Update

utah

Friday, I experienced some very mixed feelings that came from being a stroke survivor, mother, & wife, & I never thought I’d have 2 decide between them:
1. as a stroke survivor, I was proud of myself & cheering at my accomplishment.
2. as a parent, I was upset & slightly disappointed, because my accomplishment came from cleaning up after a disobedient child who left a mess, after several requests to clean (so i did it).
3. as a wife, i couldn’t be upset, but instead embarrassed that i didn’t follow through on my earlier request to make sure it was done, so i felt partially responsible (hence, why i attempted to clean).

In other news, my family recently went on a trip to Utah. My dad was receiving an award at his old college, so we went with a bunch of family & made a ski trip out of it.

Due to poor blood circulation (from my lack of movt.), I am always cold! (Seriously, I freeze at 70 degrees, & I’ve just become accustom to having a cold left hand!). So, I have always vetoed trips where it is cold (the entire family has asked b4 to go skiing). But i figured that my family is always making sacrifices for me, so it was my turn to make a sacrifice for them, & they’ve begged to be in snow. (Poor Soph was only 2 1/2 years old when she had her last winter w/a lot of snow, since I had my stroke & we moved to a warm climate…& while it has snowed here, it is more like a dusting, & Soph has been longing to build a snowman, & make snow angels!)

While we were gone, I didn’t do a very good job practicing my therapy! Sure, it’s vacation, but even on vacation u exercise, etc., & therapy is my exercise! But what I did a lot was talk. My therapist has said the best therapy practice I can do is talk/have conversations & luckily, that week was when I usually have my best speaking week of the month, so I enjoyed talking to my sister-in-law, her friend & friend’s daughter, who were there tending my baby neice & nephews as my family & extended family skied. We just talked a whole lot, & it was cool, cuz they got so good at understanding me, which just seemed to encourage me to talk! I actually looked forward to it (I don’t recall the last time I looked forward 2 something that way), &I felt relaxed, comfortable, & confident in my speaking skills. by not feeling pressured, I didn’t face the problems I get by “thinking or trying too hard!”

Also, I can’t explain it, but the new torso strength I already have built up (thxs 2 horse therapy) helped so much in so many ways on our trip–it was exciting! not only did it physically help, but it also eased my anxiety about my limitations!

Overall, even though I never felt “warm” (unless I sweat from the insane bedshets!), I enjoyed the trip. I rarely get to see the benefits of sacrifice, & while I know sacrifice increases your love for another person, seeing how happy every1 was, made a trip in the cold worth it.

go to the temple

Since my recent article in LDS Living magazine mentions that the 1st thing I told mk was to go to the temple, I’ve had a few questions about what Mormon temples are, & why I told mk to go there.

Honestly, I was so young when it occured, so at the time, I had very little understanding of the significance in going to the temple. But the spirit wanted me to say it so bad that it was all I could think about. It felt like those words were almost shouted at me for 3 days!, & all I could only think was, “Somehow I have to tell mk to go!” So I can’t explain the excitement I felt when mk said I could talk by blinking!

But I think temples are better explained by our church leaders! Watch this video:

& on http://www.mormon.org it says:
The temple is the house of the Lord prepared and dedicated for sacred gospel ordinances. It is also a place of worship and prayer.

links

A friend found my LDS Living Article online here:
http://ldsliving.com/story/74951-sticking-together-one-couples-amazing-love-story

It has a few differences: different title, & less pictures, but has the video I have on YouTube. However, both say the stroke occurred in Texas, but I want everyone to know it occurred in Indianapolis, Indiana. I lived my 1st, & hardest, post-stroke year there, & had so much love & support from my friends there! In fact, the video at the end of the article was made by my wonderful husband, for these friends, & some of them are seen in it!

Another friend posted this on Facebook, & said to listen to it, not to read it:

http://www.npr.org/2014/02/07/273046318/henry-and-jane

It is about another couple like us, only just in reverse (the husband had the stroke) , so it was like déjà vu in some things-like the way he talks & laughs & says how his wife is the true hero -yet it was also interesting to be the outsider looking in, & to hear what others hear when I talk!

An update on my speech:

I’m not sure why it affects me, but if I’m tired/feeling lazy or feeling bad, mad, or sad, I don’t feel like I can talk around the person that is affecting me (maybe I don’t want to put forth the effort to talk, & just want to be done with it, versus repeating again & again, until I’m understood), so I sign! I have friends who want to learn ASL, but i won’t let them, & I enjoy visits where I try to just talk for 30 min.-1 hr. My goal is to only talk, but if I’m home, though I’m too chicken 2 actually do it all the time, cuz i get tired! it’s also hard to start, after i’ve been quiet (I often need 2 clear my throat, but I can’t), but once i get going, i’m good!

New Trick!

It’s been a rough week, & I needed to know God was still there…not that I thought he left, but like any child who needs a hug from their dad…I got what I needed:

for 10 years, i’ve been like a ragdoll, & i finally have a new trick: while seated (w/only back support), i pull myself forward 45 degrees, held it for a bit, then let go of the grab bar, & briefly balanced myself! Sometimes I can lean forward more, or sit back up, with no hands! I believe horseback riding has contributed a lot to strengthening my core!

Then today I found this on my brainstem stroke group on facebook, from Carol Dawson:
“My beautiful daughter Rachel has locked in since last May but is fighting her way out! I told her the first week that she has lots of people that love her, the medics are doing all they can to help, BUT that YOU are the only one in there with your body and can tell year body to heal itself, I know how strong and determined you are, so I want you to GET BOSSY with your body and keep telling it to repair pathways or build new ones! She raised her eyes to say “Yes” and has been amazing everyone ever since with her progress :)”

Everything I have comes from God, & I’m so thankful! I have been so blessed w/so much love from family & friends too, & am so grateful for that! I am also grateful to be able to have the means to afford the therapy I need!

LDS Living Magazine

In 2012, Mormon messages videotaped me, but the video was only online 15 minutes—we literally had 15 minutes of fame! The woman who interviewed us has been looking for a way to share our story, & she’s a freelance writer for LDS Living Magazine, so I was published in LDS Living Magazine’s January/February 2014 issue, in an article titled “Love, Marriage and Miracles.”

Currently, there’s no link to the article (i assume it is because this is the current issue for sale), but if you are interested in purchasing the magazine, you can find it here:

http://deseretbook.com/LDS-Living-Magazine-JanuaryFebruary-2014/i/5103140