WELCOME TO MY NEWLY REDESIGNED SITE!

THIS IS MY FIRST POST IN MONTHS.

HERE IS WHAT YOU MISSED SINCE I’VE BEEN GONE:

I DISCOVERED I HAVE PBA, WHICH EXPLAINS WHY I CAN’T CONTROL MY LAUGHING/CRYING, & IF I HAVE AN EMOTION, IT’S AMPLIFIED. TEARS/LAUGHTER R NOT ALWAYS PROPORTIONAL 2 HOW I FEEL. PBA IS A HUGE PART OF MY DAILY LIFE & INTERFERES W/SOOO MUCH! PEOPLE THINK THEY UNDERSTAND IT, BUT EVEN I CAN’T UNDERSTAND IT!

GUESS WHAT I DID THAT WAS SO COOL! I WAS LOOKING AT A BOOK JESSIE MADE AT SCHOOL ON THE ELEVATOR. IT DROPPED, BUT THE ELVATOR WALL MADE IT STOP AT MY FOOT, & I BENT OVER & PICKED IT UP! I WAS SOOO PROUD! I HAVE STARTED BENDING ON THE ELEVATOR-4 SOME REASON IT’S EASIER-2 FIX THE BOTTOMS OF MY CAPRIS & MY SOCKS…

I BEGAN MUSIC THERAPY, & WAS ASKED:

How is therapy?

WELL, I SAID A CLEAR “HI” 2 MY MOM. I ALWAYS TRY, BUT 4 THE 1ST TIME IT WAS RECOGNIZED & IDENTIFIED, THANKS 2 MUSIC THERAPY. I CAN’T SAY IT ON COMMAND, BUT SOMETIMES THAT & “UH-HUH” POP OUT. IT’S EXCITING, & I TRY NOT 2 CRY FROM EXCITEMENT!

SUNDAY WHEN I WOKE, IT FELT LIKE I HAD EYE BOOGERS OR SAND IN MY LEFT EYE, BUT I WAS 2 WEAK 2 REACH MY EYE. MARK & A FRIEND AT CHURCH ASKED ME IF I WAS OK-MY EYE WAS ALL RED. I FELT FINE, BUT AT THE EBD OF CHURCH (3 HOURS), I WAS STRUGGLING 2 KEEP MY LEFT EYE OPEN. MARK TOOK OUT MY CONTACTS, & I WAS REMINDED WHY, 4 MANY REASONS, I HATE GLASSES SO MUCH. BY THE TIME MY FRIEND VISITED, I COULD BARE;Y OPEN MY EYE, SO EVEN THOUGH I USUALLY REFUSED OTHERS PRESCRIPTION MEDS & MARK HAD GIVEN ME ALLERGY MEDS (WHICH I FELT WAS PART OF MY PROB.), SOMETHING MORE WAS WRONG. AFTER MY FRIEND REASSURED ME HER PRESCRIPTION MEDS 4 PINK EYE WAS CLEAN, I HAD HER GIVE ME SOME. IT FELT A LITTLE BETTER, BUT A COUPLE HOURS LATER AT MY PARENT’S HOUSE, IT KILLED 2 OPEN MY EYE. SINCE I COULDN’T OPEN 1 EYE ALONE, THERE I SAT BY THE FRONT DOOR, UNMOVING & EYES CLOSED.

WHEN WE WENT HOME EARLY, I HAD 2 SOMEHOW TYPE & SEND SOME EMAILS BY MON. (I HAVE 20+ EMAILS-SOME FROM 12/20 & ABOUT 5 JOURNAL ENTRIES W/REMINDER NOTES 2 FILL IN LATER, SO WHILE I’M SWAMPED, THESE HAD 2 BE DONE THAT NIGHT) SO AFTER SOME MEDS, I LET MY EYE REST SOME, THEN MANAGED 2 OPEN MY RT. EYE & SLOWLY GO FROM MY ROOM, DOWN AN ELEVATOR (WHICH I CAN DO ALONE NOW!), 2 MY COMP. & TYPE THOSE EMAILS. ALL WAS DONE W/MY LEFT EYE CLOSED & WATERING, MY RT. EYE OPEN. IT MADE ME SO SICK 2 MY TUMMY, I WAS SURE I WOULD THROW-UP & WROTE A HURRIED LAST EMAIL, THEN WENT 2 BED AROUND 9:40. I DIDN’T SLEEP AT ALL. IT HURT SO BAD-MY EYE WATERED & IT FELT LIKE DAGGERS IN MY EYE. U WOULD THINK THIS WAS A CAKEWALK AFTER MY GUTS WERE PULLED OUT REMOVING THE FEEDING TUBE & BEING AWAKE WHEN I WAS CUT OPEN 4 A SURGERY, BUT THE PAIN WAS DIFF.

MON. I SAW A DOCTOR, & PAIN IS AGAIN BEARABLE & I CAN OPEN MY EYE SOME, THOUGH IT IS HARD 2 SEE RT. & TYPING/READING IS SLOWER.