Author: Jenny

In March 2004, I suffered a severe brainstem stroke, & was "locked in" for several months". I have been married to a wonderful man, Mark ever since Dec. 1994, & we have 3 kids: Zach (1997),, Jessica (2000), & Sophie (2002). I have been blessed in so many ways by God, so I wanted to keep a blog to share my recovery, life, & answer questions.

MY HUMOR

"Words come more readily to girls. Even as adults, men use fewer words than women. Studies have shown that, on average, women speak about 20,000 words in a day. Depending on the study, men use 7,000 to 10,000."I FOUND THIS EXTREMELY INTERESTING. BEING GENOROUS, I BET I TYPE LESS THAN 2,000 WORDS, &, ACCORDING 2 THIS STUDY, I THINK 20,000. YET, 2 MEN, WHO USE ½ OR LESS THAN ½ OF WHAT'S IN MY HEAD, I APPEAR WORDY, EVEN THOUGH I'M VERY BRIEF 4 A WOMAN. & IF I SIGN, I'M EVEN BRIEFER—OFTEN, ACTIONS ALONE HAVE 2 SUFFICE, OR 1 WORD NEEDS 2 BE TRANSLATED INTO A COMPLETE SENTENCE. I'M GENEROUS IF I SIGN A FULL SENTENCE, BUT I'M LIMITED TO 3 SENTENCES 4 THOSE LISTENING (IMAGINE HOW TIRED U'D BE MENTALLY, IF I SIGNED OUT EVERY LETTER OF THIS POST—SOMETIMES IT'S BETTER IF THOSE LETTERS R TYPED INDIVIDUALLY, BUT U CAN READ AT YOUR OWN PACE). I'VE ALSO FOUND THAT IF I'M THINKING 2 CONTRASICTORY THINGS (LIKE "WHAT A NEAT THING?" & "BUT "HOW DO I TURN IT ON?"), I HAVE 2 FORGO THE POSITIVE STATEMENT ("FLUFF," REALLY) , & ASK THE QUES. ("HOW DO I TURN IT ON?"), 2 EASE MY MIND.

IF I WERE 2 SIGN A FUNNY STORY, I MAY SIGN, "I DROPPED A JUNIOR MINT, & A FRIEND ATE IT!"

BUT MY HEAD THINKS THIS (LIMITED BY TYPING):
"AT A FRIEND'S HOUSE, I PUT A JUNIOR MINT IN MY MOUTH & TRIED 2 MOVE IT 4WARD 2 BITE IT W/MY FRONT TEETH. IT SHOT OUT OF MY MOUTH, WHERE A FRIEND HAD A PILE OF JUNIOR MINTS ON THE FLOOR!
I DIED LAUGHING, PRECISELY WHEN A BABY TOOTED, SO AT FIRST, SHE THOUGHT I TOOTED 2! BY THE TIME SHE FIGURED OUT WHY I WAS REALLY LAUGHING, IT WAS EATEN! THE REST OF THE NIGHT, IF I LOOKED AT HER, OR A JUNIOR MINT, I DIED LAUGHING!" (TRUE STORY)
IT TAKES SOOO LONG 2 TYPE OR FINGERSPELL STUFF, SO IT’S FUNNY INITIALLY, BUT BY THE TIME I SAY IT, THE MOMENT HAS LONG SINCE PAST, SO I JUST GET A “COURTESY CHUCKLE.” MUCH I’VE RESORTED 2 JUST THINKING & APPRECIATING MY OWN HUMOR, & HAVING A “PERSONAL LAUGHING MOMENT.” WHEN I DO, & SUDDENLY LAUGH, MY CAREGIVER, CARA REPEATS A “FIA PHRASE”: "I’M THINKING SOMETHING FUNNY IN MY HEAD."

IT’S SUCH A BUMMER THAT MY HUMOR & WIT HAVE BEEN SOMETHING THAT HAVE BEEN KINDA HIDDEN WITH EVERYONE (EXCEPT VIA EMAIL—BUT, EVEN THEN, I HAVE 2 BE CATIUOUS—ESP. IF I FEEL SARCASTIC, SINCE THERE'S NO TONE IN EMAIL, OR EVEN W/ASL, & A JOKE CAN BE READ AS JUST PLAIN MEAN). IT’S DIFFICULT CAUSE SO MUCH OF HUMOR IS IN TIMING & VOCAL INFLECTION, SO SOME OF IT IS KINDA LOST WHEN YOU HAVE TO FINGERSPELL IT OUT, LIKE, AS MY SISTER PUT IT SO WELL (& I FOUND IT ABSOLUTELY HILARIOUS!),: “F-S – OH WAIT, NOT S – A – R – T. LET’S SEE, F-A-R-T…. UMMM. OHH! FART! OH, THAT’S FUNNY. HAHA.” INSTEAD OF JUST HEARING AND LAUGHING.

