OF COURSE! U DON’T MISS IT, UNTIL IT IS GONE! MAYBE THAT IS WHY I’M DELIGHTED WHEN MY FAMILY TRIES DOING THINGS “MY WAY”… LIKE MY FAV. 2 THIS DAY, IS WHEN FIA (SOPH) WAS FEEDING JESS, & THE PAUSES BETWEEN BITES WERE JUST KILLING HER, AS SHE STARED AT HER FOOD! ANOTHER FAV., WAS WHEN SOPH PUT HER ARM BEHIND HER BACK, 2 TRY WRITING LIKE ME! THAT PAPER WAS ALL OVER THE PLACE, & SHE NOW HAS SO MUCH CONCERN & SYMPATHY 4 THAT PLIGHT!
WHILE THE SYMPATHY IS NICE, IT’S THE AWARENESS I LIKE SHARING…I COULD’VE TOLD SOPH THE PAPER WOULD MOVE, BUT THE EXPIERENCE MEANT SO MUCH MORE! I BELIEVE THAT’S 1 REASON I AM LUCKY. I AM AWARE OF MUCH THAT I USED 2 TAKE 4 GRANTED!
Author: Jenny
What gives you the greatest joy in your life?
MY FAMILY & GETTING EMAILS. IF I COULD TALK, I’D SAY CONVERSATION, NOT EMAIL. I LOVE WHEN I AM SAT BY & TALKED 2, BUT SINCE I CAN’T TALK, AN EMAIL IS A NICE ADDITION. IT MAKES ME FEEL LIKE U CARE
ACKNOWLEDGE THAT I EXIST. SIT BY ME. TALK 2 ME. (I CAN ALWAYS NOD A YES/NO, IF U CAN’T READ MY SIGN LANGAUGE…BUT IF I’M EMAILED, U WILL KNOW THINGS GOING ON IN MY LIFE, & THINGS 2 ASK ME ABOUT.)
What is the hardest thing for you to deal with, with your disability?
PERSONALLY, MY CONDITION CALLED “PBA”, BECUZ I CAN LAUGH WHEN I’M MAD, CRY HARDER WHEN CONSOLED, ETC. BUT AS A GENERAL DISABLED PERSON, I GUESS BEING IGNORED & ASSUMING THAT I’M RETARDED OR SOMETHING.
What is the one thing they could do that would help you the most?
EDUCATION ABOUT THE DISABLED. WE R PEOPLE 2! DON’T BE SCARED OF US!
How do you wish they would treat you?
THIS MAY BE UNIQUE 2 ME, SINCE I CAN’T TALK: ASK, NEVER ASSUME. IF I CRY, ASK IF U SHOULD WIPE MY TEARS…MOST LIKELY, I DON’T WANT HELP, DUE 2 MY CONDITION. IF I STRUGGLE, ASK. MAYBE I WANT 2 STRUGGLE, & MAYBE I DON’T. OTHERS CAN ASK 4 HELP. I CAN’T, UNLESS I STOP STRUGGLING, & I DON’T LIKE 2 GIVE UP! ETC.
OF COURSE, U DON’T NEED 2 ASK ABOUT THE OBVIOUS…I.E. IF MY PARALYZED FOOT FALLS OFF IT’S FOOTREST, U CAN PUT IT BACK ON, IF I’M HEADED 2WARDS A DOOR, U CAN OPEN IT, ETC.