It looks like Jenny may be coming home as soon as next week! It is great, yet scary. We obviously do not have the home set up like we want to with renovations and redecorating. They can get the basics in for us to use for a while, but I’m not sure what things will be like at home. Jenny wants to be home, and I bet once she gets a real nights sleep, her strength will improve. I doubt she sleeps more than a couple hours of sleep each night. Jenny seems to be getting more control of her upper body enough to support her weight when slightly supported from behind. Her head still turns to the left, especially when she coughs, which triggers a whole chain reaction of painful spasms in her body. She lets us know that her trach bothers her when her head is turned to the right. A respiratory doc has been asked to look her over to see if the trach can come out, but he has not been up to see her.
Today, Jenny came up the full way on a tilt table that helps strech out her tendons to her foot that are shrinking due to lack of use. She grits through the pain so very well, but sometimes her face tightens up so bad that we fail to know what her blinks are saying. It also interferes with a speaking board that uses a muscle sensor that picks up deliberate blinks. She is getting better, but a laugh or cry will throw it all off.