Jenny had a much better day on Friday. Zach was able to see her sitting up in a special wheel chair/bed, which made her look more like herself. She made some great movements in her left arm and was laughing tons.
Saturday was difficult because she could never get into a comfortable position (which may be relative in her situation) and she was dealing with infections, bacterias, congestion, cramping, and fever. I brought in a video of Zach’s first soccer game (in which he scored a goal), but Jenny made us aware that seeing has been difficult and she was unable to really see well – even with glasses. I was told by doctors that double vision is common, but may only be temporary. It is frustrating to not know what to do to make her feel better. For now, I suction her mouth, reposition her, ask if she needs the nurse, do range of motion, try to play music of her choice, and just be there and talk with her. It really does not seem to help much, but I guess it might be worse without it.
Last summer, Jenny joined her mother on a trip to London to she Melissa (Jenny’s sister) perform in a show. Jenny was reluctant at first because it was too close to other big trips, but I am glad she went. She made audio tapes for the kids where she told them she loved and missed them and then read them a story. I found the books and tapes (4 in all) and let the kids listen ot the 1st. It was “What Mommie Do Best/ What Daddies Do Best”. It seemed to help the kids, but It was difficult for me to hear- even thought I was longing to hear her voice. At the end of the story, Jenny reassured them that while she was not able to be with them that Daddy was going to take care of them for her until she gets back.