PLUS, A LOT OF TIMES OTHERS EVENTUALLY OFTEN SAY A VARIATION OF THE FUNNY THOUGHT I ALREADY HAD, BUT DON'T SAY IT, BECAUSE I KNOW OTHERS GET BURNED OUT ON SPELLING (EVEN I DO), SO IF IT’S NOT SOMETHING I PHYSICALLY NEED, THEY WANT 2 MOVE ON. WHICH IS 2 BAD, REALLY, CAUSE THEY'RE MISSING "ME" THEN. BUT I CAN ALSO "HIDE" "ME," ESP. IF SIGNING IS 2 HARD, DUE 2 A "WEAK" DAY. UNFORTUNATELY, MOST DON’T TAKE (OR HAVE) THE TIME/ENERGY FOR EMOTIONAL NEEDS. LUCKILY I GET "FRESH BLOOD" (MY CAREGIVER) 2-3 TIMES A WEEK, WHO CAN DEVOTE TIME 2 MY EMOTIONAL NEEDS, & IT'S AMAZING, REALLY, HOW WELL SHE'S GOTTEN 2 KNOW THE ME INSIDE, YET NEVER KNEW ME B4 MY STROKE! BUT I KNOW IT'S A DIFFICULT BALANCING TASK – 2 FIND A PLACE WHERE I AM BOTH SATISFIED WITH PHYSICAL & EMOTIONAL NEEDS, SO 3 CHEERS 4 "FRESH BLOOD!" LOL

HOWEVER, IF OTHERS R THERE, I CAN SAY MORE W/MARK’S HELP…W/ HIM I USUALLY ONLY NEED 2 SAY A FEW SHORT WORDS, SOMETIMES JUST A LETTER OR 2, & HE FIGURES IT OUT, & SHARES IT (WAY BETTER THAN I COULD, SINCE I GIVE THE ABBREVIATED VERSION, & LAUGH ALONE 4 EVERY LETTER, AS THE LISTNER ATTEMPTS 2 FIGURE OUT WHAT’S SO FUNNY!) MARK KNOWS MY STORIES & MIND SO WELL (ESP. AFTER SPENDING SO MUCH TIME WITH ME, SPELLING OUT MY THOUGHTS) & HE KNOWS MY HUMOR, SO IF THERE'S A CHANCE 2 CATCH ON, MARK OFTEN CATCHES ON SOONER & DOESN’T ALWAYS NEED ME 2 SPELL IT ALL OUT 4 HIM. THIS CAN ALLOW THE BIGGER LAUGH I SOMETIMES WANT/NEED.

SUNDAY

IT WAS MEALTIME, & MK WAS BUSY. ZACH COOKED RAMEN, FED THE GIRLS & HIM SOME, THEN, WHEN I WAS SURE IT HAD TIME 2 COOL ENOUGH 4 ME, HE CUT & FED ME! SO SWEET! HE ROCKS!

IT WASN'T PERFECT (I HAD A SHOWER), BUT I'M USED 2 WAITING UNTIL MK CAN FEED ME, WHICH CAN BE LATE IF HE'S REALLY BUSY. I DON'T MIND—I RARELY FEEL HUNGER PAINS, BUT I'VE FELT THEM MORE LATELY, AT THE 2 MEALS I DO EAT.

THE KIDS R USED 2 DOING MORE THAN AVERAGE KIDS. I KNOW I NEED THEM 2 BE EXTRA RESPONSIBLE, AS MUCH, OR MORE THAN, MK DOES. THE MORNING I ALONE GOT THEM READY 4 SCHOOL, WOULD NEVER HAVE BEEN POSSIBLE W/O THEM BEING SUPER RESPONSIBLE—THE TRICK IS 2 EXPECT MORE & DON’T BABY THEM. OTHERWISE THEY BACK TRACK.

AS A MOM, I USED 2 THINK THEY "DESERVED IT" WHEN SOME1 BABY'D THEM. BUT NOW I C IT IS LIKE ME: IT'S TONS EASIER 2 JUST ASK & HAVE SOME1 DO SOMETHING 4 ME, BUT IF IT'S WITHIN MY CAPABILITY, THE STRUGGLE CAN BE WORTH IT, & I CAN ACCOMPLISH MORE THAN I THOUGHT POSSIBLE. ACCORDING 2 MY MRI, I BELIEVE I SHOULD JUST BLINK…IT’S BAD. BUTI DIDN’T KNOW IT WAS THAT BAD, SO I KEPT TRYING. I KNEW I WAS LOCKED-IN, BUT NOT KNOWING WHY—IT GAVE ME THE ABILITY 2 STRETCH MYSELF, SINCE I HAD NO REASON 2 DOUBT MYSELF. (MY FAV. QOUTE IS "Courage does not always roar. Sometimes, it is the quiet voice at the end of the day saying, “I will try again tomorrow”. — Anonymous) KIDS CAN BE THAT WAY, & LOVE THE CHANCE 2 BE THE "ADULT." THE TRICK NOW, IS 2 NOT FRUSTRATE THEM, BY STRETCHING 2 FAR, & BEYOND THEIR CAPABILITIES! (I'VE FELT THAT 2, & IT'S AN AWFUL FEELING!)

FINALLY!

