Every day seems to be better than the next. Jenny has been less resistant to therapies- even though she knows they will hurt. I am seeing more movements in her whole body and they get ever so slightly better each day. I guess the millimeters add up over a long enough period of time. Jenny had spagetti w/red sauce and Neopaliton ice cream for dessert. The noodles were NOT pureed, but chopped. Jenny is willing to give pasta a try even though her tongue movements are lacking at the moment. She still reports that she is sleeping rarely at nights. Jenny also let me know that she has not slept in the last 48 hours. It sounds like the old Jenny, but without the activity to go with it. We are trying a new med to help her sleep. I wonder what she could do with a whole night’s sleep.
Hi Jenny (and family). My class continues to pray for you each morning and wishes a complete recovery for you and your family. My students are 5th graders at All Saints School in Puyallup Washington. One particular student “Thomas” regularly looks up your website to read the updates (we have some laptops in my classroom). It is very good for these children to realize that health cannot be taken for granted (and I’ve found that with having CAH as well) We have talked about strokes, some possible preventions, etc and that some of it is just genetic. Who knows why things happen? Just know that your experience is helping to shape and bring compassion to young lives here in Puyallup (just outside Tacoma, WA)
Our prayers are with you Jenny.
What could Jenny do with a whole night’s sleep? We hope this medication will help so we can all find out! I’m sure it will be nothing short of AMAZING!
Keep up the good work, Jenny! So happy you’re home and I’m sure the ICE CREAM tasted so yummy! We miss you and can’t wait to see your improvements!
The Croshaw Family
I am so thrilled that you are home. I encourage you to keep up with your therapy since you have been doing so well. Mark, you are an amazing guy! Jenny was certainly blessed to have met you. I still remember when you both came over for Thanksgiving in Utah and I went back to Illinois and told Carolyn “they’re going to get married”, and we both laughed because I didn’t really know…just had a feeling. I’m glad my hunch was right.
I’ll keep you all in my prayers!
Lots of hugs and love,
Linda Watters (and family too)