Author: Jenny

In March 2004, I suffered a severe brainstem stroke, & was "locked in" for several months". I have been married to a wonderful man, Mark ever since Dec. 1994, & we have 3 kids: Zach (1997),, Jessica (2000), & Sophie (2002). I have been blessed in so many ways by God, so I wanted to keep a blog to share my recovery, life, & answer questions.

WRITING

it’s been 2 long…been sick & busy, but there’s no excuse the last few days!

SO, I FIGURE I’M A BLONDE, POLISH, A WOMAN, & BRAIN DAMAGED, SO I COVER MOST BASES OF THE “DUMB” JOKES.

I’M ACTUALLY NERDY SMART. GRADUATED HIGHEST HONORS, ETC., YET EVER SINCE MY STROKE, I LITERALLY MENTALLY “FREEZE” IF ANXIOUS, SO I TAKE PRECAUTIONS 4 THAT SO IT AVOIDS FEELING DUMB. THXS 2 A SUGGESTION FROM MY SISTER, I’VE EXPANDED ON AN IDEA, & NOW I HAVE A GREAT NEW SYSTEM THAT I WANT 2 SHARE, BECUZ IT HAS REALLY HELPED ME, & MIGHT HELP SOME1 ELSE 2:

I HAVE 2 KEYRINGS OF “STOCK PHRASES” 2 SAY THINGS 2 OTHERS WHO CAN’T SIGN, & A SECOND KEYRING 2 DISCIPLINE MY KIDS, SO THEY CAN’T PULL THE “I DON’T UNDERSTAND U” THING, OR IF THEY ARE JUST 2 IMPATIENT 4 ME 2 SIGN THE WHOLE THING (THEY R GETTING 2 THE POINT WHERE THEY JUST C THE CARDS, & KNOW WHAT I WANT 2 SAY)!

2 IMAGINE THEM, I PRINT PHRASES & CUT THEM OUT (C THE PHRASES BELOW), ATTACHED THEM 2 HALF AN INDEX CARD, PUNCHED, & PUT THEM ON A KEYRING. I KEEP THEM IN MY WHEELCHAIR POCKET SO WHEN A KID CLAIMS THE “CAN’T UNDERSTAND U” GAME, OR SOME1 WHO CAN’T SIGN COMES BY & I WANT 2 TALK 2 THEM, I CAN JUST WHIP OUT THE APPROPRIATE CARD AND POINT TO A PHRASE. IT IS THE GREATEST THING, ESP. THE CARD INTRODUCING MYSELF—PEOPLE R LESS “SCARED” OF ME.

IN ORDER 2 QUICKLY FIND THE CORRECT PHRASE NEEDED 2 DISCIPLINE THE KIDS W/O SIGNING, I USED COLORED INDEX CARDS 4 THEIR KEYRING:
1. FLOURESCENT YELLOW: WARNING
2. FLOURESCENT PINK: PUNISHMENT
3. FLOURESCENT GREEN: COMMAND
4. PASTEL BLUE: INSTRUCTION

SOME OF THE PHRASES ARE :*STOP HURTING YOUR BROTHER OR SISTER, * IF U CHOOSE TO IGNORE OR YELL AT ME, U’LL BE GROUNDED, * U ARE GROUNDED, * IF U CHOOSE TO IGNORE OR YELL AT ME, U WILL WEED, * U NEED TO WEED, * TIME OUT, * DO IT NOW! , * DO IT, OR I’LL TELL DAD!, *STOP WHINING & JUST DO IT!, *GET OFF YOUR BUTT!, * HURRY UP!, *GET READY FOR BED, *PICK UP YOUR ROOM, *PICK UP YOUR TOYS, *SHARE, * QUIET PLEASE!

THE 2ND KEYRING IS WHITE, & IS 2 TALK QUICKLY, OR 2 THOSE WHO CAN’T SIGN:
* I NEED TO LEAVE, * I’LL BE BACK, * OPEN & HOLD OPEN DOOR, * PUT LEFT FOOT ON FOOTREST, *I NEED A WARM BLANKET , *SUNGLASSES ON, *PULL MY KNEES A LITTLE BIT, *BACK OF SHIRT DOWN, * GET MARK, * I EMAILED YOU, I’M FROM AUSTIN, TX, IF I CRY/LAUGH, JUST IGNORE ME–IT IS PART OF MY STROKE, HI! MY NAME IS JENNY LYNN. I CAN’T TALK, BUT I CAN HEAR & NOD “YES” OR “NO”

IN ADDITION, I GOT A MAGNA DOODLE 4 X-MAS–IT WAS MY FAV. GIFT. I’VE BEEN WANTING A CHALKBOARD, BUT IMAGINE THE MESS, & IF I DROPPED THE CHALK! I HAVE BEEN “WRITING” ON MY LEG 4 MONTHS NOW.

