News

Everyone has a “voice”

SONY DSC
OUR UKRANIAN VISITOR, DIMA, HAS STARTED 2 FIGURE OUT THAT I SPEAK ENGLISH AS WELL AS HE DOES (ONLY MY “ACCENT” IS SLURRING WORDS), & THAT I COMMUNICATE W/ACTIONS & THROUGH THE COMPUTER LIKE HIM, BUT I THINK YESTERDAY WAS A BIT OF A TURNING POINT: HE SAW MY HUMOR, SO HE LAUGHS AT WHAT I SAY MORE, IF IT WAS MEANT 2 BE FUNNY, & TODAY, HE LAUGHED AT THE FUNNY PICTURE ON MY SHIRT-WHICH I HAVE WORN B4!

PLUS, I WAS ABLE 2 SPEAK REALLY WELL YESTERDAY, & THE COMPUTER GUY WHO HELPS ME, UNDERSTOOD A LOT, WHICH SEEMED 2 OPEN HIS EYES. & I DON’T THINK HE’S SEEN ME WRITE B4, BUT HE PICKED UP THAT I WROTE WHAT I COULDN’T SAY, & I THINK HE WAS ABLE 2 SEE MORE HOW IT IS JUST AS DIFFICULT 4 ME 2 COMMUNICATE AS IT IS 4 HIM.

ALSO, I JUST RETURNED FROM A LYNN FAMILY REUNION IN DESTIN, FL. I WAS SO IMPRESSED BY HOW OUR VISITORS FROM THE UKRAINE WERE JUST TAKEN IN, & I REALIZED HOW FORTUNATE I AM!

Everyone has a “voice” even the non verbal because a personas true voice Isn’t in the things they say. Its in their actions, thoughts and feelings.
“People with Disabilities Rock” FB Page

WHILE THERE, I SAW A SHOW THAT POSED THIS QUESTION: “WOULD A GOD WHO LOVES U DO (SUCH & SUCH)?”

I GUESS I COULD ASK IF A GOD WHO LOVES ME WOULD LET ME HAVE A STROKE, & DENY ME MANY THINGS IN LIFE. I DON’T KNOW IF HE DID OR NOT: POSSIBLY HE DID, CUZ HE LOVED ME ENOUGH 2 LET ME SUFFER SO I COULD GROW…
(I CAN’T FIND IT, BUT I WANTED 2 INSERT A QUOTE ABOUT HOW GLAD WE ARE THAT GOD LOVED US ENOUGH TO NOT GIVE IN WHEN IT GOT HARD & CHRIST WAS PLEADING TO REMOVE THIS CUP, & LET CHRIST BE CRUCIFIED/SUFFER)

BUT WHETHER OR NOT HE DID, GOD MADE SURE 2 PLACE ME IN A LOVING FAMILY, & MARRY INTO A LOVING FAMILY. NOT A DAY WENT BY WHERE I WAS NOT IN WAS BY GOD’S LOVE 4 ME, EITHER THROUGH MY HUSBAND, MK, OR THROUGH AN EXTENDED FAMILY MEMBER. THE IMPORTANCE OF THIS IS HUGE. I NEVER REALIZED HOW HUGE, UNTIL RECENTLY. I WAS NOT LEFT ALONE, OR PUT IN A DIFFICULT SITUATION WHERE I COULDN’T FEEL GOD’S LOVE!

INTRODUCING…

4 SEVERAL DAYS NOW, I HAVE BEEN TRYING 2 WRITE A POST ABOUT THE NEW ADDITIONS TO OUR FAMILY 4 THE SUMMER (OVER THE WEEKEND, WE PICKED UP 2 KIDS FROM THE UKRAINE, DIMA & MAYA). BUT LIFE CHANGES DAILY, SO BY THE TIME I FINISH WRITING A POST, & HAVE THE OPPORTUNITY 2 POST IT, IT IS OUT OF DATE!

