Family

EVEN FORIEGNERS UNDERSTAND ME!

PICTURE THIS:

ME (SOMEONE WHO CAN’T SPEAK, BUT HEARS & UNDERSTANDS ENGLISH) SITTING IN MY W/C SIDEWAYS (SO I CAN USE MY HAND) AT A KITCHEN TABLE PLAYING THE CARD GAME “SKIP-BO” WITH 2 KIDS FROM THE UKRAINE WHO DON’T SPEAK ENGLISH, LAUGHING, JOKING, & HAVING A GREAT TIME!

THIS ACTUALLY OCCURRED ON SATURDAY! IT IS AMAZING HOW WELL WE CAN COMMUNICATE…IT IS MOSTLY THROUGH OUR ACTIONS, THOUGH I SPEAK ENGLISH ABOUT AS WELL AS THEY DO, & DIMA IS LEARNING MY “ACCENT,”& ACTUALLY HAS UNDERSTOOD A FEW WORDS (SO EXCITING)! FIGUES IT IS TIME FOR THEM 2 LEAVE THIS WEEK.

Everyone has a “voice”

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OUR UKRANIAN VISITOR, DIMA, HAS STARTED 2 FIGURE OUT THAT I SPEAK ENGLISH AS WELL AS HE DOES (ONLY MY “ACCENT” IS SLURRING WORDS), & THAT I COMMUNICATE W/ACTIONS & THROUGH THE COMPUTER LIKE HIM, BUT I THINK YESTERDAY WAS A BIT OF A TURNING POINT: HE SAW MY HUMOR, SO HE LAUGHS AT WHAT I SAY MORE, IF IT WAS MEANT 2 BE FUNNY, & TODAY, HE LAUGHED AT THE FUNNY PICTURE ON MY SHIRT-WHICH I HAVE WORN B4!

PLUS, I WAS ABLE 2 SPEAK REALLY WELL YESTERDAY, & THE COMPUTER GUY WHO HELPS ME, UNDERSTOOD A LOT, WHICH SEEMED 2 OPEN HIS EYES. & I DON’T THINK HE’S SEEN ME WRITE B4, BUT HE PICKED UP THAT I WROTE WHAT I COULDN’T SAY, & I THINK HE WAS ABLE 2 SEE MORE HOW IT IS JUST AS DIFFICULT 4 ME 2 COMMUNICATE AS IT IS 4 HIM.

ALSO, I JUST RETURNED FROM A LYNN FAMILY REUNION IN DESTIN, FL. I WAS SO IMPRESSED BY HOW OUR VISITORS FROM THE UKRAINE WERE JUST TAKEN IN, & I REALIZED HOW FORTUNATE I AM!

Everyone has a “voice” even the non verbal because a personas true voice Isn’t in the things they say. Its in their actions, thoughts and feelings.
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WHILE THERE, I SAW A SHOW THAT POSED THIS QUESTION: “WOULD A GOD WHO LOVES U DO (SUCH & SUCH)?”

I GUESS I COULD ASK IF A GOD WHO LOVES ME WOULD LET ME HAVE A STROKE, & DENY ME MANY THINGS IN LIFE. I DON’T KNOW IF HE DID OR NOT: POSSIBLY HE DID, CUZ HE LOVED ME ENOUGH 2 LET ME SUFFER SO I COULD GROW…
(I CAN’T FIND IT, BUT I WANTED 2 INSERT A QUOTE ABOUT HOW GLAD WE ARE THAT GOD LOVED US ENOUGH TO NOT GIVE IN WHEN IT GOT HARD & CHRIST WAS PLEADING TO REMOVE THIS CUP, & LET CHRIST BE CRUCIFIED/SUFFER)

BUT WHETHER OR NOT HE DID, GOD MADE SURE 2 PLACE ME IN A LOVING FAMILY, & MARRY INTO A LOVING FAMILY. NOT A DAY WENT BY WHERE I WAS NOT IN WAS BY GOD’S LOVE 4 ME, EITHER THROUGH MY HUSBAND, MK, OR THROUGH AN EXTENDED FAMILY MEMBER. THE IMPORTANCE OF THIS IS HUGE. I NEVER REALIZED HOW HUGE, UNTIL RECENTLY. I WAS NOT LEFT ALONE, OR PUT IN A DIFFICULT SITUATION WHERE I COULDN’T FEEL GOD’S LOVE!

