Recovery

utah

Friday, I experienced some very mixed feelings that came from being a stroke survivor, mother, & wife, & I never thought I’d have 2 decide between them:
1. as a stroke survivor, I was proud of myself & cheering at my accomplishment.
2. as a parent, I was upset & slightly disappointed, because my accomplishment came from cleaning up after a disobedient child who left a mess, after several requests to clean (so i did it).
3. as a wife, i couldn’t be upset, but instead embarrassed that i didn’t follow through on my earlier request to make sure it was done, so i felt partially responsible (hence, why i attempted to clean).

In other news, my family recently went on a trip to Utah. My dad was receiving an award at his old college, so we went with a bunch of family & made a ski trip out of it.

Due to poor blood circulation (from my lack of movt.), I am always cold! (Seriously, I freeze at 70 degrees, & I’ve just become accustom to having a cold left hand!). So, I have always vetoed trips where it is cold (the entire family has asked b4 to go skiing). But i figured that my family is always making sacrifices for me, so it was my turn to make a sacrifice for them, & they’ve begged to be in snow. (Poor Soph was only 2 1/2 years old when she had her last winter w/a lot of snow, since I had my stroke & we moved to a warm climate…& while it has snowed here, it is more like a dusting, & Soph has been longing to build a snowman, & make snow angels!)

While we were gone, I didn’t do a very good job practicing my therapy! Sure, it’s vacation, but even on vacation u exercise, etc., & therapy is my exercise! But what I did a lot was talk. My therapist has said the best therapy practice I can do is talk/have conversations & luckily, that week was when I usually have my best speaking week of the month, so I enjoyed talking to my sister-in-law, her friend & friend’s daughter, who were there tending my baby neice & nephews as my family & extended family skied. We just talked a whole lot, & it was cool, cuz they got so good at understanding me, which just seemed to encourage me to talk! I actually looked forward to it (I don’t recall the last time I looked forward 2 something that way), &I felt relaxed, comfortable, & confident in my speaking skills. by not feeling pressured, I didn’t face the problems I get by “thinking or trying too hard!”

Also, I can’t explain it, but the new torso strength I already have built up (thxs 2 horse therapy) helped so much in so many ways on our trip–it was exciting! not only did it physically help, but it also eased my anxiety about my limitations!

Overall, even though I never felt “warm” (unless I sweat from the insane bedshets!), I enjoyed the trip. I rarely get to see the benefits of sacrifice, & while I know sacrifice increases your love for another person, seeing how happy every1 was, made a trip in the cold worth it.

links

A friend found my LDS Living Article online here:
http://ldsliving.com/story/74951-sticking-together-one-couples-amazing-love-story

It has a few differences: different title, & less pictures, but has the video I have on YouTube. However, both say the stroke occurred in Texas, but I want everyone to know it occurred in Indianapolis, Indiana. I lived my 1st, & hardest, post-stroke year there, & had so much love & support from my friends there! In fact, the video at the end of the article was made by my wonderful husband, for these friends, & some of them are seen in it!

Another friend posted this on Facebook, & said to listen to it, not to read it:

http://www.npr.org/2014/02/07/273046318/henry-and-jane

It is about another couple like us, only just in reverse (the husband had the stroke) , so it was like déjà vu in some things-like the way he talks & laughs & says how his wife is the true hero -yet it was also interesting to be the outsider looking in, & to hear what others hear when I talk!

An update on my speech:

I’m not sure why it affects me, but if I’m tired/feeling lazy or feeling bad, mad, or sad, I don’t feel like I can talk around the person that is affecting me (maybe I don’t want to put forth the effort to talk, & just want to be done with it, versus repeating again & again, until I’m understood), so I sign! I have friends who want to learn ASL, but i won’t let them, & I enjoy visits where I try to just talk for 30 min.-1 hr. My goal is to only talk, but if I’m home, though I’m too chicken 2 actually do it all the time, cuz i get tired! it’s also hard to start, after i’ve been quiet (I often need 2 clear my throat, but I can’t), but once i get going, i’m good!

New Trick!

It’s been a rough week, & I needed to know God was still there…not that I thought he left, but like any child who needs a hug from their dad…I got what I needed:

for 10 years, i’ve been like a ragdoll, & i finally have a new trick: while seated (w/only back support), i pull myself forward 45 degrees, held it for a bit, then let go of the grab bar, & briefly balanced myself! Sometimes I can lean forward more, or sit back up, with no hands! I believe horseback riding has contributed a lot to strengthening my core!

Then today I found this on my brainstem stroke group on facebook, from Carol Dawson:
“My beautiful daughter Rachel has locked in since last May but is fighting her way out! I told her the first week that she has lots of people that love her, the medics are doing all they can to help, BUT that YOU are the only one in there with your body and can tell year body to heal itself, I know how strong and determined you are, so I want you to GET BOSSY with your body and keep telling it to repair pathways or build new ones! She raised her eyes to say “Yes” and has been amazing everyone ever since with her progress :)”

Everything I have comes from God, & I’m so thankful! I have been so blessed w/so much love from family & friends too, & am so grateful for that! I am also grateful to be able to have the means to afford the therapy I need!

