Author: jenannlynn

In March 2004, I suffered a severe brainstem stroke, & was "locked in" for several months". I have been married to a wonderful man, Mark ever since 1994, & we have 3 kids: Zach, Jessie, & Sophie. I have been blessed in so many ways by God, so I wanted to keep a blog to share my recovery, life, & answer questions.

ZACH IS 10 YRS. OLD

ZACH IS 10 YRS. OLD JULY 12. WHEN HE SAW MY WEBSITE, HE REQUESTED I MAKE & POST A SCRAPBOOK PG. OF 1 OF HIS B-DAYS. I AM NOT SURE WHEN I'LL DO THIS YEAR (THOUGH I'M READY), SO SOMETIME I'LL POST HIS 9TH B-DAY (I REALLY LOVED HIS MONKEY CAKE PLAYING GAMEBOY & THE MONKEY CUPCAKES THE KIDS MADE).

SO, AM I OLD ENOUGH 2 HAVE A KID IN THE DOUBLE DIGITS? I DID, AFTERALL, STROKE AT 30 YRS. OLD—DOESN'T THAT QUALIFY ME AS OLD?

HOWEVER, MY GENES MAKE ME APPEAR YOUNGER THAN I AM: BEING SHORT DOESN’T HELP, BUT WHEN I WAS NEWLY MARRIED, I LOOKED 12 YEARS OLD—I RECALL GOING 2 A CHURCH CAMP, SHORTLY AFTER MARRYING, AT 21, & I LOOKED SO MUCH (W/O MAK-UP) LIKE 1 OF MY 12 YYR. OLD GIRLS, I HAD 2 PROVE I WAS THHEIR LEADER BY SHOWING MY WEDDING RING! AT 30, JUST B4 MY STROKE,, I WAS THOUGHT TO BE A BABYSITTER FOR ZACH, JESS & SOPH, BECAUSE SOME1 THOUGHT THAT I LOOKED TOO YOUNG TO BE THE MOM!

VOCALS

I'VE ALSO BEEN MORE VOCAL LATELY (POOR MARK, AS HE WELL KNOWS, I'M MORE VOCAL LYING DOWN IN BED—WHERE I HAVE LESS PRESSURE ON MY STOMACH MUSCLES 2 TAKE THE REQUIRED BREATH). I ALSO HAVE A HARDER TIME SAYING SOMETHING IF I TRY 2 SAY IT, BUT THE OPPOSITE IS ALSO TRUE. (REMEMBER, I WAKE BETWEEN 4-6 AM & TRY 2 QUIETLY LAY THERE—& EVEN SOME1 WHO CAN'T SPEAK, IRONICALLY, I CAN BE LOUD–& THE QUIETER I TRY 2 B, THE LOUDER I AM!)

WHEN I SPEAK, SOMETIMES IT'S HARD 2 RECOGNIZE, SINCE I MOSTLY USE VOWELS, BUT HERE R A FEW NEW THINGS I'VE SAID THIS WEEK: AMEN (A-EN), LOTS ,ORE OF "UH-HUH'S," MOVE (OVE), ,"ETC. I OFTEN SAY I LOVE U, (THIS COMES SOMETIMES AS I SIGN IT—MY KIDS KNOW THE SLURRED "I O U" WELL), THANK U (THIS COMES SOMETIMES AS I SIGN IT), HI (I), BYE (IE), FIA (IA), MARK (MA), DONE (ONE, BUT SOUNDS LIKE A GRUNT)— I HAVE BEEN SAYING "OW" 4 A WHILE. (U'D BE SHOCKED HOW MUCH MORE THINGS HURT WHEN U CAN'T SAY "OW!")

