Author: Jenny

In March 2004, I suffered a severe brainstem stroke, & was "locked in" for several months". I have been married to a wonderful man, Mark ever since Dec. 1994, & we have 3 kids: Zach (1997),, Jessica (2000), & Sophie (2002). I have been blessed in so many ways by God, so I wanted to keep a blog to share my recovery, life, & answer questions.

WANTED 2 SHARE

BIG ACCOMPLISHMENT:

IN SPEECH THERAPY, I’M DOING A RATHER INTENSE PROGRAM 2 BUILD UP MY BREATH SUPPORT. I PRACTICE SPEECH EXERCISES 4 DAYS A WEEK, & TWICE A DAY FOR 4 WEEKS. IN THE EXERCISES, I SAY “AAAH”, DO VOCAL SLIDES, SAY SOME “FUNCTIONAL PHRASES”, SAY WORDS, & MAKE A GOAL (LIKE I DECIDE 2 SAY HI BACK 2 ANY1 WHO SAYS IT 2 ME).. I KEEP EVERYTHING ORGANIZED 4 PRACTICE IN A “SPEECH BINDER.”

HOWEVER, I SEEM 2 SUFFER FROM SOME “STAGE FRIGHT”, SO IT’S EXTRA HARD 2 SAY THINGS I KNOW I CAN SAY WHEN I’M OUT & ABOUT. BUT AT HOME, I HAVE “TALKING” DAYS. I STICK MOSTLY TO SINGLE WORDS (LIKE YES, NO, HI, BYE, OR MY FAVORITE: WHATEVER!). OCCASIONALLY I DO SHORT PHRASES (3-5 WORDS), BUT IT’S SO FUN 2 TRY LONGER, TOO! I’M NOT CLEAR, BUT IF MY FAMILY UNDERSTANDS, I’M TICKLED WHEN THEY DO UNDERSTAND & RESPOND. (I’M EASY 2 AMUSE! LOL)

MY PHILOSOPHY IS 2 SAY ANYTHING I’D SIGN (W/IN REASON!). I MAY LUCK OUT, BE UNDERSTOOD, & NOT NEED 2 SIGN! THOUGH MY FAVORITE IS WHEN I THROW OUT SOMETHING I THINK, BUT NEVER SIGN, AM UNDERSTOOD, & ANSWERED (LIKE IF I OVER HEAR SOMETHING, & DON’T UNDERSTAND, I MAY THINK , “WHAT?”, BUT IT’S 2 CONFUSING 2 ASK, & I DON’T REALLY NEED 2 KNOW, SO I LEAVE THE QUESTION IN MY HEAD. OR I DON’T BOTHER SHARING COMMENTS LIKE “YES U COULD” OR SHARING COMMENTS WHERE I’M JUST BEING SILLY –THE FUNNY MOMENT IS OVER B4 I FINISH SIGNING IT, SO WHY BOTHER SIGNING IT? BUT SOMETIMES NOW, I THROW IT OUT, & IF I’M HEARD & UNDERSTOOD, VERSUS BEING IGNORED, OR KEEPING IT IN MY HEAD, IT’S A BONUS, & EXCITING!).

ANYWAY, IN PRACTICE, MY LONGEST FUNCTIONAL PHRASE HAS 6 WORDS (“PUT LEFT FOOT ON FOOT REST”), & I USUALLY NEED 2 BREATHS 2 SAY IT. MY GOAL WAS TO USE 1 BREATH TO SAY IT, & TUESDAY MORNING I DID IT!

I ALSO HAD A GOOD LAUGH: A FUNCTIONAL PHRASE WAS ADDED 2 THE KEYRING I USE 4 SPEECH PRACTICE. IT READ: “JESS ROCKS”. (GUESS WHO ADDED THAT 2 MY LIST OF FUNCTIONAL PHRASES 2 SAY?) I LAUGHED SO HARD WHEN I FOUND IT–IT WAS LAMINATED & EVERYTHING, 2 LOOK LIKE THE OTHERS! U’D NEVER KNOW IT WAS ADDED, IF THE KEYRING WAS NEW 2 U!