A MAGNA DOODLE IS WAY BETTER, PURE GENIOUS! I HAVE USED IT 2 TALK 2 THOSE WHO CAN’T SIGN, 2 HELP THOSE LEARNING 2 SIGN (IF THEY ARE STUCK & KEEP GUESSING A LETTER WRONG, I CAN WRITE IT), & 2 QUICKLY & QUIETLY SAY THINGS (I’M QUIET, BUT THE OTHER PERSON SPEAKS MY WORDS, PLUS I CAN WRITE DURING MY OWN TIME, & L8R JUST SHOW SOME1 WHAT I WROTE, WHICH IS FASTER THAN READING MY ASL.

I AM NOT A GREAT WRITER, & I USED 2 HATE WRITING, DUE 2 MY DOUBLE VISION, BUT ODDLY, I SUDDENLY ALSO LIKE FEEDING MYSELF (& USED 2 HATE THAT 2, BECAUSE IT WAS HARDER 2 RAISE MY ARM, & I HAD POOR AIM, SO I MADE A BIGGER MESS, & COULDN’T WIPE MY FACE CLEAN)

I ALWAYS TRY NEW STUFF, WONDERING IF I CAN DO IT, & IF NOT, I FIND OUT WHAT I NEED 2 DO 2 GET THERE (LIKE “POPCORN THERAPY”–I USED 2 NEED MY ARM SUPPORT IN ORDER 2 EAT POPCORN AT THE MOVIES…I HAVE WORKED IN VARIOUS WAYS 2 REACH MY MOUTH W/O MY ARM SUPPORT. NOW I CAN REACH, BUT IT’S TRICKY, SO I DO “POPCORN THERAPY”: I NEVER MISS AN OPPORTUNITY 2 EAT POPCORN W/O MY ARM SUPPORT DURING A MOVIE. IT’S SLOW GOING, & BY MID-SHOW, I’M TIRED…I AM SLOW ENOUGH 4 A BOWL 2 TAKE 2 HRS., BUT I FIGURE THAT THE MOVIE DISTRACTS ME ENOUGH THAT CONTINUAL REPS HURT LESS. I TIRE OUT, BUT LAST LONGER IT SEEMS–THE MOVIE DISTRACTION WORKS WONDERS!)

PRACTICE MAKES PERFECT, RIGHT?

MON.

A WHILE AGO, JESS WAS PRACTICING A SPEECH ABOUT WHALES 4 SCHOOL. SHE RAN ACROSS THE WORD “BALEEN”,, & WASN’T SURE IF SHE PRONOUNCED IT CORRECTLY. USUALLY, THE KIDS JUST SAY A WORD, & ASK IF THEY SAID IT RIGHT…IF I NOD “NO,” THEY TRY SAYING IT ANOTHER WAY, BUT THIS TIME, I SAID IT WELL ENOUGH 4 JESSIE 2 HEAR THE CORRECT VOWEL PRONUNCIATION! I WAS SO EXCITED!

OF COURSE, SHE HAD 2 CHECK W/MK L8R, EITHER BECUZ SHE 4GOT, OR WANTED 2 BE SURE SHE HEARD ME CORRECTLY!

THEN, 2DAY, ZACH ASKED A YES/NO QUESTION THROUGH R BEDROOM DOOR. I ANSWERED “NO.” ALTHOUGH IT WASN’T A GREAT “NO” (I DIDN’T SUSPECT HE’D UNDERSTAND), HE UNDERSTOOD! THAT FEELING OF BEING UNDERSTOOD NEVER GETS OLD!

SUN., THE KIDS WERE MAKING WISHLISTS…JESS ASKED 4 A GAMING CHAIR. ZACH REASONED 2 NOT GET HER 1, BECUZ SHE HAD A HAMOCK CHAIR IN HER ROOM. HE WENT ON, SAYING THAT EVERY1 IN THE FAMILY HAD A (“SPECIAL”) CHAIR, EXCEPT HIM–HE ADDED THAT “MOM HAS THE BEST CHAIR”! YA’ KNOW, IT’S HARD SOMETIMES 2 C SOMETHING THAT’S NESSECARY, IN THAT LIGHT, SO I’M GRATEFUL 4 MY CHILDREN’S REMINDERS! (MORE 2 ADD 2 MY “GRATITUDE LIST!”)

ALSO SUN., AS THE KIDS WERE MAKING WISHLISTS, FIA CAME UP 2 ME, & FLAT OUT SAID SHE WANTED A WHEELCHAIR. SHE’D BE THE HAPPIEST KID IF SHE COULD PLAY COMPUTER ALL DAY, BE FED, ORDER OTHERS 2 DO HER TASKS, CHOOSE WHEN 2 WALK, & SHE EVEN THINKS IT’D BE GREAT 2 JUST NOD YES/NO & SAY THINGS ONLY WHEN SHE WANTS 2! I’M GLAD MY LIFE IS SO APPEALING

LINK

THIS IS A BIG DEAL ON 1 OF MY 2 STROKE GROUPS (1 GROUP IS DEDICATED 2 THOSE WHO HAVE BEEN LOCKED IN). Dr. De Georgia WAS MY 1ST DOCTOR . Dr. De Georgia IS ON THIS LINK:
http://news.aol.com/article/ron-houben-says-he-heard-everything-for/780187