INTRODUCING…

4 SEVERAL DAYS NOW, I HAVE BEEN TRYING 2 WRITE A POST ABOUT THE NEW ADDITIONS TO OUR FAMILY 4 THE SUMMER (OVER THE WEEKEND, WE PICKED UP 2 KIDS FROM THE UKRAINE, DIMA & MAYA). BUT LIFE CHANGES DAILY, SO BY THE TIME I FINISH WRITING A POST, & HAVE THE OPPORTUNITY 2 POST IT, IT IS OUT OF DATE!

ANYWAY, ZACH, WHO USED TO BE SHORT, UNTIL HE HAD HIS RECENT GROWTH SPURT, IS A GIANT, & EVEN SOPH, WHO IS YOUNGER THAN 1 OF THEM, IS STILL BIGGER THAN BOTH OF THEM! DIMA & MAYA DON’T SPEAK ENGLISH–YET—BUT THEY ARE LEARNING! SAT. NIGHT, AS I WATCHED MY FAMILY ATTEMPT TO COMMUNICATE WITH THEM, I GOT A HUGE KICK OUT OF SEEING EVERY1 DEAL W/THE COMMUNICATION BARRIER THAT I DEAL WITH DAILY. BUT I BET THEY WILL PICK UP ENGLISH SUPER FAST, OUT OF NECESSITY, CUZ THAT’S LIKE ME NOT BEING ABLE 2 SIGN EVERY DAY (& I DO ONLY 1-2 “NO SIGNING DAYS” A WEEK)! BUT I’M GLAD DIMA & MAYA HAVE EACH OTHER–THAT COMMUNICATION BARRIER IS LONELY & TOUGH ALONE!

IT’S ALWAYS INTERESTING WHEN PEOPLE MEET ME, & SINCE THESE KIDS DON’T KNOW ME, & WE CAN’T FULLY EXPLAIN ME TO THEM, IT HAS TAKEN AWHILE 4 THEM 2 “GET” ME, BUT WE PLAYED A GAME LAST NIGHT THAT I THINK HELPED THEM TO UNDERSTAND ME BETTER, & I HAVE BEEN MAKING AN EFFORT 2 COMMUNICATE MORE WITH THEM—AFTERALL, THEY SPEAK 2 EVERY1 ELSE “MY WAY”—BY TYPING ON GOOGLE TRANSLATE ON THE IPAD), OR THEY PANTOMINE/SIGN.

AT THE AIRPORT, I WAS ALREADY USED 2 PEOPLE NOT BEING SURE HOW 2 REACT 2 ME, SO I WAS FINE W/MEETING THEM. BUT WHEN WE MET THEM, I GOT THIS OVERWHELMING FEELING THAT GOD PERSONALLY KNOWS THEM, & SENT THEM TO US. I HAVE NO IDEA WHY THEY WERE SENT TO US, & WHILE I HAVE ALWAYS BELIEVED THAT I WAS A CHILD OF GOD, IT WAS WONDERFUL TO KNOW THAT GOD KNEW THEM TOO, & CARED ABOUT WHAT HAPPENS 2 THEM, TOO!

IT’S MY STROKE-AVERSARY ON SATURDAY!

PHOTO BY AIMAGE, INC: LISA SHEPARD

PHOTO BY AIMAGE, INC: LISA SHEPARD

9 YEARS AGO (ON THE 16TH), I HAD A MASSIVE BRAINSTEM STROKE – BIGGER THAN MY DOCTOR HAD EVER SEEN! A FELLOW STROKE SURVIVOR DESCRIBED A STROKE SO WELL W/THIS ANALOGY:
“… my world was 1 of those snow globes you get the airport and you shake it all up and the pieces go flying all around and eventually fall back into place they’re just not in the places they were before. “

I AM NOW 39 YRS. OLD, CONFINED 2 A W/C, BARELY MOVE, AM FINALLY LEARNING 2 SPEAK, MY LEFT SIDE IS PARALYZED, I HAVE DOUBLE VISION…NEED I GO ON? I NEVER DID DRUGS, SMOKED, DRANK ALCOHOL, ETC., & I EXERCISED: AEROBICS, BALLET & OTHER FORMS OF DANCE. BUT I NEVER FOUND OUT WHY I HAD A STROKE. THE BEST GUESSES ARE CUZ THE DOCTORS COULD TELL FROM BRAIN SCANS THAT THE ARTERIES IN MY BRAIN ARE SOMEWHAT SMALLER THAN AVERAGE (WHICH MAKES THE POSSIBILITY OF A STROKE MORE LIKELY), OR CUZ I HAD TRIED A NEW BIRTH CONTROL WEEKS EARLIER, OR CUZ I HIT MY HEAD A FEW DAYS EARLIER.