THE BEST PART WAS HOW UNEXPECTED & QUIET IT WAS! & I BET IT’S BEEN THERE A WHILE, BECAUSE JESS HELPED ME PRACTICE THURS. NIGHT (& REQUESTED THAT PHRASE EXACTLY WHEN WE GOT 2 THE PLACE WHERE THE NEW “JESS ROCKS” CARD IS NOW), THEN I TOOK THE WEEKEND “OFF”, & I DID MY MONDAY PRACTICES W/O MY SPEECH BINDER , SO TUESDAY MORNING WASMY 1ST CHANCE 2 C IT, SINCE THURSDAY NIGHT, WHEN SHE HELPED ME! LOL

VACATION


I JUST RETURNED FROM THE 1ST FUN VACATION I CAN REMEMBER IN THE LAST 6.5 YEARS! WE STARTED THE WEEK AT UNIVERSAL. THERE, MK CARRIED ME 2 TRANSFER ME 2 A FEW RIDES. LONG STORY SHORT, L8R THAT WEEK, WE WENT 2 DISNEY, & AS THE WEEK PROGRESSED, I WENT ON MORE RIDES. THE 1ST FAST RIDE I DID WAS FAST TRACK (A HIGH SPEED ROLLARCOASTER W/SUDDEN STARTS & STOPS). I SERIOUSLY THOUGHT MK WAS KIDDING WHEN HE OFFERED 2 TRANSFER ME ONTO THAT! I THOUGHT MK & I WERE CRAZY 2 TRY–I KNOW THERE’S A DISNEY RIDE I NOW HATE, BECUZ IT TOSSES ME EVERYWHERE–BUT I STAY ALONE IN MY WHEELCHAIR, INSTEAD OF BEING HELD IN PLACE FIRMLY BY MK. STILL, I NEVER EVER IMAGINED ROLLER COASTERS! I WAS SURE THAT PART OF MY LIFE WAS OVER!

BY THE LAST NIGHT, I DID TOWER OF TERROR (A FREE FALL RIDE), & AREOSMITH’S ROCKIN’ ROLLERCOASTER (SUPER FAST, & WENT UPSIDE-DOWN TWICE) I WASN’T SURE IF I WAS EXCITED OR SCARED ON THE LATER–I SAT ALONE. I KNEW IT’D TEST MY NEW CORE MUSCLES & MY NECK MUSCLES. MK CINCHED ME IN SUPER TIGHT, & I DID AMAZINGLY WELL–WE EVEN GOT 2 GO TWICE!

above ARE PICTURES 2 PROVE I WENT…

Even better, what are real life examples to go with it?

REGARDING WHISPERINGYELLING, & INSTEAD OF “I WISH…” OR “I CAN’T…”, I THINK ABOUT THINGS LIKE THIS:
THIS YEAR, I WAS AGAIN THE ANGEL AT OUR WARD CHRISTMAS PARTY. I HAD 2 PARTS, SO BOTH GIRLS HELPED. AT THE END, WE STOOD IN THE NATIVITY SEEN. THE GIRLS WERE GOOFING OFF, & I COULD DISCIPLINE THEM ON STAGE. IT’S GREAT AT CHURCH MEETINGS 2!
& I HAVE GONE 2 EVENTS 4 A KID ACROSS A ROOM. WHILE I CAN’T YELL, I CAN SIGN, WHICH CAN BE BETTER, SINCE IT’S NOT DISRUPTIVE!

Given your condition, what things are you super grateful for?

THERE IS NO 1 THING—IT CHANGES DAY TO DAY, DEPENDING ON MY CIRCUMSTANCES. THAT’S WHY IT WAS SO GREAT TO WRITE A LIST OF MY BLESSINGS. IT REMINDS ME OF WHAT I’VE 4GOTTEN (YOU CAN SEARCH 4 MY GRATITUDE POST IN NOV. 2010, 2 EXPLAIN IT). THE LIST’S CONCEPT IS NOTHING NEW:“When you start lookin’ around for something good to take the place of the bad, as a general rule you can find it. ~From the movie Old Yeller
4 EX., ONCE UPON A TIME, I COULDN’T SCRATCH ANY ITCHES, & WHILE I STILL CAN’T REACH PLACES LIKE MY RIGHT WRIST, I CAN MANEUVER SO WATER IN MY SHOWER HITS IT AT A GOOD ANGLE, OR THE JOYSTICK ON MY WHEELCHAIR SCRATCHES IT! IT’S GOOD 2 HAVE THOSE REMINDERS, BUT IF I HADN’T STARTED OUT “LOCKED IN”, I WOULDN’T KNOW THAT WAS AN ISSUE 2 FEEL GRATITUDE 4!