Author: Jenny

In March 2004, I suffered a severe brainstem stroke, & was "locked in" for several months". I have been married to a wonderful man, Mark ever since Dec. 1994, & we have 3 kids: Zach (1997),, Jessica (2000), & Sophie (2002). I have been blessed in so many ways by God, so I wanted to keep a blog to share my recovery, life, & answer questions.

MY MOM CAN TALK (DANG IT)

I LOVE TALKING! I’M NOT GREAT AT IT, BUT GET BY AT HOME A LOT (STRANGELY, I CAN SAY MORE, & BE LOUDER IN MY HOME).

LAST WEEK ON THURSDAY NIGHT, ALL THE KIDS WERE IN THEIR ROOMS, & WHILE THEY ALL ANSWER 2 MY BELL (HOPEFULLY–I HAVE A DOORBELL VELCROED 2 MY CHAIR, & THE # OF RINGS CALLS OUT TO CERTAIN PEOPLE), BUT I WANTED 2 USE MY WORDS. THE 1 THAT’S THE MOST EASILY UNDERSTOOD IS “SOPHIA,” SO I CALLED 4 “OPHIA,” & SHE NOTED HOW THAT’S THE 1 BAD THING THAT I CAN SAY HER NAME! LOL

THEN, THERE WAS A FEW DAYS THIS WEEK WHERE I WAS SO TIRED & SICK, THAT I COULDN’T TALK AGAIN (TALKING IS HARD WORK!) IT ACTUALLY SORTA DWINLED, UNTIL I COULDN’T TALK— BUMMER WAS, I DIDN’T EVEN KNOW I WAS SICK, UNTIL I GOT SUPER SICK! INSTEAD, I WAS BEYOND FRUSTRATED, BECUZ I HAD NO IDEA WHERE OR WHY MY VOICE WAS GONE, WHAT I’D DONE WRONG, OR HOW TO GET IT BACK (PRACTICE WASN’T HELPING ME)!

BUT LIKE MAGIC, ONCE THE ANTIBIOTICS WERE IN ME 30 HOURS, I WAS TALKING LIKE B4!

THURSDAY NIGHT, SOPH TOLD ME HER LAUNDRY WAS DONE WASHING & JUST NEEDED 2 BE FOLDED . I TOLD HER, WITH MY WORDS, SOMETHING LIKE “GO FOLD IT NOW!” SHE LOOKED AT ME WITH A “DANG IT!” EXPRESSION, & SAID, “MY MOM CAN TALK (DANG IT).” LOL NOT LIKE I WOULDN’T NORMALLY SIGN IT!

FRIDAY, I NEEDED SOME MEDICINE, & ASKED ZACH 2 GET IT. HE SAID, “IN 5 MINUTES.” SO AFTER 5 MINUTES HAD PASSED, I TOLD ZACH WITH MY WORDS, “IT’S BEEN 5 MINUTES! GO GET IT!”

EARLIER FRIDAY, I ALSO TOLD SOPH 2 “GO GET IT” WITH MY WORDS, WHEN SHE WAS TRYING 2 NOT GO GET SOMETHING, & SHE RESPONDED 2 CARA (MY CAREGIVER/ASSIssTANT) W/THE FUNNIEST RESPONSE: “SOMETIMES I LOVE THAT MOM CAN TALK, BUT SOMETIMES I HATE THAT MOM CAN TALK, & THAT I UNDERSTAND HER!” LOL

BUT WAIT! IT GETS BETTER! SATURDAY MORNING SHE AS KEDM WHY CAN U TALK?!?” I CAN ONLY THANK HER & OTHERS 4 KEEPING ME IN THEIR PRAYERS! SOMETIMES IT TAKES AWHILE, BUT THOSE PRAYERS ARE ANSWERED…BET MY KIDS WILL NOW BE MORE CAREFUL OR SPECIFIC WHAT THEY PRAY FOR! LOL

I’M BILINGUAL!

FRIDAY OUR CLEANERS WERE HERE, & THEY ALWAYS ASK HOW I AM IN SPANISH,. USUALLY, I NOD (SOMETIMES I SAY HI, AS I NOD), SMILE, & THINK “BIEN” (GOOD/FINE).

BUT THIS TIME I NOT ONLY SAID “BIEN,” BUT SHE ALSO UNDERSTOOD ME, SMILED & WAS SURPRISED TOO, & RESPONDED W/A FEW MORE SPANISH SENTENCES I UNDERSTOOD! NOT ONLY DID I SPEAK,, BUT I SPOKE SPANISH!