LIKE I SAID, I HAVE A VERY THIN ARTERY THAT MAY HAVE GOTTTEN BLOCKED, AND IF I’D EATEN MORE GREENS (I WASN’T A TERRIBLE EATER BEFORE MY STROKE, BUT I HAD MY FAIR SHARE OF EMPTY CALORIE FOODS, CANDY, & SODA, & REFUSED ANY BEANS & ALL FISH– IN FACT, ANYTHING GREEN & HEALTHY WAS NASTY! ), IT MAY HAVE HELPED THIN MY BLOOD. BUT I BELIEVE THAT BECUZ I EXERCISED & TOOK CARE OF MYSELF, IT MAY HAVE MADE THE STROKE OCCUR LATER IN MY LIFE (CHILDREN AS YOUNG AS 6 YEARS OLD HAVE BEEN KNOWN TO SUFFER A STROKE)! THE DOCTORS THOUGHT I WOULD ONLY BLINK THE REST OF MY LIFE, BUT I BELIEVE I’VE RECOVERED SO MUCH, CUZ I WAS HEALTHY!

BUT I COULD NO LONGER RAISE MY 3 KIDS, BE A PARENT GROUP COORDINATOR, BE A ROOM MOM OR TEAM MOM, OR TEACH MY 2ND GRADE CLASS, OR TEACH MY SCRAPBOOK CLASSES, OR TEACH THE CHURCH PRIMARY MUSIC TO THE KIDS THAT WERE 18 MONTHS-12 YEARS OLD. I HAD EVERY RIGHT 2 FEEL LIKE MY YOUTH & DREAMS WERE STOLEN FROM ME! BUT INSTEAD, I FEEL LIKE I WAS ABLE TO LIVE A VERY FULL LIFE AND HAVE THE ABILITY TO GIVE BIRTH TO 3 BEAUTIFUL CHILDREN BEFORE I COULD NO LONGER HAVE THAT CONTINUED BLESSING BECAUSE OF MY HEALTH. THIS MAY NOT HAVE HAPPENED IF I HAD TRIGGERED A STROKE AT A YOUNG AGE, OR HAD BEEN A SMOKER. MY COLLEGE DEGREE, WHICH I MAY NOT HAVE RECEIVED IF I HAD HAD MY STROKE WHEN I WAS YOUNGER, HAS ALSO ASSISTED ME IN WAYS I DIDN’T ANTICIPATE, EVEN NOW!

A CONVERSATION FROM THE MOVIE, THE GOODBYE GIRL GOES AS FOLLOWS:
Paula McFadden asks,” What is that slop you are putting into my dishes?”
Elliot Garfield answers “Granola, wheat germ, soya, lecithin, natural honey. My body is a temple, Miss McFadden, and I am worshiping it. It’s what gives me my energy, my vitality and my natural disposition.…May I fix you a bowl? “

IF YOU CHOOSE THE PROPER FOODS, I BELIEVE YOU WILL HAVE BETTER HEALTH THAN YOU WOULD IF YOU ATE FOODS THAT ARE NOT NUTRITIOUS. I NOW LOVE MY VEGETABLES & SOME FISH & ENJOY SOME BEANS! I AM NOW ON A BIG HEALTH KICK, & IF I DO EVER WALK, I THINK IT WILL BE CUZ OF MY HEALTHY LIFESTYLE NOW, & CUZ OF MY LOW WEIGHT.

