The past few days have been wonderful as Jenny and I have had more time alone and with the kids. I am impressed that she has been able to support herself in a sitting position (legs crossed and arms supporting her upper body) while on the floor. Like many other things, she could not do it this well just a short while ago. Jenny has enjoyed being able to go to the back to school nights for Zach and Jessie, but it is with mixed emotions. She has always enjoyed being a parent volunteer at school (when not a teacher herself) and it is hard to not be as involved as she would like to be. She also struggles with the fact that she has little control of her emotions, so she will either laugh or cry without the ability to control it. I know she is self conscious about it and I will see her laugh at something (that most people would chuckle about in their head) and then she will turn to tears because she knows it is not a situationally appropriate emotion.
We had a visit by my Aunt Janice and Uncle Ron, from Utah. It was great to see them and these visits are always a positive thing for Jenny’s morale. Anyhow, I guess the kids have been surrounded with so many relatives in the past few months that are new to them, or have not seen in a while that they simply just catigorize them in three groups. Children are in the cousin group. Adults in our age range are aunts and uncles, and those who are my parents age are grandparents. Ron and Janice were called grandma and grampa. Every now and then, children of our friends from out of town end up being lumped into the cousin category as well. Either way, the kids love their big family.
For the first time, Jenny may have had a good day that she admitted to. Usually, I need to be careful how I ask her things. If I ask if she feels good today, she will reply, “No”. If I ask if she is having a normal day she will usually say yes. I am not sure what a good day would be defined as, but I think it would involve speech and more voluntary movement. As for her good day, she spelled out, “Thanks for today” which the day was a good day. We had a great family night activity playing our favorite “bowling” game and Jenny ate a bunch of good foods like pizza, root beer and brownies. Obvioulsy, the food was cut small for her, but it tasted good. I also did not make her work too hard in therapies, and she had new movements in her left leg. We snuggled on the couch for a while and just enjoyed being together as a family. I’ll take “thanks for today” as a good sign.