HOW ARE CHRIST’S SACRIFICE & MY SPEECH RELATED?

I know people compare their lives sometimes to rollercoasters. Lately, my life has not only been like a rollarcoaster, but DisneyWorld has a ride called ” The Many Adventures of Winnie the Pooh” that my life seems to literally & figuratively be like the Winnie the Pooh ride, where guests ride in “spinnable” honey pots through what was conceptualized as the best scenes from the three Winnie the Pooh featurettes, & the tracks take you on a wild ride, turning & twisting, banging into doors & walls, etc.

maya & dima came Thursday night, 12/19. maya is staying at our home, & doing a fabulous job at learning 2 languages (english & “jenny-ese”)! dima i hardly ever see–he’s staying w/some neighbors.

I keep a practice log for music therapy, & thought I’d share these notes from it:

Friday, 12/20–Our 1st full day w/Maya (our Ukranian visitor who barely speaks English)—both of us seem to have improved w/our English skills, & she seems to understand me!

Sat., 12/21–I told Maya that she looked “beautiful”, & she totally understood me!

Mon., 12/23— Today was the 1st day I had to use google translate w/Maya

Christmas Eve, I saw a friend who hasn’t seen me in a year. Last time she saw me, I could vocalize & say things like “ah”, but that was it. That particular day was a very good speaking day, so I’d answer her questions w/words & short sentences. She did quite well at understanding me, & was almost in tears that we were TALKING, & loved telling people, “did u know she can talk?!?”

this month, we celebrated the birth of Christ. Why is that birth so important? the answer is in John 3: 16, which says: For God so loved the world, that he gave his only begotten Son, that whosoever believeth in him should not perish, but have everlasting life.

Recently (ironically on Christmas Morning), I had an experience that had me marvel at the Christlike behavior I saw, & I thought: did Christ not also sacrifice himself 4 me? It seems a sacrifice worth remembering, & the best way to honor that sacrifice is to do what that sacrifice was for: repent & change.

For me, part of my changing requires me to return to no signing days. No signing days stopped over the summer w/the family when Dima & Maya came (though I still did it Wed. mornings w/Angie, until very recently).

I’ve been to chicken to do this, & I keep brushing aside: “While no signing days have been helpful for me to re-learn speech, there is another benefit, & it will help me in other ways as well.” Even though my speech is like 100 times better, i am scared & terrified of doing no signing days again, & I’ve been justifying it, by thinking, “Well, I often speak the majority of any day now, & only sign when I HAVE to, anyway!” But I’ll be upset if I don’t try it out, too, & it seems like it is precisely what I think I need, in order to grow the way I should!

QUICK UPDATE

THE WEATHER HAS BEEN CRAZY HERE…IT WAS FREEZING COLD FRIDAY, BUT WAS 80 DEGREES ON TUESDAY! I THOUGHT I WAS INSANE STARTING HORSE THERAPY IN THE WINTER, CUZ THE COLD IS NOT MY FRIEND, BUT IT HAS BEEN COLD THE DAYS I DON’T GO! SO STRANGE, BUT NICE! I THINK GOD IS ON MY SIDE! LOL

IN HORSE THERAPY, WE USED A REAL SADDLE LAST TUESDAY…I DON’T KNOW WHY IT’S SO DIFFERENT, BUT IT WAS LIKE 10 TIMES HARDER! I WAS HANGING ON FOR DEAR LIFE SO HARD THAT MY RIGHT ARM GOT SORE, & I COULDN’T RELAX MY LEGS–I WAS PROBABLY SQUEEZING THE POOR HORSE! BUT MY THERAPIST HAD A FIRM GRIP ON ME, & MK (MK’S SO PROTECTIVE OF ME–I DON’T THINK HE’S A FAN OF ME HORSEBACK RIDING, BUT HE’S A GOOD GUY & SUPPORTS ME ANYWAY!) & 2 VOLUNTEERS WALKED W/US, SO I KNEW I WAS OK–I JUST COULDN’T SEEM TO GET THAT MESSAGE TO MY LEGS (OR MAYBE IT’S JUST CAUSE I GET STIFF ALL OVER, WHEN I WORK HARD)! LOL

MY THERAPIST COMPLIMENTED HOW I SIT SO TALL, W/MY SHOULDERS BACK. LOL I FEEL LIKE I’M SLOUCHING! BUT IT’S ALL THOSE YEARS OF DANCING! I STILL FEEL MY TEACHER TOUCHING MY SHOULDERS, GENTLY PUSHING THEM BACK, & TELLING ME, “SHOULDERS BACK, JENNY!”