We continue to try new things with Jenny to see what she is capable of. As with every day, life is a struggle and rarely a time without some degree of suffering. We look forward to any success and progress to be hope and joy. Typically, Jenny becomes tearful as she tries new things and they don’t work as well as she she would like. For instance, I had her try to hunt and peck at a key board to see how well she could do. She was able to push keys, but her hand or fingers would accidentally push other keys or functions that would hinder her efforts. Aside from her frustrations, the good news is that she has the rough ability to use a key board!
The other good thing we tried was to have her sit in her wheelchair without any head support. Jenny easily watched television and the only reason I put it on after about 30 minutes was because she needs to be tilted back in her chair every 30 minutes to prevent pressure sores. She indicated that she could have done it continuously for much longer.
Jenny has also been without her catheter for the past week (which Jenny is so pleased that she does not mind me telling). She came home from the hospital with the catheter, trache, and feeding tube. All she has left is the feeding tube, and that is really only there for convenience. If we needed, Jenny could take all fluids, medicines, and foods orally. Since the fluids are given orally by a small dropper right now, she is better off with the tube, but her fluid intake is increasing orally each day. Not having the catheter has presented difficulties with restroom visits. Helping her is not a problem, it is getting my attention that was our first big obstacle. The door bell on her chair seems to help, as well as sign language. The second obstacle is getting she and I into a public restroom together. So, until we figure where all the family restrooms are, and work out a more efficient bathroom routine, we do not stray from home as long.
I wanted to catch the new CSI New York this week, so I watched it after Jenny went to bed. It was about a woman forced into a “locked-in syndrome”, so I am glad Jenny did not watch it. Anyhow, seeing this actor portrayal of a locked-in person reminded me of how much progress Jenny really has made. I could list pages of things Jenny is doing since she was first in the hospital that she is not supposed to be able to do. After seeing her MRI, other than a pure miracle, I do not see how she is able to have the voluntary movement that she has with all her extensive damage. I continue to believe that we have been blessed with so much since her stroke.