I RECALL BEING JEALOUS OF THOSE WHO SIGN BECAUSE THEY COULD GRUNT 2 GET ATTENTION. SOMETIMES I CAN NOW DO IT, 2. IT'S WONDERFUL, SINCE MY HAND IS RARELY NOTICED. I HAVE A SPEAKING PROGRAM ON A LAPTOP, BUT HARDLY USE IT. THE KEYBOARD IS GREY W/WHITE LETTERS–HARD 2 C (NOT ENOUGH CONTRAST), I TYPE LABORIOUSLY SLOW, & HATE MOVING W/IT BECAUSE THE LAPTOP FEELS LIKE IT WILL FALL. STILL, EVEN THAT HAS 2 BE HANDED 2 U &, 4 ME, B SET UP W/A KEYGAURD (WHICH IS ESSENTIALLY A PIECE OF PLASTIC SO MY HAND CAN REST WHILE I TYPE & NOT PUSH KEYS–IT HAS HOLES DRILLED FOR KEYS. )

I KNOW IT'S OFTEN SAID THAT U'LL NEVER GET MY SPEAKING VOICE BACK IF I DIDN’T USE IT. LOOK AT NEW BABIES. WHAT ISN'T SAID IS U'UR (YOUR) VOICE IS WEIRD AND U'RE EFFORTS R UNRECOGNIZABLE (HOWEVER, IF I RARELY SPEAK, THE WORD IS RECOGNIZED BY CONTEXT CLUES, MOTIVATING ME 2 KEEP TRYING 2 SAYING IT). IT'S ALSO FRUSTRATING 2 NOT B ABLE 2 MAKE THE WORDS U WANT 2. MAYBE I'M COMFORTABLE, IN AN ODD WAY, SPELLING & KNOWING MY WORDS WILL B FIGURED OUT, BUT I DO TRY 2 SAY WORDS I'VE HAD SUCCESS WITH.

MARK TOLD ME 2 “JUST TALK” (BABBLE). BUT, NOT ONLY DO I NEED SOMETHING 2 BABBLE ABOUT, BUT IF I “JUST TALK” PEOPLE FREAK & ASK ME WHAT I NEED, & THEN I HAVE 2 DEAL W/THE HASSLE 2 EXPLAIN I'M BABBLING. I KNOW I NEED 2 DO MORE, SO I “SING” & UPLOADED SONGS 2 MY COMP. SO I CAN PRACTICE “SINGING” WHEN I’M HOME ALONE.

HEALTH

IT HAS BEEN AN ODD WEEK.

JULY 4TH, I LEFT MY "BUBBLE" (MY CRAFT RM./COMP.), & WAS OUTSIDE 4 AN HOUR. AS A RESULT, MY ALLERGIES SEEMED 2 ACT UP. THE NEXT DAY, THURS.,I HAD A SORE THROAT, THAT HURT 2 SWALLOW (WHICH REALLY STINKS, BECAUSE I EAT BY SWALLOWING SMALL CHUNKS OF FOOD). I WAS ALSO TIRED. BUT I WAS A LITTLE BETTER FRI.

HOWEVER, MAYBE I WAS ALREADY FIGHTING ILLNESS. THE SAT. B4 JULY 4, I WAS SUDDENLY NAUSEOUS & COULDN'T SWALLOW FOR 1 HR. IT WAS REALLY WEIRD. I CAME CLOSE 2 PUUKING, BUT WILLED MYSELF NOT 2—I HAVE PUKED ONCE SINCE MY STROKE, & IT WAS A HORRIBLE MESS! WE WERE HAVING A HAPPY FAM. DAY, HEADING INTO THE MALL, SO I DIDN'T WANT IT RUINED & THERE WAS NOTHING 2 CLEAN ME UP!

MON. WAS SCARY 4 A FEW HRS., 2. AROUND 2, I WAS SUDDENLY REALLY TIRED, WEAK (I BARELY HAD ENOUGH STRENGTH 2 TYPE 1 LETTER), HAD A SM. HEADACHE, & WAS SUPER TIRED (I ACTUALLY WANTED A NAP—WHICH I RARELY EVER DO!). MY CAREGIVER, CARA, READ EMAILS 2 ME, (SO I DID LITTLE) & CARA GAVE ME APPLESAUCE (WHICH GREATLY—I WAS ABLE 2 TYPE AGAIN, & TYPED MY LAST POST).