ANYWAY, ZACH, WHO USED TO BE SHORT, UNTIL HE HAD HIS RECENT GROWTH SPURT, IS A GIANT, & EVEN SOPH, WHO IS YOUNGER THAN 1 OF THEM, IS STILL BIGGER THAN BOTH OF THEM! DIMA & MAYA DON’T SPEAK ENGLISH–YET—BUT THEY ARE LEARNING! SAT. NIGHT, AS I WATCHED MY FAMILY ATTEMPT TO COMMUNICATE WITH THEM, I GOT A HUGE KICK OUT OF SEEING EVERY1 DEAL W/THE COMMUNICATION BARRIER THAT I DEAL WITH DAILY. BUT I BET THEY WILL PICK UP ENGLISH SUPER FAST, OUT OF NECESSITY, CUZ THAT’S LIKE ME NOT BEING ABLE 2 SIGN EVERY DAY (& I DO ONLY 1-2 “NO SIGNING DAYS” A WEEK)! BUT I’M GLAD DIMA & MAYA HAVE EACH OTHER–THAT COMMUNICATION BARRIER IS LONELY & TOUGH ALONE!

IT’S ALWAYS INTERESTING WHEN PEOPLE MEET ME, & SINCE THESE KIDS DON’T KNOW ME, & WE CAN’T FULLY EXPLAIN ME TO THEM, IT HAS TAKEN AWHILE 4 THEM 2 “GET” ME, BUT WE PLAYED A GAME LAST NIGHT THAT I THINK HELPED THEM TO UNDERSTAND ME BETTER, & I HAVE BEEN MAKING AN EFFORT 2 COMMUNICATE MORE WITH THEM—AFTERALL, THEY SPEAK 2 EVERY1 ELSE “MY WAY”—BY TYPING ON GOOGLE TRANSLATE ON THE IPAD), OR THEY PANTOMINE/SIGN.

AT THE AIRPORT, I WAS ALREADY USED 2 PEOPLE NOT BEING SURE HOW 2 REACT 2 ME, SO I WAS FINE W/MEETING THEM. BUT WHEN WE MET THEM, I GOT THIS OVERWHELMING FEELING THAT GOD PERSONALLY KNOWS THEM, & SENT THEM TO US. I HAVE NO IDEA WHY THEY WERE SENT TO US, & WHILE I HAVE ALWAYS BELIEVED THAT I WAS A CHILD OF GOD, IT WAS WONDERFUL TO KNOW THAT GOD KNEW THEM TOO, & CARED ABOUT WHAT HAPPENS 2 THEM, TOO!

When u taught teen girls @ church, how did u talk 2 them?

THERE WERE 4 WAYS:
1. MY IPAD HAS A PROGRAM CALLED “SPEAK IT,” & I HAD MY QUESTIONS PRE-PROGRAMED IN IT. WHEN I TAUGHT, I HAD SPEAKERS ON MY CHAIR, SO THEY COULD HEAR MY QUESTIONS. (https://itunes.apple.com/us/app/speak-it!-text-to-speech/id308629295?mt=8)
2. I ALSO HAD A VOLUNTEER, & DIFFERENT, TEENAGE GIRL EACH MONTH AS MY TRANSLATOR–SHE WOULD WRITE ON THE BOARD, PASS OUT PAPERS, REPEAT THINGS I HAD SAID ON THE IPAD, & TRANSLATED ANYTHING I SIGNED.
3. I ALSO HAD THE GIRLS PARTICIPATE A LOT: I USUALLY HAVE LOTS OF HANDOUTS & A POWER POINT TOO, SO I CAN HAVE VOLUNTEERS READ STORIES, QUOTES, ETC.
4. I WOULD SOMETIMES REALLY TALK–THINGS LIKE “1 MINUTE,” “THANK YOU,” ETC. 2 CALL ON VOLUNTEERS 2 READ 4 ME, I WOULD SIGN THE WORD “WHO” & AS I SIGN A LETTER OF THE ALPHABET, I’D TRY 2 SAY IT, & THE TRANSLATOR WOULD REPEAT IT, & THE PERSON HOLDING A HANDOUT WITH THAT LETTER WOULD READ THERE HANDOUT, OR HAVE DIRECTIONS 2 READ A SCRIPTURE OR THE POWERPOINT.