I'VE BEEN HOME ABOUT A WEEK, BUT HAVEN'T POSTED SINCE I WAS PLAYING "CATCH UP" (STILL AM, BUT IT'S SLOW W/DOUBLE VISION & 1 TYPING FINGER) 4 THE 9 DAYS WE WERE AWAY. WE HAVE A GREAT SYSTEM NOW, WHERE I COULD ACCESS MY HOME COMPUTER & USED A PROJECTOR IN PLACE OF THE BIG SCREEN LCD THAT'S MY MONITER AT HOME. STILL, THERE'S A DELAY WHEN I USE GOTOMYPC.COM, & THE DELAY IS EVEN BIGGER, DEPENDING ON THE INTERNET CONNECTION I USE. AFTER A WHILE, THERE WAS JUST CERTAIN THINGS I LEFT 4 AT HOME, WHEN THERE WAS NO DELAY ON MY COMP. BUT I HATE 2 THINK HOW MUCH MORE I'D BE BEHIND IF THERE WASN'T A COMP. I COULD USE!!! YES, IT TOOK TWICE AS LONG (I EVEN TYPED 2 FAST 4 THE DELAY!), BUT I WAS ON THE COMP. MORE THAN ANY OTHER VACATION. FELT SO GOOD! U KNOW THOSE FLEETING THOUGHTS U HAVE THAT MAKE U PICK UP THE PHONE? THOSE INSPIRE MANY OF MY EMAILS, & IT WAS NICE 2 SHARE SOME & NOT HAVE 2 REMEMBER THEM FOR 9 DAYS!

I FINALLY GOT TIRED OF DOING WHAT I SHOULD DO, & DID WHAT I WANTED 2 DO ON THURS.: I MADE A SCRAP. PG.—I'LL POST IT SOON. I'M PAYING 4 IT (SAT., I HAD SO MUCH 2 DO, I WASN'T SURE WHERE 2 START), BUT IT KEPT ME SANE!

BET IT'S ODD 2 THINK OF ME AS "BUSY." BET SOME WONDER WHAT I DO. WELL, TRY TYPING EVERYTHING U WANT 2 SAY, W/1 FUNGER, 4 A DAY. THEN, THROW IN SCRAPBOOKS & JOURNALS 4 ME & MY 3 KIDS. ALSO ADD THE FACT THAT I'M IN THE MIDDLE OF AT LEAST 4 PROJECTS 2 MAKE HARDBOUND BOOKS W/ SCRAPBOOKS, I READ ALL DAY (& READING TAKES TWICE AS LONG), I'M STILL A MOM & WIFE, I POST ON HERE, ETC.

KNOW WHAT'S HARD ABOUT TRAVELLING?
THINGS JUST R NOT MADE 4 THE HANDICAPPED00AVERAGE HOMES GAVE STAIRS, THINNER HALLS, SMALL DOORWAYS, ETC. BUT THIS ISN'T LIMITED 2 "AVERAGE"—I'VE BEEN IN MY SHARE OF BATHROOMS THAT R "HANDICAPPED," YET 2 SMALL 4 MY CHAIR! THANK GOODNESS MARK (MK) CAN CARRY ME & LEAVE MY CHAIR OUTSIDE THE STALL!

AT HOME, THINGS R SET UP SO I'M EXTREMELY INDEPENDENT, 4 ME. I LEAVE, & THAT'S STRIPPED AWAY, WHICH IS HARD 4 BOTH MK & I BECAUSE I CAN'T DO ANYTHING ALONE ANYMORE, & WE R ACCUSTOMED 2 A DIFF. LIFESTYLE—I MUST DRIVE MARK CRAZY 2 ALWAYS NEED HIM, YET IT STINKS 2 SIT & DO ABSOLUTELY NOTHING, LIKE I DID WHEN I WAS 1ST HOME FROM THE HOSPITALS! DIFF. IS, I NOW HAVE A POWER (VS. MANUAL) CHAIR, SO AT LEAST I CAN CHANGE MY VIEW!

HOWEVER, WE HAD A SCARE WHERE MY W/C STOPPED WORKING. AT HOME, WE HAVE A REPAIR PLACE & EXTRA (MANUAL) W/C I CAN TEMP. USE, BUT THERE, WE HAD NOTHING. REALITY SET IN ABOUT HOW BAD THAT WAS! FORTUNATELY, AFTER MK & I SAID INDEPENDENT PRATERS IN R HEADS, MY W/C MIRACUOUSLY WORKED AGAIN!

PROB. THE HARDEST THING IS IF I'M GIVEN “PITY LOOKS”. MY BROTHER, WHO IS AWAY FOR 2 YEARS IN FINLAND, SAID, "Many do not have the priviledge of this (ONLY COMMUNICATING W/ME THROUGH EMAIL), and see you as the jenny they see. There is a big difference between the Jenny they see, and the one that is you! "

THIS IS SOOO TRUE! C-ING ME PHYSICALLY, CAN TOTALLY MIS-REPRESENT WHO I AM INSIDE! MAYBE THAT'S WHY I POST—I'M DIFF. HERE & I FEEL I CAN BE ME!