COMMON MIS-CONCEPTIONS

I WILL BE GONE THE 1ST WEEK OF OCT—WE (MARK & I) R GOING 2 AN INTERNATIONAL DOCTERS CONFERENCE IN OHIO 2 SPEAK ON OCT. 5, AS MY 1ST STROKE DR. ASKED ME 2 "SPEAK." MARK IS KIND ENOUGH 2 BE TRANSLATING & DRIVING 22 HRS., & MAY MAKE A 4 HR. DETOUR 2 INDIANA, WHERE WE MOVED FROM. I'VE BEEN TYPING RESPONSES 2 SOME QUES. I MAY BE ASKED, SO I CAN'T FIND TIME 2 TYPE AN ENTRY, SO HERE'S A VERY UPDATED OLD POST:
I HAVE NOTIICED, OVER THE YRS., SOME COMMON MIS-CONCEPTIONS:
• IT'S WORTHLESS 2 ACKNOWLEDGE ME. I'M A PERSON 2! ACKNOWLEDGE I EXIST. U WOULDN'T LIKE IT IF U TOOK YOUR SPOUSE SOMEWHERE & PEOPLE TALKED PAST U TO THEM & DIDN'T SHAKE YOUR HAND!
• U NEED 2 KNOW ASL 2 TALK 2 ME. BUT IF U KNOW ASL, DON'T SIGN 2 ME-I CAN HEAR & HAVE DOUBLE VISION, SO IF I DON'T ANSWER, IT MAY BE BECAUSE IT'S HARD 2 C WELL! IF U DO NOT KNOW ASL, II CAN NOD YES/NO, SHRUG MY' SHOULDER 4 'MAYBE,' WAVE MY HAND 4 'SORTA' OR 'KINDA.'
• CING MY HAND MOVE, DOESN'T ALWAYS MEAN I'M TALKING-WHAT IF I ITCH?
• IF U ASK A # QUES., EXPECT A # ANSWER. #1-5 R EASY. THEY LOOK IT. I HATE SHOWING '4′ WHEN A # QUES. IS ASKED, HAVE SOME1 GUESS AN ASL 'B,' I SAY NO, SO ANOTHER LETTER IS GUESSED, SO SINCE A LETTER IS EXPECTED, I SPELL 'FOUR.'
• I AM INCAPABLE OF MANY THINGS. U'D BE SURPRISED WHAT I CAN DO, & AS MY KIDS GROW UP, I CAN DO MORE. IT CAN BE A NICE BREAK WHEN MY CAREGIVER WAITS ON ME HAND & FOOT. HOWEVER, MARK HAS A LIFE–& SO I CAN BE ALONE. THAT CAUSEES ME 2 CHALLLENGE MYSELF & BE CREATIVE. 4 EX., MARK WAS IN THE ROOM W/ME,T THOUGH I COULD QUICKLY GET MARK'S ATTENTION & HAVE AN EASIER TIME, I HAVE DECIDED 2 TAKE ADVANTAGE OF BEING ALONE: I WAS TIRED OF WAITING 2 C SOME CDS, SO I LEARNED 2 DO IT MYSELF! ANOTHER TIME, I LEARNED 2 USE MY COMP. KEYBOARD AS A WEIGHT, 2 GET KLEENEX OUT 2 WIPE MY NOSE. IT'S TONS FASTER 2 CLOSE A CD DRAWER ON MY COMP., SWITCH A LT. SWITCH, OR OPEN MY ELEVATOR DOOR IF SOME1 ELSE DOES IT-SOMETIMES MARK DOES. BUT I LIKE 2 TRY SOMETIMES -THESE R THINGS I CAN DO & OTHER THINGS I ONLY LEARN I CAN DO BY CHALLENGING MYSELF.
• I CAN'T BE MOM. AS THE KIDS GET OLDER, THIS CHANGES. ZACH READS MY ASL REAL WELL (EVEN JESS DOES WELL ENOUGH 2 GET BY, IF SHE FEELS PATIENT, & FIA CAN READ HER NAME OR WORDS LIKE 'STOP' OR 'SORRY'), JESS & FIA CAN READ (SO I TYPE), & FIA GUESSES MY DISCIPLINE AMAZINGLY WELL, SO I CAN ANSWER YES/NO, INSTEAD OF SPELL IT (I LOVE WHEN FIA ASKS, "GO 2 TIME OUT?," "SHARE?," "STOP?," OR "SAY SORRY?"). WE WATCH SHOWS, PLAY GAMES, ETC. FIA WAS YOUNG ENOUGH WHEN I STROKED, SHE DOESN'T KNOW ANY BETTER THAN HOW I COMFOR IF SHE'S HURT. YES, SOMETIMES I WISH I COULD SAY OR DO MORE 4 THE KIDS, BUT I WANT 2 RAISE THEM! I'M STILL MOM! I CAN'T READ A BOOK, BUT THEY CAN SHOW ME PICTURES! I CAN USE MY LASER POINTER 2 POINT & DIRECT WHAT 2 CLEAN. I CAN LET OTHERS DO WHAT I CAN NOT.
• MY HOUSE IS MESSY. MY CAREGIVER HELPS (BUT ONLY 2X/WK.-LITTLE KIDS REQUIRE DAILY ATTENTION), WE HAVE A CLEANER; BUT A HUGE PART IS I HAVE 2 BE SUPER ORGANIZED (LUCKILY, THAT'S ALWAYS BEEN A QUALITY OF MINE), MARK INSISTS MY KIDS RESPECT ME (MY FAV. PHRASE IS THAT THEY NEED 2 LISTEN 2 ME MORE THAN DAD; & THEY KNOW THE REPURCUSHION IS WORSE THAN IF THEY DIDN'T LISTEN 2 DAD), & MY KIDS R WELL-BEHAVED & MORE SELF-SUFFFICIENT & RESPONSIBLE THAN OTHER KIDS THEIR AGE.
