Family

20 Years Ago Today

In the summer of 2004, Mk tried sitting me on the mat (for the 1st time since my stroke) to balance (u can see it on youtube, in “Jenny’s Story”).  When I was sitting on the mat, they gingerly let go of me, not sure if I could balance.  These days, when I’m put on the mat, I have Angie’s son, who will  push me,  crawl all over me, & try everything to knock me over, but I’ve built up my core muscles so much in horse therapy, that I remain firm!  It’s amazing!

 

On Dec. 29th,  20 years ago today I married a wonderful man, who had built a firm testimony in Christ, & was able to stay firm through so much-it’s amazing he is still by my side!  I would not be where I am today w/o his constant love & support!

utah

Friday, I experienced some very mixed feelings that came from being a stroke survivor, mother, & wife, & I never thought I’d have 2 decide between them:
1. as a stroke survivor, I was proud of myself & cheering at my accomplishment.
2. as a parent, I was upset & slightly disappointed, because my accomplishment came from cleaning up after a disobedient child who left a mess, after several requests to clean (so i did it).
3. as a wife, i couldn’t be upset, but instead embarrassed that i didn’t follow through on my earlier request to make sure it was done, so i felt partially responsible (hence, why i attempted to clean).

In other news, my family recently went on a trip to Utah. My dad was receiving an award at his old college, so we went with a bunch of family & made a ski trip out of it.

Due to poor blood circulation (from my lack of movt.), I am always cold! (Seriously, I freeze at 70 degrees, & I’ve just become accustom to having a cold left hand!). So, I have always vetoed trips where it is cold (the entire family has asked b4 to go skiing). But i figured that my family is always making sacrifices for me, so it was my turn to make a sacrifice for them, & they’ve begged to be in snow. (Poor Soph was only 2 1/2 years old when she had her last winter w/a lot of snow, since I had my stroke & we moved to a warm climate…& while it has snowed here, it is more like a dusting, & Soph has been longing to build a snowman, & make snow angels!)

While we were gone, I didn’t do a very good job practicing my therapy! Sure, it’s vacation, but even on vacation u exercise, etc., & therapy is my exercise! But what I did a lot was talk. My therapist has said the best therapy practice I can do is talk/have conversations & luckily, that week was when I usually have my best speaking week of the month, so I enjoyed talking to my sister-in-law, her friend & friend’s daughter, who were there tending my baby neice & nephews as my family & extended family skied. We just talked a whole lot, & it was cool, cuz they got so good at understanding me, which just seemed to encourage me to talk! I actually looked forward to it (I don’t recall the last time I looked forward 2 something that way), &I felt relaxed, comfortable, & confident in my speaking skills. by not feeling pressured, I didn’t face the problems I get by “thinking or trying too hard!”

Also, I can’t explain it, but the new torso strength I already have built up (thxs 2 horse therapy) helped so much in so many ways on our trip–it was exciting! not only did it physically help, but it also eased my anxiety about my limitations!

Overall, even though I never felt “warm” (unless I sweat from the insane bedshets!), I enjoyed the trip. I rarely get to see the benefits of sacrifice, & while I know sacrifice increases your love for another person, seeing how happy every1 was, made a trip in the cold worth it.

EVEN FORIEGNERS UNDERSTAND ME!

PICTURE THIS:

ME (SOMEONE WHO CAN’T SPEAK, BUT HEARS & UNDERSTANDS ENGLISH) SITTING IN MY W/C SIDEWAYS (SO I CAN USE MY HAND) AT A KITCHEN TABLE PLAYING THE CARD GAME “SKIP-BO” WITH 2 KIDS FROM THE UKRAINE WHO DON’T SPEAK ENGLISH, LAUGHING, JOKING, & HAVING A GREAT TIME!

THIS ACTUALLY OCCURRED ON SATURDAY! IT IS AMAZING HOW WELL WE CAN COMMUNICATE…IT IS MOSTLY THROUGH OUR ACTIONS, THOUGH I SPEAK ENGLISH ABOUT AS WELL AS THEY DO, & DIMA IS LEARNING MY “ACCENT,”& ACTUALLY HAS UNDERSTOOD A FEW WORDS (SO EXCITING)! FIGUES IT IS TIME FOR THEM 2 LEAVE THIS WEEK.

Everyone has a “voice”

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OUR UKRANIAN VISITOR, DIMA, HAS STARTED 2 FIGURE OUT THAT I SPEAK ENGLISH AS WELL AS HE DOES (ONLY MY “ACCENT” IS SLURRING WORDS), & THAT I COMMUNICATE W/ACTIONS & THROUGH THE COMPUTER LIKE HIM, BUT I THINK YESTERDAY WAS A BIT OF A TURNING POINT: HE SAW MY HUMOR, SO HE LAUGHS AT WHAT I SAY MORE, IF IT WAS MEANT 2 BE FUNNY, & TODAY, HE LAUGHED AT THE FUNNY PICTURE ON MY SHIRT-WHICH I HAVE WORN B4!

PLUS, I WAS ABLE 2 SPEAK REALLY WELL YESTERDAY, & THE COMPUTER GUY WHO HELPS ME, UNDERSTOOD A LOT, WHICH SEEMED 2 OPEN HIS EYES. & I DON’T THINK HE’S SEEN ME WRITE B4, BUT HE PICKED UP THAT I WROTE WHAT I COULDN’T SAY, & I THINK HE WAS ABLE 2 SEE MORE HOW IT IS JUST AS DIFFICULT 4 ME 2 COMMUNICATE AS IT IS 4 HIM.

