning for over a week and she does not appear to have any problems with swallowing/breathing/clearing. Sophia has decided that she is the new therapist for Jenny’s arms, but tends to walk away with Jenny’s arms dangling from the side of the wheel chair. I caught Jenny trying to lift her right arm from a hanging position to almost having the arm rest on the arm rest.
Sophia has also claimed Jenny’s lap as her own personal sitting spot. She will take Jenny’s arms and wrap them around her self and tell everyone that mom is hugging her. The kids get so excited when they see their mom move a new muscle or do any large movement. Jenny has just began to feel able to discuss her stroke and trials without extreme emotional struggles. A friend of hers sent an excellent book by an LDS author called “Making Sense of Suffering”. We read a bit in the hospital but Jenny could not make it through a couple pages without needing to stop. It is an excellent book and Jenny feels that she has more direction and purpose. Jenny also made it through all 3 hours of church last Sunday. It appears that she has been fearing going to Relief Society because it tends to be more emotion evoking than the other meetings (It think the Relief Society women strive to make each other cry or it is not a good lesson). Jenny survived, so I think we are back to the full schedule as long as no other health problems get in the way.
July, 14, 2004
Due to the generosity of a couple families who have offered the use of their pools for Jenny’s rehab, we have tried out aqua therapy with Jenny. Jenny was naturally scared to try, but anxious to see what being in water could do. I have to look at things from her prespective at times and realize how frightening it is to do something as simple as go into a pool. After a few minutes of reassurance, Jenny burst into tears- the good kind. She was able to move muscles that she could not do so before and she felt less restricted and free from having to lay down. She did not want to get out when it was time. Jenny is also moving new muscles in her arms and legs as she is resting between therapies. I try to watch and see what is moving so I can start working that new movement. There is still not enough of one moevment to allow her any ability to perform self help tasks, but she is getting so very close.
July 12, 2004
Zach had his 7th birthday today and I was hoping it would be a good experience for Jenny despite being the first birthday of one of her children since her stroke (did I mention that the kids’ birthdays are the most important holidays to Jenny and she really gets into them?). Jenny insised that I made the cake despite several very capable people offered to do it for us. Jenny eventualy admitted that she did not want anyone making a better cake than her. I am not sure how I am suppose to take that, but the cake was great. I admit that Jenny would have done it better, but I used star tips and character cake pans and all. Jenny cried only once at the party and that was during the singing of “Happy Birthday”. I am sure she wanted to sing to her son. She told me the other day that singing is something she misses most- more than walking or moving her arms. Unfotunately, it is the one thing she does not show any improvement on. Jenny eats better these days. She pretty much eats what we eat for dinner with little or no alterations to it. Chewing is still a problem, so I guess it is lucky I am use to cooking for young children who don’t chew so well so our menu does not ave to change much to accomodate Jenny. I see new movments in her arms and legs that are larger extensions of smaller movements. She is usually able to repeat them at least once more if I ask her to do so.
JENNY LYNN'S NEWS 