Jenny and I celebrated our 10th wedding anniversary yesterday. We had a wonderful time going out and seeing the new Phantom of the Opera movie (we saw the broadway version on our honeymoon). We went to one of our favorite places to eat and had a nice dinner together and went home and shared chocolate fondue with our kids. My favorite part was at speech therapy earlier during the day when Jenny was able to verbalize an recognizable, “I love you”. It was truely her first real words. It was not perfect, but it was real and udible. She struggles with making the words in her head come to her mouth, so this was something huge. She was able to do it again later that evening, but not as easy to discern. I am so proud of her!
Jenny also got her power chair! She is so proud and loves the extra little bits of independence that it affords. At first, I found her occassionally staring at an empty chair where a child once sat. She admitted that she has been unable to move independently for so long that she forgets that she can move. She was always complaining that I stick her in front of the tv too much (she is not much of a tv watcher). Howerever, I felt vindicated because the first thing she did was drive to the tv and flip through the channels. I made sure to tease her about it. ALSO, she got a new arm support which aids her own strength in her right hand by helping her do things like feed herself and some personal grooming. We tried things out by letting her be in control of her own bowl of popcorn. It was not pretty, but she worked until all that was in the bowl was in, or made an attempt to get in, her mouth. Things have truley been wonderful for Jenny and the family. Of course, we have all had a turn on the power chair (except Sophia- because it is her incentive for potty training, and she has not done too well).