YOUR LIFE IS DEFINATELY SHAKEN UP DIFFERENTLY WITH A STROKE & IS NOT HOW U SAW IT, BUT LIKE THE SNOWGLOBE, THINGS FALL BACK IN PLACE, & CAN STILL BE BEAUTIFUL! I SHARED MY NEW FAVORITE SONG, WHERE IT SHARES HOW OUR “TRIALS OF THIS LIFE, THE RAINS, THE STORM’S OF THIS LIFE,ARE YOUR (GOD’S) MERCIES IN DISGUISE.” I CAN SEE HOW THAT IS TRUE FOR ME, & IF I COULD GO BACK IN TIME, I WOULDN’T STOP MY STROKE FROM HAPPENING! I AM GRATEFUL 2 GOD 4 SEEING THE BIGGER PICTURE, & ALLOWING ME 2 SUFFER, SO I COULD GROW FROM THIS EXPIERIENCE! AS A PARENT, I KNOW IT’S NOT EASY 2 LET A CHILD SUFFER, EVEN IF WE KNOW THE GOOD THAT WILL COME FROM THAT SUFFERING!

THE TEEN YEARS ARE HERE!

AN UPDATE: ZACH IS NOW A SOPHOMORE, LEARNING THE PROPER WAY 2 SIGN (NOT “JENNY-ESE”), & DRIVING. JESS IS IN 7TH GRADE, & SOPH IS IN 5TH GRADE. NEXT YEAR, I’LL HAVE NO BABIES IN ELEMENTARY SCHOOL! IT IS KILLING ME THAT I NO LONGER HAVE MY BABIES, WHO RESPECT ME, JUST BECUZ MY NAME IS “MOM.”

I LOVE ELEMENTARY SCHOOL–HECK, I TAUGHT ELEMENTARY SCHOOL! MY BABIES NEED 2 STOP GROWING! I’M NOT GOOD AT THIS TEENAGE THING, & IT’S REQUIRING ME 2 FIGURE OUT WHERE I STAND (AS A MOM) ALL OVER AGAIN…WHEN THEY WERE YOUNG, IT WAS HARD THEN, TOO, BUT I FOUND OUT THAT THEY JUST LIKED ME THERE, & LOVED ME REGARDLESS OF WHAT I WAS CAPABLE OF… LUCKILY, SOPH IS STILL YOUNG ENOUGH…SHE WAVERS, & HAS HER PRE-TEEN MOMENTS, BUT SHE USUALLY IS STILL HER MOM’S ADVOCATE!

BUT NOW IT’S A NEW BOAT. THE KIDS ARE GETTING OLDER, WHICH MEANS THEY NOT ONLY NOTICE MY WEAKNESSES, & ALTHOUGH I AM NOT A GREAT “TEEN PARENT,” I THINK I AM A DECENT PARENT (LUCKILY MY HUSBAND CAN HELP ME DO BETTER—A HUGE BLESSING 4 ME). YET I KNOW THE KIDS TAKE ADVANTAGE OF MY SITUATION—IT IS ONLY NATURAL! BUT IT DOESN’T HELP THE FACT THAT I CAN’T MAKE THEM DO ANYTHING, & CAN’T GIVE ANY SORT OF PHYSICAL PUNISHMENT (I’M JUST WORDS…& I CAN’T EVEN SCREAM, TO SHOW HOW MAD I FEEL–I CAN ONLY CRY, & THEY DON’T CARE IF I CRY!).

NOT THAT MY KIDS ARE BAD! I ACTUALLY AM SUPER BLESSED W/GREAT KIDS, SO WHEN THEY ACT UP, A LITTLE THING LOOKS BIG! BUT THEY ARE JUST EXPLORING THEIR INDEPENDENCE, & I KNOW THAT! THAT IS NOTHING DIFFERENT FROM OTHER TEENS, BUT MY KIDS HAVE AN ADDITIONAL, UNIQUE, ASPECT—A DIS-ABLED, HELPLESS PARENT! (IT IS VERY AWKWARD 2 DISCIPLINE, & THEN ASK 4 HELP!) LOL

SOMETIMES, TOO, I AM GLAD I HAVE A VOICE, SO I CAN FORCE THEM TO ACKNOWLEDGE, INSTEAD OF IGNORE, ME (“HI!,” “BYE!,” “GOODMORNING!,” “HOW ARE U?,” “HOW WAS YOUR DAY?,” “HAVE A GOOD DAY!”) BUT IT IS ALSO GOOD THAT ONLY THEY UNDERSTAND ME, WHEN I SAY THINGS LIKE “I LOVE U!” (YEARS AGO, I TAUGHT THEM A “LOVE SQUEEZE,” HOPING THAT WHEN THEY WERE TEENS, I COULD SQUEEZE THEIR HAND, & W/O SAYING A WORD, THEY’D KNOW I LOVED THEM…BUT, THAT BACKFIRED…I CAN’T GRAB THEIR HANDS UNLESS THEY ARE RIGHT NEXT 2 ME…& IT JUST ISN’T COOL BEING BY YOUR MOM, & EVEN MORESO BY YOUR DIS-ABLED MOM!, HOLDING HER HAND!)

