News

June 18, 2004

Just when I thought there was a stop to progression, Jenny burst out of the gate today with a bunch of new movements. She feels better today for the first time in over a week, due to infections, and this most likely is a contributer to the improvements. Jenny was lifting legs, moving toes, holding her neck and moving it, and supporting her trunk. Jenny’s brother, Steve, had located a bed that has really improved what the therapists can do in therapy. Jenny also got out of the house again today and went to the community pool to see the kids swim. She seems to want to be more active and up in her chair. On occassion, Jenny has had long stretches of crying and extreme emotions (which is par for the course), but she has been in good spirits with family visiting this weekend. I think Jenny did a little showing off today with her visitors. In that case, I will have to rotate visitors in and out during therapy times.

June 16, 2003

It has been three months since Jenny’s stroke. I know Jenny feels impatient with the slow feel of progress, and I do as well. I have to keep telling myself that it has only been a relatively short amount of time even though it feels like ages. Jenny seems to be recovering from her recent illnesses and she is getting more strength back in her body. She received a new bed that is so much better than the the one she had previous. Asking her if she likes her new medical equiptment is like asking if she likes being poked in the eye with a sharp versus a dull needle. She does admit that it is tons more comfortable and her sleeping is more enjoyable.

June 13, 2004

Yet another mile stone has been met as Jenny attended her first day back at church. I did not realize how difficult it would be to get Jenny ready for church compared to any other day. First of all, there is this skirt and panty hose issue. I almost put a pair of Jessica’s tights on Jenny that were somehow placed in Jenny’s dresser by mistake. The real stockings did not seem much bigger, but I was aware of the “dance” and stretching that is involved with putting these things on. Despite my deficits, Jenny still looked beautiful by the time we were done. She and I only attended the first of the three hours of meetings. I knew it would be overwhelming to be back to a place she has found such support and strength by means of friends and gospel message. I appoligize to those who hoped to speak with her since we left early. Jenny was emotional the whole time and struggled to compose herself. I helped her take the sacrament, which is something she looked forward to doing despite having it brought to her in the hospital on occassion. She also loved to hear the choir, despite her tears and emotions. She looks forward to returning next week.

Jenny has demonstrated more movement in her body. I noticed that her toes were moving in a rythmic, fluid motion as if she was tapping to a beat. When asked to stop, she stopped, and would continue when asked to do so. Her right hand has also began to move all its fingers and bend at the wrist when Jenny is asked to move it. She has not been able to repeat these movements that all appeared last evening, but I assume it is normal to have the ability to come and go. I can get movement in her left hand too, with a new therapy that I invented called, “booger therapy”. It is simple and plays on Jenny’s dislike of other people’s snot. I simply hold her hand out and slowly move my nose close to her hand and she either bends the threatened finger out of the way or the whole hand. I guess this could be a reflexive movement, but at no time do I touch her fingers (even though I tease her that I will put her finger in my nose). She usually laughs and enjoys seeing movement as much as I do. Jenny also is able to make movements, upon request, better when she laughs. I’m not sure how that works, but I tell Jenny that she will take her first steps at a comedy club if this is the case.

June 12, 2004

Jenny has had a couple infections these past few days, but is still going strong. She sleeps at nights, but does not need naps during the day, which allows for more time to be up and moving her muscles. Jenny went grocery shopping with me, against her will, but she seemed to like it because when I asked why she was crying when I came home with the kids from another errand, Jenny stated she was sad because she wanted to go, and we did not ask. I guess she is getting used to the idea of going out into public. Jenny tells me her eyes having trouble focusing, so it keeps her from reading or watching movies. We got Jenny’s permanent wheel chair, which is so supportive, I went on a drive with her without needing somone to help support her head. Jenny also had a ceiling lift system put in to help with transfers from bed to chair. All Jessie and I know is that we can fly anywhere in the room, like Superman, without touching the ground. Maybe we will let Jenny try it since it is for her and all.

June 8, 2004

Most of what Jenny has been working on the last few days has been breathing around her trache opening that we plug for several hours at a time. It is more difficult than what it would be without a thrache since the tube is still blocking some of the air flow. Jenny is able to sit up in her chair longer and longer each day. She seems to be free of the severe pain and discomfort. All she has now is the constant moderate discomfort- which is still a huge improvement.

Sleep appears to be good as well. Our plan is to get Jenny out every other day for drives or trips to the park. She refuses to go to stores and the such still.

Jenny has been reluctant to watch videos/dvd’s, or even tv, since one little reference to hospitals or illness causes emotional distress. As it turns out, most of her favorite shows were hospital based (like ER). The recent illnesses of friends and family are also difficult for her. It just reminds her too much of her experience and she feels bad since she knows what suffering others are experiencing.

As for other improvements, Jenny is surprising herself. Therapists and ourselves always ask Jenny to do things she has not been able to do. Every now and then Jenny does something new and it can be seen in her eyes that she was unaware that she could do it. Then, she will pracise until she is sore.