Every day seems to be better than the next. Jenny has been less resistant to therapies- even though she knows they will hurt. I am seeing more movements in her whole body and they get ever so slightly better each day. I guess the millimeters add up over a long enough period of time. Jenny had spagetti w/red sauce and Neopaliton ice cream for dessert. The noodles were NOT pureed, but chopped. Jenny is willing to give pasta a try even though her tongue movements are lacking at the moment. She still reports that she is sleeping rarely at nights. Jenny also let me know that she has not slept in the last 48 hours. It sounds like the old Jenny, but without the activity to go with it. We are trying a new med to help her sleep. I wonder what she could do with a whole night’s sleep.