We returned from a 5-day vacation to Disney World last night. We went with Jenny’s brother (Steve) and his family and had one of the best times of our lives. Steve and Ellyn had planned it so Jenny was able to do all of the activities and basically feel that there were no barriers for her to truely have a good time. They had occomplished this task perfectly. Aside from the normal Disney excitement/activities, so many wonderful things occured while on our trip.
Despite Jenny’s previous worries, she was able to ride rides, find an accessible bathroom, and enjoy living life. She stated that this was the first time she had been truley happy all day since her stroke. I knew this because for 5 whole days she did not cry once (except happy cries), whereas she typically cries at least once daily due to pain, suffering, and general depression.
After our maiden voyage to Austin to figure out air travel, it seem like we were able to smoothly conquer our hurdles of the previous trip. Also, Jenny was able to actually utilize the accessible elliments in a hotel room. Not only that, Jenny was able to drink water for the first time without gagging or coughing at any degree. She typically coughs at least a little at first, but generally does fine when drinking the bulk of her liquids. We did an improvisation of standing since her tilt table was back in Indy. I supported Jenny against a wall and let her do weight bareing exercises that way. In the process of doing standing therapy, we learned that Jenny could stand against the wall without any support or assistance for short periods of time (I did not dare let go of her for more than 10 or so seconds), but she could have gone longer. This was the first time that Jenny has been able to sleep without the assistance of medication (and I think that it will continue). Sophia even surprised us by showing excellent toileting skills there- which have continued since coming home.
We loved spending this time with Steve’s family and our kids had a ball with their cousins. Jenny loved the weather and just seemed to do better physically and emotionally. Right now, she is on the tilt table-wishing that she was back in Florida. It will be nice once we move closer to more of her family and live in a warmer climent. It was nice to just leave our worries behind and enjoy being with the kids and not worrying about insurance, therapies, dr appointments etc…