• I ENJOY SOLUTUDE. UNFORTUNATELY, IT'S A NATURE OF THE CONDITION. I USE THE COMP. 2 COMMUNICATE, DO MY CHURCH CALLING, VISIT TEACH (CHURCH), READ/EDUCATE MYSELF, JOURNAL, SCRAPBOOK, ETC.-BASICALLY EVERYTHING! I DO OCCASIONALLY PREFER PRIVACY 2 DO SOME OF THE STUFF–SOME SHOPPING (BUYING GIFTS) & JOURNAL ENTRIES REQUIRE PRIVACY, & LIKEWISE EMAILS (SO I'M NOT INTERRUPTED B4 I FINISH A THOUGHT) & I TYPE SLOW (1 KEY AT A TIME). BESIDES, I PREFER NOT 2 SIT & DO NOTHING OR WATCH MINDLESS TV! ALSO, I CAN HAVE TONS OF HELP FROM OTHERS & STILL GET LONELY (IT'S NOT LIKE I EVER HAVE DEEP CONVERSATIONS-I CAN'T TYPE OR SIGN IT ALL) OR SAY SMALL SIDE-REMARKS (ESP. IF IT NEEDS PUNCTUATION OR VOICE INFLECTION). ALSO, I RARELY ENJOY GROUP (2 OR MORE) CONVERSATION, BECAUSE I AM OFTEN NOT SEEN SIGNING OR HEARD MAKING NOISE 4 ATTENTION (I REMEMBER BEING JEALOUS MY DEAF FRIENDS COULD GET ATTENTION BY MAKING NOISE). IN ADDITION, I CAN'T SAY A GREAT MAJORITY OF WHAT I THINK THE SAME-WORDS SEEM LOST UNTIL I TYPE, SOMETIMES (PROB. SINCE I'M OUT OF PRACTICE). IT INCREASES FRUSTRATION.
• I'M EASY 2 READ (W/MY EMOTIONS). HOWEVER, WHEN I THINK I'M SMILING MY BIGGEST, I APPEAR AS MAD AS CAN BE! WHEN I TRY HARD, I APPEAR MAD WHEN I TRY HARD, I TURN & LOOK LEFT, & PEOPLE THINK I C SOMETHING. OR, IF I'M HOWLING & CRYING, IT COULD BE PRIDE 4 A KID OR A SIMPLE FRUSTRATION, WHICH EVERY1 EXPERIENCES, BUT IT APPEARS A HUGE DEAL!
• I HAVEN'T CHANGED FROM THE 'JENNY' I WAS PRE-STROKE. I AM STUCK IN A MOLD. MY SISTER, MISSY, HAD THIS HARDEST, AS SHE WAS THERE WHEN I 1ST CAME HOME FROM THE HOSPITAL, BUT I'VE ADAPTED SINCE THEN & HAVE HAD AMAZING AMOUNTS OF PATIENCE THRUST UPON ME, & THINGS I WANT DONE "NOW," I'VE LEARNED 2 WAIT 4! THE 'JENNY' I WAS PRE-STROKE IS BUILDING BLOCKS 2 THE 'JENNY' I AM NOW!
• I'M MENTALLY CHALLENGED. I'M SUPER SLOW PHYSICALLY & HAD A BRAIN INJURY, BUT I HAVE A COLLEGE DEGREE & TAUGHT EL. ED., SUBBED, & TUTORED!
• MY MEMORY IS FINE! I REMEMBER EVERYONE! I DON’T HAVE DEMENTIA!
• SINCE MY LEFT SIDE CAN NOT MOVE, THERE'S NO FEELING. BUT I CAN FEEL EVERYTHING! (JUST CAN’T MOVE AROUND A WHOLE BUNCH.)
• I CAN DO ANYTHING I WANT 2. IT SEEMS LIKE I SIT IN MY COMFY CHAIR ALL DAY & "DIRECT TRAFFIC" BY FINGERSPELLING, BUT REALLY, I GET 2 DO VERY LITTLE I WANT 2 DO. I WOULD LOVE 2 EAT SNACKS WHEN A CRAVING HITS. I'D LOVE 2 POTTY MYSELF. I'D LOVE 2 NOT HAVE 2 RELY ON OTHERS 2 ACCOMPLISH STUFF (LIKE INSERT A BLANK CD 2 BURN STUFF ONMY COMP. 2 DEAL W/A COMP. VIRUS THE MIN. I C THE NEED INSTEAD OF WAITING UNTIL I CAN GET HELP OR WAITING 2 FINISH A TASK I WOULD'VE STARTED & FINISHED YEARS AGO.)
• U MUST TALK LOUD OR YELL. I CAN HEAR! THAT IS ANOTHER SENSE IN TACT, IN ADDITION 2 TOUCH!

One comment

  1. Jenny, that’s so exciting! What a great challenge that is for you! I know you are up to it, and everyone will be very inspired, I’m sure! You know that everyone here in Indy would love to see you again. And Aaron will be home from his mission in 13 days! We aren’t excited or anything. Haha! Best of luck with your “speech”!

    Love,
    Lynne

Leave a Reply

Fill in your details below or click an icon to log in:

WordPress.com Logo

You are commenting using your WordPress.com account. Log Out / Change )

Twitter picture

You are commenting using your Twitter account. Log Out / Change )

Facebook photo

You are commenting using your Facebook account. Log Out / Change )

Google+ photo

You are commenting using your Google+ account. Log Out / Change )

Connecting to %s