I HAVE NO IDEA WHERE IT CAME FROM—I HAVE HAD A HARD TIME BEING UNDERSTOOD THE REST OF FRIDAY!

SOMETIMES WHEN I’M ASKED A QUESTION, I JUST BLURT OUT A CLEAR ANSWER (WHATEVER I’M THINKING), & IF I’M ASKED 2 REPEAT WHAT I SAID, I CAN’T DO IT AGAIN, OR IT COMES OUT LESS CLEAR! CRAZY!

COOL STUFF

I’VE GOTTEN 2 THE POINT WHERE IF I WAS TALKING WELL THE PREVIOUS DAY, I WAKE UP WONDERING IF I STILL HAVE MY VOICE! LOL FOR EXAMPLE, I WAS VERY VOCAL TUES. NIGHT, & WOKE WED. MORNING , WONDERING IF I STILL “HAD IT!”

BUT THE LONGER I AM QUIET, THE HARDER IT IS 2 “START UP” AGAIN (IN ADDITION 2 BEDTIME, CHURCH IS 3 HOURS LONG, SO IT KILLS ME—IT IS 1 HOUR FOR 3 DIFFERENT MEETINGS). & I AM STILL QUIETER WHEN I’M AWAY FROM HOME…ACTUALLY, SOMETIMES I THINK I’M JUST AS LOUD, BUT WHERE I AM IS SO LOUD, IT MAKES ME SEEM QUIET (JUST LIKE HOW IN THE QUIET OF THE NIGHT, A TINY NOISE SOUNDS VERY LOUD). & IF I GET UPSET, SOMETIMES IT’S REAL HARD 2 VOCALIZE. HOWEVER, THE COOL THING IS THAT EVEN IF IT’S “GONE,” IT COMES & GOES: SEEING MY KIDS, ESP. SOPH (FIA), DRAWS IT OUT OF ME.

COOL STUFF:

MON. NIGHT, MY NEPHEW CRIED FROM HIS BABY CARRIER ON THE FLOOR…I WAS ABLE 2 POSITION MYSELF SO I COULD LEAN WAY OVER, GRAB HIS PACIFIER, & PUT HIS PACIFIER IN HIS MOUTH, ALLOWING ME 2 SOOTHE A CRYING BABY (I COULD ALSO ROCK THE BABY CARRIER WITH THE HANDLE). IT WAS A SMALL CONTRIBUTION IN MY ENORMOUS FAMILY, THAT MEANT THE WORLD 2 ME!

TUES. NIGHT I SAW A FRIEND AT CHURCH, & AS I THOUGHT IT, & WITHOUT HESITATION , THE PHRASE “HOW ARE U?” JUST “POPPED” OUT, SO CLEARLY–IT JUST SEEMED PERFECTLY NATURAL COMING OUT. THE ONLY OTHER PERSON WHO HAS HEARD ME THAT WAY, IS SOPH, WHEN I MENTIONED SINGING THE “ANNIE” SONG! & JUST LIKE THAT, I THINK IT SHOCKED HER & ME! &, I DON’T KNOW IF I CAN CONSCIOUSLY DO IT AGAIN, BUT IT MUST BE THERE, IF I DID IT ONCE!

SAT., I HAD A TERRIBLE SPEAKING DAY, BUT I WAS STILL ABLE 2 STOP THE KIDS AT OUR TABLE BY SAYING, “THAT’S ENOUGH!” & BY POINTING AT LEFTOVER PIZZA, ZACH FIGURED OUT THAT I WAS MUMBLING, “PUT THE PIZZA AWAY!” (CONTEXT CLUES, NON-VERBAL ACTIONS, & STARTING 2 SIGN THE WORD HELPS OTHERS UNDERSTAND ME!)

SUN. MORN., WHEN I WENT 2 WAKE UP THE GIRLS, AFTER SAYING “GOOD MORNING,” I TRIED SAYING, I NEED HELP.” I USUALLY WAKE THE KIDS SUN. MORN., & THIS WAS NOT A GOOD “TALKING MORNING,” SO I WASN’T SURE HOW THIS’D TURN OUT…THE GIRLS KEPT ACKNOWLEDGING ME, BUT BY THE 3RD TRY, JESS GOT WHAT I WAS SAYING, & CAME 2 HELP ME! EXCITING, SINCE I WASN’T TALKING WELL, & SHE COULDN’T SEE ME!

TALKING

LATELY, IF I TRY 2 SPEAK, IT COMES & GOES. SOMETIMES IT’S EASY, & SOMETIMES I FEEL LIKE I’M HITTING A BRICK WALL, & I CAN’T COORDINATE MY BREATH & VOCAL CHORDS.