ME BEING SICK IS WEIRD., SINCE I'M SO GREATLY AFFECTED BY SOMETHING AS SIMPLE AS A SORE THROAT. I UNDERSTAND WHY SO MANY DIE FROM ILLNESS AFTER A STROKE: THEY CAN'T FIGHT IT (IT'S COMMON 4 ME 2 FEEL THE NEED 2 COUGH FOR 30 MIN,) BUT I ALSO FEEL LIKE A REG. PERSON IN A W/C & WANT NO SPECIAL TREATMENT. "IF U CAN BE AROUND _____ W/A COUGH, CAN'T U BE AROUND ME?" BUT MAYBE I'M CRAZY! WHEN I'M FINE, I FEEL GUILTY BEING CARED 4 BY A SICK CAREGIVER, THOUGH, AS THEY NEED A BREAK!

KNOW WHAT’S CRAZY?

KNOW WHAT'S CRAZY? I LEARNED THAT SINCE I HAD A STROKE (LET'S SAY A BRAIN INJURY), I'M LACKING IN SOME SKILLS, SINCE THE STROKE WIPED OUT IN PART OF MY BRAIN. 4 INSTANCE, I HAVE TROUBLE VERBALLY (THROUGH ASL) EXPLAING THOUGHTS AT TIMES, BUT CAN TYPE IT FINE. THAT LINK IS MISSING SOMETIMES. LUCKILY, I'VE ALWAYS BEEN A JOURNAL WRITER—I SO MISSED IT EARLY ON & OFTEN THINK HOW BAD IT'D BE IF I SPENT THE LAST 3 YEARS BLINK-SPELLING. (AS I DID 4 MONTHS POST STROKE).

OR I CAN C SOMETHING & GET THE OVERALL THEME, YET NOT UNDERSTAND. THAT LINK IS MISSING . I'VE ALWAYS HAD THIS PROBLEM 2 A DEGREE, SO I BLAMED IT ON MY VISION (DOUBLE VISION, HARD 2 C DARKER STUFF, MISSING STUFF BECAUSE I CAN'T STAY FOCUSED & HAVE 2 CONSTANTLY REMIND MYSELF 2 SCAN 2 THE RT., ETC.) I THINK THIS IS DEFINITELY PART OF IT, BUT AMONG THE OBVIOUS PHYSICAL NEEDS, IT CAN'T BE FORGOTTEN THAT I HAVE COGNETIVE NEEDS, WHICH CREATIVEKY NEED ATTENTION. I HUST LEARNED THAT THE UNIVERSITY OF ALABAMA HAS FREE ONLINE HELP FOR THESE PROBLEMS. I'D ASSUME THIS IS MORE SERIOUS 4 ME THAN 4 THE AVERAGE PERSON, SINCE I CAN'T EVEN DO SIMPLE TASKS, LIKE DRESS MYSELF.

HERE'S WHAT'S CRAZY: READING EMAIKS, TYPING, C-ING THE LITTLE "CLOSE" BOX ON THE COMP., SCRAPPING, & EVEN COMPUTER GAMES (SOLITAIRE WAS MENTIONED AT THE UNIVERSITY OF ALABAMA) HELP ME COGNITIVELY! I'M NOT 1 TO PLAY A COMPUTER GAME, BUT GUESS I SHOULD SOMETIMES MAKE TIME. 🙂

WEBSITE

ZACH & JESSIE DISCOVERED I HAVE A WEBSITE.I SHOWED THEM MY SCRAPBOOK PGS. SOME (LIKE HARRY POTTER) EMBARRASED THEM. OTHERS (BASKETBALL & TE EASY BAKE OVEN) THEY WERE DELIGHTED 2 C POSTED 2 THE WORLD 🙂 ZACH WISHES HE HAD A BLOG. WOULDN'T SURPRISE ME IF HE DID IN A FEW YEARS— IN THE MEANTIME, I TOLD THEEM THEY COUKD WRITE ON MINE ANYTIME, BUT DOUBT THEY UNDERSTOOD—WE'LL C!