ANYWAY, THE PBA MEDS CAME AT SUCH A GREAT TIME! THEY HELP SO MUCH W/EMOTIONAL THINGS, LIKE PARENTING! (WHAT TEEN WANTS A BAWLING/CRAZY MOM?) & WHEN ONE OF THE TEENS AT CHURCH INTERVIEWED ME FOR THEIR SPEECH CLASS, I DIDN’T BAWL, OR EVEN FLINCH, WHEN SHE ASKED ME SENSATIVE QQUESTIONS ABOUT THE DAY OF MY STROKE (I HAVE ALWAYS BAWLED B4, BUT I COULD EVEN JOKE ABOUT IT!)

& LAST WEEK, I WENT W/MK 2 HIS THERAPY/WORK CONFERENCE 4 LDS (LATTER-DAY SAINT/ “MORMON”) THERAPISTS IN UTAH. HOW AWESOME 2 NOT WORRY ABOUT MY PBA! I COULD TALK ABOUT EMOTIONAL STUFF I LEARNED, & I DIDN’T “IMPLODE” WHEN WE GOT 2 THE HOTEL ROOM, FROM HOLDING IN ALL MY PBA!

LAST YEAR THE WORK CONFERENCEFOCUSED ON PORN, BUT I STILL LEARNED STUFF, & WAS MENTALLY STIMULATED–& I NEVER AM MENTALLY STIMULATED! PLUS, THE FOOD WAS AWESOME, SO I AGREED 2 GO. TURNED OUT THE TOPIC WAS “FORGIVENESS.” AWESOME! (I EVEN TOOK HAND-WRITTEN NOTES!) ANYWAY, I HAVE A LIST OF 151 REASONS WHY I LOVE MK, & I REALIZED THAT THE LIST OF WHY I LOVE MK, HELPS ME BE MORE 4GIVING (THEY COMPARED 4GIVENESS 2 A BOAT W/HOLES, & INSTEAD OF SEEING HIS 1 BIG HOLE, OR THE MANY HOLES IN HIS BOAT, I SEE MY HOLES TOO)

I HAVE NOTICED, THOUGH, THAT I CRY MORE NOW…& IN UTAH, I HAD A LAUGHING EPISODE. I HAVE WONDERED IF I’M “GETTING USED TO THE PBA MEDS,” OR JUST IF WE HAVE STARTED 2 FORGET HOW HORRIBLE THOSE PBA EPISODES WERE. I DON’T THINK WE HAVE 4GOTTEN HOW IT AFFECTED OUR LIVES, JUST HOW SEVERELY IT AFFECTED US.

I ALSO THINK PART IS THAT I LET MY GUARD DOWN:
1. IN THE BEGINNING, I EMPLOYED MORE OF THE TRICKS I HAVE LEARNED 2 PREVENT CRYING, SIMPLY BECUZ THE MEDS MADE IT SO MUCH EASIER TO CONCENTRATE ON THOSE TRICKS…
2. IN THE BEGINNING, I HAD A MENTALITY, I THINK, WHERE I RESISTED PBA MMORE, SIMPLY W/WILL POWER, BELIEVING THAT I COULDN’T CRY, BECUZ THAT WAS WHAT THE MEDS WERE FOR! BUT EVEN THEN, I STATED THAT I STILL COULD HAVE PBA EPISODES, THEY WERE JUST SHORTER! (& IF I CRY/LAUGH, IT STILL IS MUCH SHORTER)
3. I LET MK & I TALK ABOUT THINGS THAT WERE TOO EMOTIONAL B4, SO THEY WERE EITHER NOT DISCUSSED, OR I EMAILED ABOUT THEM.