Jenny had a swallow test done today to see if she was able to keep food/liquids going down the right pipe when she swallows. I was able to be there and see her swallow barium laced ice cream during her x-ray. She had no problems and they were pleased with her ability to swallow. By the way, she has a really cute skull and nice pointy jaw bone. Her speech therapist said that a week ago that she would not have thought Jenny could have done what she did today. So, Jenny gets more variety in her diet as long as it is pureed. She will start out tomorrow with fruit and maybe mashed potatoes. She will most likely have just a few spoonfuls total, but each one is going to be heaven to her. She lets us know that she misses eating foods.
I started playing Master Mind with her, and she is doing great so far. The nurses insist that I will cheat if they don’t monitor my play. They know me better than I thought. Jenny still struggles with vision and feeling uncomfortable/pain. I don’t know if I ever really get her to a point of feeling totally comfortable. I did get the okay to use high top shoes rather than these really massive boots/braces that help preserve her feet from pointing permanently. Jenny hates the boots more than anything else. I think they work better anyhow.