Jenny has had 3 very emotional days this week that have made it difficult to relax her muscles. Whe she gets emotional, feels pain, is anxious, or feels discomfort- her body will become painfully tense and her joints become unbendable. Her therapies have been hindered and she had to cancell speech therapy due to being overly emotional (I later completed the eating exercises with her that she missed). It has taken constant repositioning and hours of hugging (which I do not mind at all) to get her to calm down. She becomes relaxed if I spoon with her in bed while she listens to love songs. Not a bad therapy if I say so myself.
Her eating is so much better. I gauge her progress by her ability to eat Jello. Two weeks ago she could not keep it in her mouth. Last week, she had some success keeping a few bites in. Yesterday, Jenny wolfed down a bowl in no time. The hospital puree foods are a bit under her level and I have asked permission to give Jenny soft, yet substantial foods. I have also began giving Jenny showers, which she loves. She is only supposed to get 3 a week, but she requests them daily now.