IN THE LINK, THEY MENTION LETTING OTHERS KNOW IF U CAN LIVE THAT WAY…I WOULD CAUTION HERE, BECUZ IF IT HAD BEEN EXPLAINED 2 ME PRIOR 2 MY STROKE, I HESITATE 2 THINK WHAT I WOULD’VE WANTED. THE LADY WHO DIED IN 2005–I WAS ALL 4 LETTING HER DIE, IF SHE WANTED 2…IT’S NO DIFFERENT THAN BEING ABLE 2 SLIT YOUR WRISTS. THOSE WHO R DIFFERENT SHOULD STILL HAVE THEIR OPTIONS…

BUT NOW THAT I’VE “ADAPTED” & FOUND JOY IN MY LIFE, I’VE DONE A 180. I’M GRATEFUL MY LIFE WAS SPARED, & SOOO VERY GRATEFUL 4 ANYTHING I RE-GAIN. I GUESS THOSE OF US WHO EXPERIENCE SUCH A DRAMATIC CHANGE NEED TIME 2 “ACCLIMATE” B4 MAKING A LIFE-CHANGING DECISION. PLUS, EACH DECISION IS UNIQUE, INVOLVING SO MANY FACTORS. IN ADDITION, IT IS EASIER 2 LOOK BACK, RATHER THAN 4WARD, & MAKE CLEARER JUDGEMENTS.

YOUNG WOMAN (YW)

AT CHURCH, I WAS RECENTLY ASKED 2 BE A YOUNG WOMAN (YW) INSTRUCTOR, 4 THE 1ST SUN., 4 ALL THE YW. . THIS IS MY 1ST “REAL” CALLING IN OVER 5 1/2 YRS. I CAN’T EXPLAIN ALL I FEEL, BUT I THOUGHT THESE CALLINGS WERE GONE W/MY VOICE!

THOUGH WE OWN IT, I RECENTLY TIVOED THE MOVIE “HITCH,” SO I COULD WATCH IT AT MY LEISURE. “HITCH” BEGINS W/A STATEMENT: “60% OF COMMUNICATION IS BODY LANGUAGE, 30% IS TONE, & ONLY 10% IS WORDS.” IF TRUE, WORDS PLAY LESS A PART IN TEACHING…BUT THOUGH I CAN’T BE VOCAL, I CAN STILL SIGN & TYPE—I JUST NEED 2 BE MORE SELECTIVE W/THE WORDS I CHOOSE 2 USE.

HOWEVER, W/MY FEW WORDS, I KNOW I CAN FEEL MISUNDERSTOOD, BECAUSE I WILL WRITE W/A CERTAIN TONE, WHICH IS L8R READ IN A DIFFERENT TONE, MAKING IT APPEAR FUNNIER OR MADDER THAN IT WAS INTENDED…I HEARD THIS EXACT POINT ILLUSTRATED IN AN AUDIO BOOK, AS THE AUTHOR REPEATED THE EXACT SAME PHRASE (LIKE “SHUT THE DOOR”) IN BOTH A MAD & ALSO IN AN ICKY SWEET TONE. ABSOLUTELY AMAZING HOW MUCH TONE AFFECTED THE EXACT SAME WORDS!

THOUGH I CAN’T USE TONE WELL, WE’VE TRIED CREATIVE WAYS 2 SHARE TONE (ASTERICKS IN THE SUBJECT LINE OF AN EMAIL, WARNING THAT I’M MAD, BOLDING WORDS IN ORDER 2 STRESS THEM, & SOMETIMES I COLOR CODE WORDS). THOUGH I HAVEN’T MASTERED TONE, I STILL HAVE 70% OF MY COMMUNICATION, & IF I’VE LEARNED ANYTHING, I TAKE WHAT I DO HAVE, & RUN W/IT!

TRUNK OR TREAT 2009

TRUNK OR TREAT IS OVER. I USED 2 PUT ALL MY ENERGY INTO MY KIDS COSTUMES, SO WHILE I LIKED DRESSING UP, I ONLY DID ONCE PRE-STROKE, WHILE MARRIED…BUT NOW THERE’S A WHOLE NEW FUN AREANA 2 EXPLORE–THERE’S SUCH A WEALTH OF COOL W/C COSTUMES, & ONLY 1 TIME A YEAR 2 ENJOY BEING IN A W/C, & BE MORE THAN “THE “GIRL IN THE WHEELCHAIR.”

THE GIRLS WERE TWIN ALIENS, ZACH WAS LUIGI (I THINK HIS BF SHOULD’VE BEEN MARIO), MK WAS A GHOSTBUSTER, &I WAS A FRONT-END LOADER. WHEN MY FEET RAISED, THE BUCKET WAS BOLTED 2 IT, & ALSO RAISED. MK WENT ALL OUT 4 ME, & THOUGH MK DIDN’T HAVE TIME 2 DO ALL HIS IDEAS, HE SAID AN IDEA THAT WILL TITLE MY SCRAP. PG. STAY TUNED! VIDEO IS COOLER, BUT PICS WILL HAVE 2 DO…

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