May 23, 2004

Jenny seems to be doing better at home, and appears more happy to be with the kids. Of course, being at home with the things she loves reminds her of what she can not do and it is difficult emotionally. I think she tries to get out of doing some therapies, but we encourgae until she gives in. She has a lot of emotional periods, but they seem to be brief and less traumatic. She has had fewer periods of spasms and her neck appears to have had favorable results from Botox shots since it does not pull to ther left much (however, she will not admit that the shots were worth it) and her ankles appear more loose. The kids are warming up well to Mom being home. They are coming in more to snuggle an show Mom things. Zach is always looking for someone to watch him champion his gameboy games and now he has a captive audience. Jessie saw Mom’s feeding tube and she wants one too. Jessie thinks that her mom is cool because food gets in her tummy fast without having to go through her mouth.

6 comments

  1. Hey Jen! I am so glad you are able to be home. It will be hard at first missing all those things that seemed so easy before, but being at home relaxed will help with therapy. You are so strong and I know you will achieve amazing things. Look at all the progress you have already made!! You have a big cheering team behind you. You are always in our prayers and we love you guys. Brian, Juli, Brittney, Brice and Brinn Henrie

  2. Hi, Congradulations. Just a note to let you know that I am elated to hear that you are home. What a great blessing to have your family near. What joy must be felt in your heart that you have come this far. May God bless you and help you through the next few days as you adjust. Have a wonderful day. Keep up the great work that you have done so far. Lots of love, Rita

  3. I am happy Jenny is home with you and the kids Mark, I am sure she will rest better now. Keep your faith strong, Pam

  4. Hey Jenny, I hope you are resting well at home. I am sure that you are. I think that therapy will go well now that you can relax at home. I amm so happy the kids are so excited about all of your new fun things. I am sure they are so elated to have you home. Mark, you are so strong. Thanks again for taking the time to include us on this contiually exciting journey. Give Missy my love too.
    in love and faith
    janet

