Jenny has shown much improvement and seems to have dropped her temp and is less congested. Her condition was associated with a UTI as well. These are the things we were told we would have to address on a frequent basis throughout Jenny’s life. Jenny has a new trache that has irritated her throat and made itdifficult to swallow. She is unable to trun her head to the right without the trache causing discomfort or coughing. Everyone we tell about this seems to think it is okay, but I feel the trache does more harm than good. Jenny was hoping to have it out prior to coming home. I’m not sure how her discharge will work out due to her current health status.
She has experineced more spasms due to the discomfort and coughing. All it takes is for a cough or strong feelings of emotion to send her into painful, uncontrolable limb etension/spasms where Jenny’s head, arms, and legs twist and stretch in uncommon ways. It is difficult to discuss some topics with or near her without causing emotions that lead to spasms. I fear what will happen once we return to more activity in the community since the initial experiences will undoubtedly be emotional for her.
As with anyone who visits with Jenny, especially for the first encounter, I would encourge people to greet her in a more upbeat fashion and let Jenny know of their love and that they miss her without bearing their soul and causing more emotional turmoil than needed. Hopefully, there will be a day when these spasms will cease and be more controllable. Interestingly enough, even though Jenny has been in more pain and discomfort this last week, she has beeen more concerned with others. She completed the lengthy processing of spelling out her desire for me to start putting together Zach’s birthday party in July (which waiting this long to start is late for Jenny). She had bought all the party supplies months ago on a great sale, so I guess she is not starting too late. I had to promise that I would be anal about planning before she felt confident about leaving the topic alone so I could return to figuring out what I could do to make her feel better.