News

May 27, 2004

We have had a great day with Jenny. Sophia has been asking to sit on Jenny’s lap, so we gave her a chance while they watched tv and Jenny had her hair brushed. The kids love to climb in bed with Mom and they get excited when they see her body move. Jenny asks for the kids to come hug her and she loves the contact. On the flip side, it is difficult to hear the kids get hurt and the instinctive reponse is to call for Mom. Jenny wants to comfort them so bad. The kids are sometimes allowing us to bring them to Jenny when they are hurt- especially when they just need hugs.

Jenny complains about not being able to sleep much. She does not appear to be sleeping ever. She states that she has not slept more than 1-2 hours at a time since her stroke. She also reports that she tends to not sleep at nights. She doesn’t sleep days, so I’m not sure what is going on. Her muscle spasms are still gone. I really think the Botox shots were wonderful. We worked on head movements today and Jenny was able to lift her head back and forward, left to right, and truning left to right. I held the back of her head for minimal support. She gave more than slight movement. I let go several times and she could move completely by herself! I get all teary eyed when these things happen. Jenny still is not pleased with her progress, but I think she feels good deep down.

May 25, 2004

Jenny is looking so very good. She feels very discouraged and is fighting the idea of therapies at home, but she is really getting better much faster, even though she has not done much physical therapy. Her body is not experincing spasms and she was able to hold her head for several minutes without support today. Her body thermostat is becoming more normal all the time. Jenny reports that her double vision is pretty much gone and her eating/swallowing/mouth movements are better than ever. Jenny would not agree to there being improvments, but she has numerous. We are working out the bugs with nursing and routines, but I think things are going well.

I carried Jenny upstairs for a chance to see our new painted walls and our bedroom. She napped with me on our bed and the kids all joined in to hug on their mom. It felt good to have this type of experince as a family again. I feel good about the future of Jenny’s rehabilitation.

May 23, 2004

Jenny seems to be doing better at home, and appears more happy to be with the kids. Of course, being at home with the things she loves reminds her of what she can not do and it is difficult emotionally. I think she tries to get out of doing some therapies, but we encourgae until she gives in. She has a lot of emotional periods, but they seem to be brief and less traumatic. She has had fewer periods of spasms and her neck appears to have had favorable results from Botox shots since it does not pull to ther left much (however, she will not admit that the shots were worth it) and her ankles appear more loose. The kids are warming up well to Mom being home. They are coming in more to snuggle an show Mom things. Zach is always looking for someone to watch him champion his gameboy games and now he has a captive audience. Jessie saw Mom’s feeding tube and she wants one too. Jessie thinks that her mom is cool because food gets in her tummy fast without having to go through her mouth.

Jenny came home today!

Jenny was discharged today with the intent to continue therapies at home with home based therapists and nurses. I dared not mention the possibility of her coming home with the possible outcome of her not being able to do so again. She still has her trache and all, but she is doing well. Her first day was quite overwhelming for me since it seemed like it was more difficult to juggle Jenny and the kids at the same time. I can not deligate the things like comfort and affection that is needed of a father and spouse, but I would not want to give those jobs up anyhow. We have a home health aid and the usualy cast and crew of the last few weeks which has made things better for Jenny and I. I assume that we all will get use to a schedule and make it work to where things are second nature. I am sure Jenny will enjoy her first nights sleep free of being woke up to see if she is sleeping okay.

May 20, 2004

I dare not try to give an estimated discharge date, but I think it will be soon. Jenny’s health has improved and she is getting stronger. We see definate movements in both hands, but mostly in her right hand where she can move her thumb and now her pointer finger at any time. She recieved Botox shots in her neck and ankles to relieve the muscle tension that causes those parts of her body to turn abnormally because of constant spasms due to any sort of stressor. She is not pleased with the doctors who did not tell her how long the needle would be. As I watched, I even expected the needle to come out the other side. She was brave though. I can tell that Jenny needs to come home and be with the family. She has been gone so long and I notice that she is resisting therapy at times. Perhaps things will improve once therapy resumes at home. She still has her trache and other tubes, but hopes to get them out soon- most likely not before going home. Her respiratory health looks as good as ever though, so it should not be too long.