  5. JENNIE
    I AM A 6 YEAR STROKE VICTIM. I AM 71 AND HAVE 4 MARRIED CHILDREN AND A GIRL 33 THAT IS A GIFTED TEACHER IN COLUMBUS, OHIO. I HAVE FLOWN TO FLORIDA TO NAPLES WERE I HAD 36 HYPERBARIC TREATMENTS WHERE I SAW BABIES WITH MS THAT WENT IN THE CHAMBER WITH THEIR MOMS AND AFTER A MONTH’S TREATMENT OF AN 80 MINUTES DAILY TREATMENT, THEY WERE MOVING THEIR HEADS, ARMS, LEGS AND HOLDING THEIR BOTTLES. COLUMBUS HOSPITAL WHERE I WAS LIFEFLIGHTED HAS A CHAMBER BUT ONLY USES IT FOR WOUND HEALING AND BURN HEALING AND DEEP SEA DIVERS FOR THE BENDS. IT’S EXPENSIVE AND IT IS COVERED BY INSURANCE OVERSEAS ONLY. IT COST ME $250 A TREATMENT AND MAYBE IT’S HIGHER NOW. IT IS JUST A SEALED GLASS CHAMBER YOU ARE ROLLED IN AND OXYGEN IS TURNED ON AND YOU ARE ABLE TO WATCH TV . YOUR FAMILY CAN SIT BY YOU OR READ OR LEAVE AND COME BACK IN 80 MINUTES. I’VE HAD EXTENSIVE THERAPY AT HOME, AT A NURSING HOME, AND A REHILBATION CENTER WERE I STAYED FOR SIX WEEKS. I COULDN’T MOVE ONLY ONE EYE WHICH I USED TO COMMUNICATE BY BLINKING ONCE FOR NO AND TWICE FOR YES. MY TEACHER DAUGHTER MADE ME A COMMUNICATION BOARD WHICH I USED FOR A YEAR. TODAY, I’M MOVING MY LEFT SIDE, HEAD AND AM TALKING GARBLED BUT PEOPLE CAN UNDERSTAND ME. I’VE BEEN SWIMMING IN POWELL, OHIO AT THE Y WHERE MY TEACHER DAUGHTER LIVES. THEY HAVE AN ELECTRIC LIFT CHAIR THAT LIFTS ME IN THE WATER, AND THEN I CAN WALK IN THE WATER HOLDING ON THE SIDES OF THE POOL. NO, I’M NOT JESUS BUT I WOULDN’T BE HERE TODAY WITHOUT HIM. MANY PEOPLE HAVE PRAYED FOR ME. MY HUSBAND BOUGHT A NEW HOUSE WITH WIDE DOORWAYS FOR MY WHEELCHAIR AND A CEILING LIFT THAT PUTS ME ON THE POTTY, IN MY WHIRLPOOL,(WHICH FEELS GOOD SENSE I HAD SPONGE BATHS FOR A YEAR). IT ALSO PUTS ME IN MY CHAIR AND IN MY HOSPITAL BED. I ALSO HAVE AN ELECTRIC CHAIR AT THE TOP OF THE BASEMENT STEPS THAT TAKES ME DOWN STAIRS WHERE WE HAVE FAMILY HOLIDAY FUN. I WAS GIVEN 2 DAYS TO LIVE BUT WE TOLD THE DOCTORS WE KNOW THE DIVINE HEALER. SIX YEARS LATER, I’M STILL HERE. I’M TYPING ON MY COMPUTER WITH MY LEFT HAND, EATING AND WRITING TOO. I WAS RIGHT HANDED. IT TOOK A LOT OF THERAPY. I HAD THE TRACH AND FEEDING TUBE. I HAD TO GO HAVE A SWOLLOWING TEST BEFORE I COULD EAT PUREED FOOD. I AM GOING TO PEDAL MY BIKE WHEELCHAIR IN THE CANCER WALK HERE JUNE 11TH. I AM DOING IT IN MEMORY OF MY SISTER WHO DIED 21 YEARS AGO AT AGE 45 OF BREAST CANCER. MY FEET ARE STRAPED TO THE PEDALS AND MY RIGHT PARALYZED FOOT GOES AROUND AUTOMATICALLY.I’VE BEEN PUMPING 4 MILES IN MY SUBDIVISION. I’M WRITING A BOOK THAT MIGHT HELP OTHERS. IT’S HARD WORK BUT EVENTUALLY, YOU CAN LIVE A GOOD LIFE BUT DON’T GET UNPATIENT. IT TOOK ME A LOT OF THERAPY BUT NOW I BEEN MOVING MY RIGHT LEG AND ARM AND MY GIRLS HELP ME STAND HOLDING ON THE SINK. I CAN STAND ALONE ONCE I HAVE SOMEONE HELP ME UP AND I EVEN CAN LEAVE GO AND TURN THE WATER ON. I’LL PRAY FOR YOU JENNIE AND YOU PRAY FOR ME AND DON’T LISTEN TO THE DOCTORS OR THERAPISTS THAT SAY THE MOVEMENT YOU GET IN SIX MONTHS AFTER A STROKE IS ALL YOU’LL GET. THEY ARE TAUGHT THAT BUT I’M LIVING PROOF THAT MOVING MORE AS TIME GOES BY–6 YEARS IN FACT. KEEP ON TUGGING. IT’S WORTH IT. YOU CAN GET ON THE COMPUTER ON THE PEARLMUTTER’S SITE AND READ ABOUT IT. AS EVER, MARY

  6. Dear Mark & Jenny,
    I am so glad you were able to come home this week! I’m sure it is slow progress for you, Jen, but you continue to amaze me with your progress and your strength and determination. Just wanted you to know I love you guys and pray for you each day. I hope you can enjoy the good things about being home and that the difficult things will be minimized with time. Hang in there!
    Lots of Love,
    Joyce

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