ALSO, I JUST RETURNED FROM A LYNN FAMILY REUNION IN DESTIN, FL. I WAS SO IMPRESSED BY HOW OUR VISITORS FROM THE UKRAINE WERE JUST TAKEN IN, & I REALIZED HOW FORTUNATE I AM!

Everyone has a “voice” even the non verbal because a personas true voice Isn’t in the things they say. Its in their actions, thoughts and feelings.
“People with Disabilities Rock” FB Page

WHILE THERE, I SAW A SHOW THAT POSED THIS QUESTION: “WOULD A GOD WHO LOVES U DO (SUCH & SUCH)?”

I GUESS I COULD ASK IF A GOD WHO LOVES ME WOULD LET ME HAVE A STROKE, & DENY ME MANY THINGS IN LIFE. I DON’T KNOW IF HE DID OR NOT: POSSIBLY HE DID, CUZ HE LOVED ME ENOUGH 2 LET ME SUFFER SO I COULD GROW…
(I CAN’T FIND IT, BUT I WANTED 2 INSERT A QUOTE ABOUT HOW GLAD WE ARE THAT GOD LOVED US ENOUGH TO NOT GIVE IN WHEN IT GOT HARD & CHRIST WAS PLEADING TO REMOVE THIS CUP, & LET CHRIST BE CRUCIFIED/SUFFER)

BUT WHETHER OR NOT HE DID, GOD MADE SURE 2 PLACE ME IN A LOVING FAMILY, & MARRY INTO A LOVING FAMILY. NOT A DAY WENT BY WHERE I WAS NOT IN WAS BY GOD’S LOVE 4 ME, EITHER THROUGH MY HUSBAND, MK, OR THROUGH AN EXTENDED FAMILY MEMBER. THE IMPORTANCE OF THIS IS HUGE. I NEVER REALIZED HOW HUGE, UNTIL RECENTLY. I WAS NOT LEFT ALONE, OR PUT IN A DIFFICULT SITUATION WHERE I COULDN’T FEEL GOD’S LOVE!

INTRODUCING…

4 SEVERAL DAYS NOW, I HAVE BEEN TRYING 2 WRITE A POST ABOUT THE NEW ADDITIONS TO OUR FAMILY 4 THE SUMMER (OVER THE WEEKEND, WE PICKED UP 2 KIDS FROM THE UKRAINE, DIMA & MAYA). BUT LIFE CHANGES DAILY, SO BY THE TIME I FINISH WRITING A POST, & HAVE THE OPPORTUNITY 2 POST IT, IT IS OUT OF DATE!

ANYWAY, ZACH, WHO USED TO BE SHORT, UNTIL HE HAD HIS RECENT GROWTH SPURT, IS A GIANT, & EVEN SOPH, WHO IS YOUNGER THAN 1 OF THEM, IS STILL BIGGER THAN BOTH OF THEM! DIMA & MAYA DON’T SPEAK ENGLISH–YET—BUT THEY ARE LEARNING! SAT. NIGHT, AS I WATCHED MY FAMILY ATTEMPT TO COMMUNICATE WITH THEM, I GOT A HUGE KICK OUT OF SEEING EVERY1 DEAL W/THE COMMUNICATION BARRIER THAT I DEAL WITH DAILY. BUT I BET THEY WILL PICK UP ENGLISH SUPER FAST, OUT OF NECESSITY, CUZ THAT’S LIKE ME NOT BEING ABLE 2 SIGN EVERY DAY (& I DO ONLY 1-2 “NO SIGNING DAYS” A WEEK)! BUT I’M GLAD DIMA & MAYA HAVE EACH OTHER–THAT COMMUNICATION BARRIER IS LONELY & TOUGH ALONE!

IT’S ALWAYS INTERESTING WHEN PEOPLE MEET ME, & SINCE THESE KIDS DON’T KNOW ME, & WE CAN’T FULLY EXPLAIN ME TO THEM, IT HAS TAKEN AWHILE 4 THEM 2 “GET” ME, BUT WE PLAYED A GAME LAST NIGHT THAT I THINK HELPED THEM TO UNDERSTAND ME BETTER, & I HAVE BEEN MAKING AN EFFORT 2 COMMUNICATE MORE WITH THEM—AFTERALL, THEY SPEAK 2 EVERY1 ELSE “MY WAY”—BY TYPING ON GOOGLE TRANSLATE ON THE IPAD), OR THEY PANTOMINE/SIGN.

AT THE AIRPORT, I WAS ALREADY USED 2 PEOPLE NOT BEING SURE HOW 2 REACT 2 ME, SO I WAS FINE W/MEETING THEM. BUT WHEN WE MET THEM, I GOT THIS OVERWHELMING FEELING THAT GOD PERSONALLY KNOWS THEM, & SENT THEM TO US. I HAVE NO IDEA WHY THEY WERE SENT TO US, & WHILE I HAVE ALWAYS BELIEVED THAT I WAS A CHILD OF GOD, IT WAS WONDERFUL TO KNOW THAT GOD KNEW THEM TOO, & CARED ABOUT WHAT HAPPENS 2 THEM, TOO!