Update

Playing “catch up”

I haven’t posted in a while.  In June, we returned from a Disney cruise that went around Northern Europe (we went to London, Denmark, Germany, Sweden, Finland, Russia, Estonia, & the Netherlands). Oddly, London seems more accessible than the US! Mark & I planned to just go with my girls. But my family heard about it, & 23 more people came along! It was a blessing in disguise that so much family was there, because Mark had a kidney stone, & was sick for part of the trip, but there was tons of family there to help w/me!  My kids could’ve helped me the whole time (Jess is freakishly strong, & if teenagers want to help, they can be a great asset), but it was nice for them to be able to share the load, so they could still be kids!  & though it’d have been better if Mark did not have to be sick, if I chose where to have him be sick, the cruise was handy because  there was so much help w/me, w/the cooking, & with the cleaning!

 

This cruise, the elevators are a lot less crowded with strollers, walkers, & scooters, & since I had been out & about more with me driving (since Mark was sick), I knew the ship better…so, I got adventuresome & opened the theater doors (so I could get out of the theater while the show still played), went from floor 5 to floor 3, so I could check out a game, then came up to my room on floor 8–ALL BY MYSELF!!!   From then on, if I wanted to see a movie or something, I just took off!  (I could because my room had an automatic door opener)  It was awesome!

 

About those elevators, one of my biggest pet peeves on cruises is that the stairs are ignored & elevators are heavily used by EVERYONE!  I wish the crew members gave wheelchairs priority on the elevators.)  I get that elevators are used by those who may have trouble walking, have bad knees, or when like 7 flights of stairs to climb, so I try to give people the benefit of the doubt, but when an elevator that is going down opens, & is packed with healthy teenagers who just shut the door, it is hard to remain positive! Sometimes I wish I wore a sign that said, “u can walk, & I can’t.” Or “Laziness is NOT a disability!” (However, I shudder to think of how inconsiderate I was pre-stroke!).

However, on this cruise, I witnessed something that I have NEVER seen before: There was an evening where I was with a family member who had a stroller.  I was trying to return to my room after a movie, but elevator after elevator was packed with, what appeared to be, healthy people. When another elevator opened & was again full, a man (who I had met a few days before) stepped off the elevator, telling me to get on. My brother knew there was not room for the   stroller AND me, so he said we’d wait for the next one, so we could get on one together. The man (Rob?) then proceeded to empty the elevator for me!  I was so touched & impressed by Rob!  Every now & then, I meet someone who is kind & does stuff like giving up a table for me, or opens a door for me, but I have not witnessed such a dramatic move!

 

In July, we had a taste of the future as empty nesters, since the girls were gone so much at various camps.  While I think most parents put things aside when their kids are born, & I think those things start to resurface again when the kids leave, we mostly played catch up, since it was only 2 weeks!”…But I think it will be different in 3 years (yes, I am that old!), when my kids really leave,

 

Recently, we got a foreign exchange student–Giuli (Julie) from Switzerland. She will be here until January.  Her English is incredible, & she can already understand a word or two from me!  It is possible she just understands the context & catches one word that I say (she is smart), but it is great that we can communicate! 😜

 

Lastly, an article was printed about me in BYUMagazine (where I went to college): https://magazine.byu.edu/article/finding-her-voice/  Thanks to my dear friend, Laurie Smith, for the awesome family photo that is at the beginning of the article, & a shout to my friends in Indianapolis, IN, who were there for me the first year after my stroke!

“Wherefore Didst Thou Doubt?”

I was watching this video about when Peter walked on water (https://www.lds.org/media-library/video/2014-01-024-wherefore-didst-thou-doubt?&cld=HP_TH_18-5-2017_dPFD_fMLIB_xLIDyL1-A_&lang=eng), & realized that my speech can be the same way.

 

I have some friends who routinely come by to chat…Rarely, do I ever sign—we really do chat!  & excitedly, I can FINALLY speak to my hairdresser (who, before, couldn’t even talk to me, cuz I could not answer w/a head nod!), & sometimes, I can get out a “thank you” to a person who holds the door open for me!  (This has bothered me for so long, it is very exciting to me!)  I have answered a few phone calls, & have gotten braver, & open our front door, & approach people (in the past, I’d never do that, cuz I can’t talk to them, & they can’t talk to me).  Not long ago, my husband went to help one of my friend’s w/some home repairs, & I tagged along to just keep her company & chat…she knows no ASL, yet for quite sometime we conversed just fine!  & I have had friends at church remark on how clear my speech is getting, & approach me in the halls to talk!    So, with all this occurring to build up my confidence, in a sense, I can walk on water!