THE SINGING THING–I WASN’T EVEN TRYING. I WAS TYPING AN EMAIL, NOT THINKING, & JUST SINGING ALONG. I SWEAR MY MUSIC THERAPIST STRETCHED MY VOCAL CHORDS EARLIER THAT DAY! I KEEP TRYING 2 DUPLICATE IT, BUT I SOUND AWFUL, & CAN’T EVEN HIT THE NOTE AGAIN! IF I HADN’T WRITTEN IT DOWN, I’D THINK THAT I WAS IMAGINING IT! LOL I GUESS THE GOOD NEWS IS THAT THIS SHOWS ME THAT IT IS ALL THERE, I JUST HAVE TO FIND IT.

LAST FRI. NIGHT, THE BOYS WERE CAMPING AT THE WARD (OUR CHURCH’S CONGREGATION) 4 THE FATHER/SON CAMPOUT, & I TRADITIONALLY HAVE A GIRLS’ NIGHT, & THE GIRLS CAN CHOOSE 2 SLEEP W/ME. JESS HAD A BIG DAY, & HAD CRASHED, SO SOPH SLEPT W/ME…SHE WOKE 2 ME PRACTICING SAYING LETTER “S,” & I SAID “SOPHIA”–NOT THE USUAL “OPHIA SHE WAS THRILLED & FLATTERED THAT MY 1ST “REAL”” WORD WAS HER NAME (I DON’T KNOW IF IT IS, BUT I FIGURE IT’S ONLY FAIR, SINCE SHE’S MY HONORARY SPEECH THERAPIST!)

SHE THEN GAVE ME A BUNCH OF “S” WORDS 2 SAY, LIKE SEE, SUE, SING…WE ENDED W/A SENTENCE: “SOPHIA, SAY SALT.” I CAN’T SAY ANY OF THESE WORDS WHEN I SIT, BUT IF I COULD JUST LEARN HOW…

I HAD TROUBLE TALKING MOST OF THE REST OFF THAT DAY, W/1 EXCEPTION: I WAS BUCKLED IN MY VAN, W/MY BACK 2 THE KIDS, WAITING 4 MK, & THE KIDS STARTED FIGHTING. USUALLY IF THIS HAPPENS, I EITHER SAY UNINTELLIGABLE NOISES, UNTIL A KID ALLOWS ME 2 TALK, OR I JUST SIT THERE. THIS TIME I SAID, “BE NICE!”, WHICH SOPHIA UNDERSTOOD, & L8R I SAID, “NO MORE TALKING!”, WHICH JESS UNDERSTOOD, & I ACTUALLY ENDED A FIGHT! IT FELT SO GOOD!

YESTERDAY, I LEARNED HOW 2 USE 1 OF MY SPEECH PROGRAMS 2 RECORD ME SAYING EACH WORD ALONE & MAKE A SENTENCE (OR I COULD DO PHRASES 2 MAKE A PHARAGRAPH, BUT FOR SOME REASON, SINGLE WORDS ARE CLEARER). I WAS NEVER SUPPOSED 2 TALK AGAIN, SO I HAD FUN FREAKING OUT SOME FAMILY, E-MAILING AUDIO MESSAGES! (TOO BAD I CAN’T LAY DOWN AT MY COMPUTER, & SAY “SOPHIA, SAY SALT!”, & FIGURE OUT HOW 2 POST IT ON HERE! LOL)

TOMORROW

I USED 2 SING ALL THE TIME, & I TOOK YEARS OF VOICE LESSONS. I WAS EVEN IN THE ALL-STATE HS CHOIR, TRAVELLING W/THE TOP PERCENT 2 SING IN THE EUROPEAN CATHEDRALS, & LATER I WAS IN THE BYU WOMEN’S CHORUS, ETC.

MY GIRLS HAVE A 2-WEEK SUMMER CAMP 4 THE MUSICAL ANNIE COMING UP, SO THEY PLAY THE MUSIC A LOT & SING ALONG…THE OTHER DAY, I WAS “SINGING” 2, & AT THE END OF THE SONG “TOMORROW” I SHOCKED MYSELF & SOPH, BY BEAUTIFULLY MATCHING THE HIGH PITCH & SAYING THE LAST WORD, “AWAY.” IT WAS CLEAR AS A BELL, & EXCITING! SOPH WAS SO SHOCKED, FLIPPED 2 FACE ME, & YELLED, “MOM!”

I KEEP TRYING 2 DO IT AGAIN, BUT I CAN’T DO IT!