Jenny moved hospitals

It has been a larger than normal break between updates. Jenny has had some difficult nights that lead into difficult and emotional days where rehab is hindered by her anxiety and sadness. Regardless of the reason, she will tense up and be impossible to move if something is troubling her. Jenny indicated to her sister that her needs were not being taken care of at night, so I have stayed at the hospital with her the past two nights. The first night was a nightmare. I feel bad it took me this long to stay up with her. She was not cared for very well by the night nurse, who was from a nursing temp agency. I also realized that she was waking up at 4 or 5 am each day, so by the time I got there after getting Zach off to school, she had spent too long alone. She is blind without her glasses, but only one or two nurses have ever put them on for her. That leaves her with only her hearing. Most people are unable to really know what she wants or understand her blinks.

Jenny has had some great things since I have helped ease her stress by being there 24/7. She has eaten a whole range of puree foods. Puree chicken is her least favorite, but I commned her willingness to try it. She liked Mashed potatoes until she ate them for 6 meals in a row. She liked pudding and puree fruit but her favorite was some chocolate that smuggled in after getting peer pressure to try it by her friends. Shr rocks at swallowing and she is getting better at moving food from the front to the back of her mouth. Her mouth opens wide and she has so much more muscle tone and expression in her face. Her right leg can almost lift straight out and her left arm is getting to be stronger. Her neck has been a difficult issue. Her neck is pulling her head to the left and she spends so much time that way that she is getting pressure sores. We have to hold her head for up to 1-2 hours to give her relief sometimes. It is a true fight to do so, but she keeps indicating that she wants us to keep doing it. Jenny is at a new hospital in Indy. We are at Community Hospital East. I need to hurry back so I will write more later.

11 comments

  1. Dear Jenny & family:

    Please take comfort knowing we all are praying for you and your family.

    Love,
    Brother & Sister Miller
    AH 2

  2. Mark, we really admire you for all that you are trying to do at once. It has to be hard trying to decide where you need to be most, but you need to know that you kids are very resiliant,despite all they’ve been through. Heavenly Father loves them and knows them better than you do and we know that they will be blessed and be OK. In the future you will see that getting Jenny as well as possible now will be the best thing you can do for your kids. There are so many people praying for you all. Take heart and know that the kids will be fine. We all love you and think of you soooo often. Connie and Jenny’s sister, we pray for you both as you care for the children. Keep your chins up. Love, Dee & Lois Ann

  3. Brother Lynn,
    Know that we constantly pray for Jenny, for you as her main support, for your children and your extended families. As we fast this weekend, we will pour out our hearts, exercise our faith and ask our Heavenly Father to extend his mercy, his love, his strength and his support to each of you. Also know that we are ready to provide additional help on a daily basis if needed.
    Love, Bishop Low and ward members

  4. Mark, Jenny and kids – –

    Bishop Low has spoken my thoughts, prayers and feelings for you all.

    I know you are making right decisions.

    Take care – –

    Love – Sherry

  5. Dear Jenny and Family,

    I was deeply saddened to hear of your news, but I do believe that if there is anyone in this world who can prove the prognosis wrong, it will be you. I have thought about you and your family a lot over the past year as I drive by your old house in Arlington Heights regularly as I take my son to the sitter. I know that you have wonderful family members and friends with you right now. Just know that there are many other “family and friends” pulling for you and praying for you and your family as well. Keeping everyone in our thoughts,
    Much Love,

    Julie, Joe and Sean Rodgers

  6. Dear Jenny & Family,

    I praise you Mark & Jenny! Mark for your around the clock help with Jenny & the kids. Jenny for fighting for a full recovery! Thoughts and prayers are with your family. From a member of the CAH Support Group in Indy.

    Dale, Jenny, Cody & Destiny
    Cody Cares ID

  7. Mark,
    My step-father was at Hook’s Rehab (CHE) for several months and they did a great job for him. Prior to this my mother had similar problems with nursing staff at another hospital. She moved him as well.Sometimes my SF didn’t even have a nurse assigned to him! She stayed as much as she could 24-7, as you have, but finally had to hire a private duty nurse. This might help you if you don’t feel Jenny gets what she needs. She may also need this when she comes home so you can sleep and take care of the kids. Keep the idea in mind. We are all praying for you and miss you. Brenda CW

  8. Mark,
    My step-father was at Hook’s Rehab (CHE) for several months and they did a great job for him. Prior to this my mother had similar problems with nursing staff at another hospital. She moved him as well.Sometimes my SF didn’t even have a nurse assigned to him! She stayed as much as she could 24-7, as you have, but finally had to hire a private duty nurse. This might help you if you don’t feel Jenny gets what she needs. She may also need this when she comes home so you can sleep and take care of the kids. Keep the idea in mind. We are all praying for you and miss you. Brenda CW

  9. I am sorry to hear about your struggles Mark and Jenny. I constantly think of the two of you, pray each night, and pass those prayers requests onto friends, family and even strangers. It is hoped that more miracles occur for Jenny. Again, if you need anything please do not hesistate to contact me at home 570-0120 or by e-mail pdkinney@comcast.net. Even if it is just a break for you Mark, I would be honored to help your family. With Much Concern, Pam

  10. Hi,Jenny Mark, Zach, Jesse, and Sophia
    We are glad to hear about the progress that’s been happening. We’re sorry that the the hospital wasn’t taking care of Jenny the way that they were supposed to. Again…. remember that we are all keeping you in our thoughts and in our hearts. Keep up the good work Jenny!!!!!

  11. Jenny, It has been so long since we have seen you but remember your growing up and what a lovely young woman you were. Our children grew up with you in the same ward. Duke and Kimberly Croft.

    Kimberly heard about it through Maureen Miller, and let us know. We are saddened to hear that this has happened to you. But if I remember corrrectly, you have always had a zest for life and I wouldn’t put it passed you to make a FULL recovery.

    Please know that you are in our prayers daily and we will continue to check in to this website for further news about you and your dear family. God bless and keep on fighting the good fight. Sounds like you already have a good start towards your recovery. We love you Jenny and so do many others that remember you as a young girl and now a grown woman, wife and mother. We moved shortly after you were married so I don’t remember your husband Mark, but he must be a wonderful man. Stay strong!

    The Crofts – Lacy & Paula

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