 

However my speech is not perfect, & still needs A LOT of work!  As I watched the video, I could understand Peter’s thoughts–often, like Peter, I will think, “I’m doing it!” & have a moment of thrill, followed by panic, questioning myself, & then I clam up (& sink).  It is not until I stop thinking about how I did it, or stop feeling anxious, that I can again speak.  The title of the video is “Wherefore Didst Thou Doubt?”  How much that fits me as well…

 

I have been sick lately, & a few weeks ago, I literally couldn’t speak for a few days, & I had to resort to sign language again…it was horrible!  (Ironic to hear that from me, I know…but I guess it is like swimming in water, after experiencing walking on water), & I wondered how I had tolerated it for so many years!  My family has “gotten out of the practice” of periodically looking at me, & I forgot how hard it is to get people’s attention when u can’t even make a single noise!!!  When I was telling a family member about how I had lost my voice that weekend, she pointed out how it was a good thing I had enough voice to even lose it!

Diamonds Are A Girl’s Best Friend!

If u haven’t seen it yet, this video is on my Facebook page that shows Jessie in my travel wheelchair.  It’s kind of freaky how much Jessie looks like me!

Well, last night, Jessie hurt her ankle, & the crutches we have are way too small—they are from when she was a little girl!  So, she has been using my travel wheelchair to get around…it’s pretty funny to have my “doppelganger” (twin) around!  Poor Cooper must feel like he has double vision!

But it’s kinda’ cool that I can help my kid out in a way that no “normal” mom can! It has been a struggle for me to accept motherhood “this way”—it certainly is not the way I anticipated my life to be!  However, as Dieter F.  Uctdorf said, “Sometimes we mistake diamonds on our path for ordinary pebbles … (but the) heat & pressure that our trials bring us can make us strong like a diamond if we remain faithful to our Heavenly Father.”

I have definitely “stubbed my toe” on what seemed to initially be the “pebbles” on my path, & later on discovered out that they were “diamonds”.  Being a “different” kind of mom is one of those “diamonds.”  Sometimes, I need  a reminder that those are “diamonds” & not “pebbles”, but if I had not been put on this path, I may have remained focused on things that I thought made the “perfect” mom, & had forgotten other ways that mattered. But this large new path has allowed me to find even the smallest “diamonds” that I may have missed if I wasn’t rolling down my path!

Speaking of finding diamonds on your path in life, here is an Easter video that I absolutely love:

https://www.lds.org/media-library/video/2009-04-14-none-were-with-him?lang=eng

& check it out the video on www.mormon.org — There are even more videos to watch during the week leading up to Easter, as you focus on one of the eight principles on the website to learn how u too can find the diamonds on your path, and find His peace in your life.

I did it!

I am so proud of myself!   When I finished dinner, no one was home.  Mark was just dropping off one of our girls, so normally, I would just push chairs in at the table, so our dog, Cooper, doesn’t get on the table & eat the leftovers,  before Mark can put them away…&, at 1st, I did just that.’’But I felt compelled to try & put it away…& I did it!  I put the food in a container in the fridge, just like a housewife!  So excited!U know, only my right arm & head move…that’s it!  It is amazing what one can still do, w/such limited movement!

It’s been 13 years!

Our family has taken a lot of trips lately.  Trips wear me out, plus I have always been a “homebody”, so, I chose to stay home when they left this week…& I’m so glad I did!

Thursday (today) marks (no pun intended) 13 years since my stroke. This week has been my 1st anxiety -free, & stress-free “vacation” in 13 years!  Until this week, I did not think it was possible for someone like me to have a “vacation”. (After all, I never get a break from myself…but those who care for me get a break from me!)  In “honor” of being home “alone”, thought I’d share my responses to these 2 questions:

How might your life be different if…

you had not married Mark?

Stroke or no stroke, I’d think I’d be divorced, & I doubt I’d be a member of the church, since when my testimony faltered (after my stroke), it was his testimony that bouyed me up, & his words that challenged my negative thinking.  If I somehow stayed as a member of the church (like if I hadn’t had a stroke), I doubt I’d be very active in my church…& since my faith is such a HUGE part of who I am,  so I’d be a VERY different person!

your kids hadn’t been born?

Assuming I still had my stroke at 30 years old, if I had chosen to work 1st, I question if my kids would have been born!  In addition, since I studied childhood development in college, I knew how critical the 1st 5 years are, so –even if the doctors had allowed me to have kids, I doubt I would have!  As it was, they were young: 6, 4, & 2 years old…& that was really tough on me having a 2 year old!

However, not having my kids would have been a great loss!  Each child has brought a unique spirit into our home–one that is missing when they are gone now, so it’d be missing if they were not born.  All the kids bring laughter, love, & music into our lives, each in their own way.  In addition, Zach brings a calm feeling & is a peacemaker.  We also currently are immeasurably blessed through his service as a missionary!  Jessie brings an excitement in the air, a zest for life, & a sense of security.  Sophie is very service-oriented, forgiving, & has a good heart (I have always been able to count on her to help me).

13 Years is a long time for my family to take care of me, & each day, I am grateful for their love, support, & service.