“PERSISTANCE RESULTS IN SUCCESS”

I WENT UPSTAIRS 2 GET LUNCH FRIDAY. ONLY MK WAS HOME, BUT IT APPEARED LIKE HE WAS RESTING, & I DIDN’T HAVE THE HEART 2 WAKE HIM UP, SO I OPTED 2 SEE IF I COULD GET MYSELF LUNCH…IT WASN’T TOO LOFTY OF A GOAL, BECUZ I HAD DONE THE STEPS B4:
1. A FEW WEEKS AGO, I HAD USED MY GRABBER, & GOTTEN A CUP OUT OF A CABINET, FILLED IT W/WATER, & PUT ON THE LID
2. SOPHIE HAS BEEN WORKING W/ME 2 GET A PAPER TOWEL BIB MYSELF, & I TRY 2 PUT THEM BACK ON ALL THE TIME, IF THEY FALL
3. I HAVE GONE IN OUR PANTRY, GOTTEN A GRANOLA BAR OUT, & OPENED IT UP
4. I HAVE GONE IN OUR BREAD DRAWER, TAKEN OUT MY FAVORITE WHEAT BREAD, UNTIED THE BAG, GOTTEN A PIECE OUT, & RE-TIED THE BAG

SO, I GOT MYSELF WATER, THEN A BIB, BREAD, & A BANANA (THEY WERE GETTING OLD, SO IT EASILY PULLED OFF, LEAVING AN OPENING AT THE TOP, SO I COULD PEEL THE BANANA. A STEP-STOOL BLOCKED OUR BASKET OF GRANOLA BARS, BUT I GOT SOME MORE BREAD INSTEAD! LOL WHAT AN AWESOME FEELING OF SUCCESS!

L8R, ON BYU’S SATELLITE RADIO STATION, THEY WERE DISCUSSING SOMETHING TOTALLY DIFFERENT (I THINK THE BOOK WAS CALLED, “WHY DOESN’T MY CHILD LLIKE SCHOOL?”), BUT THE THINGS THAT WERE BEING SAID TOTALLY APPLIED 2 MY SITUATION, CUZ THEY WERE DISCUSSING HOW IT IS NOT BAD 2 FAIL…U HAVE 2 TRY 2 FAIL, SO FAILLING IS NOT TRYING, & “PERSISTANCE RESULTS IN SUCCESS.”

COURSE, THE SUCCESS DOESN’T MEAN I’M FEEDING MYSELF NOW, UNLESS I WANT THE SAME FOOD FOR EVERY MEAL, & I WANT 2 SPEND 40 MIN. DOING IT EACH TIME, BUTIT’S NICE KNOWING THAT I CAN DO THAT MUCH INDEPENDENTLY!

IT’S MY STROKE-AVERSARY ON SATURDAY!

PHOTO BY AIMAGE, INC: LISA SHEPARD

PHOTO BY AIMAGE, INC: LISA SHEPARD

9 YEARS AGO (ON THE 16TH), I HAD A MASSIVE BRAINSTEM STROKE – BIGGER THAN MY DOCTOR HAD EVER SEEN! A FELLOW STROKE SURVIVOR DESCRIBED A STROKE SO WELL W/THIS ANALOGY:
“… my world was 1 of those snow globes you get the airport and you shake it all up and the pieces go flying all around and eventually fall back into place they’re just not in the places they were before. “

I AM NOW 39 YRS. OLD, CONFINED 2 A W/C, BARELY MOVE, AM FINALLY LEARNING 2 SPEAK, MY LEFT SIDE IS PARALYZED, I HAVE DOUBLE VISION…NEED I GO ON? I NEVER DID DRUGS, SMOKED, DRANK ALCOHOL, ETC., & I EXERCISED: AEROBICS, BALLET & OTHER FORMS OF DANCE. BUT I NEVER FOUND OUT WHY I HAD A STROKE. THE BEST GUESSES ARE CUZ THE DOCTORS COULD TELL FROM BRAIN SCANS THAT THE ARTERIES IN MY BRAIN ARE SOMEWHAT SMALLER THAN AVERAGE (WHICH MAKES THE POSSIBILITY OF A STROKE MORE LIKELY), OR CUZ I HAD TRIED A NEW BIRTH CONTROL WEEKS EARLIER, OR CUZ I HIT MY HEAD A FEW DAYS EARLIER.

LIKE I SAID, I HAVE A VERY THIN ARTERY THAT MAY HAVE GOTTTEN BLOCKED, AND IF I’D EATEN MORE GREENS (I WASN’T A TERRIBLE EATER BEFORE MY STROKE, BUT I HAD MY FAIR SHARE OF EMPTY CALORIE FOODS, CANDY, & SODA, & REFUSED ANY BEANS & ALL FISH– IN FACT, ANYTHING GREEN & HEALTHY WAS NASTY! ), IT MAY HAVE HELPED THIN MY BLOOD. BUT I BELIEVE THAT BECUZ I EXERCISED & TOOK CARE OF MYSELF, IT MAY HAVE MADE THE STROKE OCCUR LATER IN MY LIFE (CHILDREN AS YOUNG AS 6 YEARS OLD HAVE BEEN KNOWN TO SUFFER A STROKE)! THE DOCTORS THOUGHT I WOULD ONLY BLINK THE REST OF MY LIFE, BUT I BELIEVE I’VE RECOVERED SO MUCH, CUZ I WAS HEALTHY!

BUT I COULD NO LONGER RAISE MY 3 KIDS, BE A PARENT GROUP COORDINATOR, BE A ROOM MOM OR TEAM MOM, OR TEACH MY 2ND GRADE CLASS, OR TEACH MY SCRAPBOOK CLASSES, OR TEACH THE CHURCH PRIMARY MUSIC TO THE KIDS THAT WERE 18 MONTHS-12 YEARS OLD. I HAD EVERY RIGHT 2 FEEL LIKE MY YOUTH & DREAMS WERE STOLEN FROM ME! BUT INSTEAD, I FEEL LIKE I WAS ABLE TO LIVE A VERY FULL LIFE AND HAVE THE ABILITY TO GIVE BIRTH TO 3 BEAUTIFUL CHILDREN BEFORE I COULD NO LONGER HAVE THAT CONTINUED BLESSING BECAUSE OF MY HEALTH. THIS MAY NOT HAVE HAPPENED IF I HAD TRIGGERED A STROKE AT A YOUNG AGE, OR HAD BEEN A SMOKER. MY COLLEGE DEGREE, WHICH I MAY NOT HAVE RECEIVED IF I HAD HAD MY STROKE WHEN I WAS YOUNGER, HAS ALSO ASSISTED ME IN WAYS I DIDN’T ANTICIPATE, EVEN NOW!

A CONVERSATION FROM THE MOVIE, THE GOODBYE GIRL GOES AS FOLLOWS:
Paula McFadden asks,” What is that slop you are putting into my dishes?”
Elliot Garfield answers “Granola, wheat germ, soya, lecithin, natural honey. My body is a temple, Miss McFadden, and I am worshiping it. It’s what gives me my energy, my vitality and my natural disposition.…May I fix you a bowl? “

IF YOU CHOOSE THE PROPER FOODS, I BELIEVE YOU WILL HAVE BETTER HEALTH THAN YOU WOULD IF YOU ATE FOODS THAT ARE NOT NUTRITIOUS. I NOW LOVE MY VEGETABLES & SOME FISH & ENJOY SOME BEANS! I AM NOW ON A BIG HEALTH KICK, & IF I DO EVER WALK, I THINK IT WILL BE CUZ OF MY HEALTHY LIFESTYLE NOW, & CUZ OF MY LOW WEIGHT.

YOUR LIFE IS DEFINATELY SHAKEN UP DIFFERENTLY WITH A STROKE & IS NOT HOW U SAW IT, BUT LIKE THE SNOWGLOBE, THINGS FALL BACK IN PLACE, & CAN STILL BE BEAUTIFUL! I SHARED MY NEW FAVORITE SONG, WHERE IT SHARES HOW OUR “TRIALS OF THIS LIFE, THE RAINS, THE STORM’S OF THIS LIFE,ARE YOUR (GOD’S) MERCIES IN DISGUISE.” I CAN SEE HOW THAT IS TRUE FOR ME, & IF I COULD GO BACK IN TIME, I WOULDN’T STOP MY STROKE FROM HAPPENING! I AM GRATEFUL 2 GOD 4 SEEING THE BIGGER PICTURE, & ALLOWING ME 2 SUFFER, SO I COULD GROW FROM THIS EXPIERIENCE! AS A PARENT, I KNOW IT’S NOT EASY 2 LET A CHILD SUFFER, EVEN IF WE KNOW THE GOOD THAT WILL COME FROM THAT SUFFERING!