SUN. & TUES.

I'M SURE THIS SEEMS LIKE A SMALL ACCOMPLISHMENT 2 ANY1 ELSE, BUT IT WAS HUGE 2 ME! SUN., I GOT A PENCIL OFF A BENCH SUN.—I'VE BEEN DYING 2 SHARE! LET ME EXPLAIN: AT CHURCH, WE SIT IN THE LAST PEW, SO THERE'S THE CHAPEL'S WALKWAY BEHIND US & THUS THERE'S ROOM 4 ME 2 MOVE BEHIND THE PEW. AFTER SACRAMENT, MARK WAS HEADED 2 CLASS IN ANOTHER RM. (THIS WAS AFTER 1 HR. OF 3 HRS. OF CHURCH—WE MEET 12:30-3:30 PM), SO THE KIDS PILED STUFF ON MY LAP, BUT 4GOT A PENCIL ON R PEW, TOWARDS THE BACK OF THE PEW. AS THERE WAS LESS PEOPLE AFTER A WHILE, & NO1 HAD SEEN THE PENCIL, AS R NEXT CLASS STARTED IN THE CHAPEL, I SIDELED ALONG-SIDE THE PEW, AS CLOSE AS I COULD GET, LIFTED MY RT. ARM OVER THE PEW, & LEANED RT. AS MUCH AS I COULD. I DID THIS A FEW TIMES, AS I INCHED MY CHAIR FORWARD TEENY BITS 2 REACH. I FINALLY GOT IT, & ADDED IT 2 THE HUGE PILE THAT WAS STILL THERE! (WHICH AMUSED ME BECAUSE, REALLY, MANY PEOPLE SAW OR SAID HI 2 ME ME, BUT NO1 OFFERED 2 HELP ME—DID THEY EXPECT ME 2 REACH THE BAG BEHIND ME & PUT IT AWAY?) I FINALLY COULD STATE THE OBVIOUS (HELP ME!) WHEN A FRIEND SAT BY ME AT AROUND 2:30.

HOWEVER, THIS DIDN'T BOTHER ME. I ACCOMPLISH THINGS BY BEING INDEPENDENT. I MAY BE PAINFULLY SLOW THE 1ST TIME, BUT THAT'S PART OF LEARNING. BEING ALONE, OR IN THIS INSTANCE, IN THE BACK OF THE ROOM, PEOPLE DON'T HAVE THE INSTINCT 2 HELP ME & I DON'T GIVE UP AS EASILY & WANT HELP. HAVE U SEEN THIS POST? IT SHOWS THE SAME NEED 4 INDEPENDENCE:

NOW 2 BRAG-I WAS PROUD, BUT HAVEN'T SHARED! YESTERDAY, I WORE A SWEATER. WHEN I SIGNED, IT TENDED 2 COVER MY HAND (LIKE COVERING YOUR MOUTH), SO IT WAS ROLLED BACK. LAST NIGHT, R FAM. SAW A MOVIE. I WAS FREEZING COLD IN THE THEATER-MY SWEATER HELPED IMMINSCILY-BUT I KEPT IT ROLLED UP 2 EAT POPCORN. BUT WHEN I WAS DONE EATING, 4 WARMTH, I WANTED MY HAND IN MY SLEEVE; BUT HOW COULD I QUIETLY GET MARK'S ATTENTION & SIGN IN THE DARK 2 UNROLL MY SLEEVE? I DECIDED I COULDN'T, SO USING MY ARMREST & MY JOYSTICK ON MY CHAIR (WHICH I OFTEN USE 2 TURN THE 2 RINGS ON MY RT. HAND), I DID IT! I WAS IN DISBELIEF!
I AM INCAPABLE OF MANY THINGS. U'D BE SURPRISED WHAT I CAN DO, & AS MY KIDS GROW UP, I CAN DO MORE. IT CAN BE A NICE BREAK WHEN MY CAREGIVER WAITS ON ME HAND & FOOT. HOWEVER, MARK HAS A LIFE–& SO I CAN BE ALONE. THAT CAUSEES ME 2 CHALLLENGE MYSELF & BE CREATIVE. 4 EX., MARK WAS HERE, BUT THOUGH I COULD QUICKLY GET MARK'S ATTENTION & HAVE AN EASIER TIME, I DECIDED 2 TAKE ADVANTAGE OF BEING ALONE: I WAS TIRED OF WAITING 2 C SOME CDS ON MY COMP., SO I LEARNED 2 DO IT MYSELF! ANOTHER TIME, I LEARNED 2 USE MY KEYBOARD AS A WEIGHT, 2 GET KLEENEX OUT 2 WIPE MY NOSE. IT'S TONS FASTER 2 CLOSE A CD DRAWER ON MY COMP., SWITCH A LT. SWITCH, OR OPEN MY ELEVATOR DOOR IF SOME1 ELSE DOES IT-SOMETIMES MARK DOES. BUT I LIKE 2 TRY
SOMETIMES -THESE R THINGS I CAN DO & OTHER THINGS I ONLY LEARN I CAN DO BY CHALLENGING MYSELF.

SOMETIMES THIS IS A HEALTHY DESIRE—WHEN NOTHING ELSE IS AFFECTED (LIKE LEANING OVER 2 PICK UP SOMETHING OR FIX MY CLOTHING, OR RAISING MY CHAIR 2 C IF I CAN C SOMETHING B4 I ASK 4 HELP), BUT SOMETIMES I NEED 2 SWALLOW MY PRIDE & ASK 4 HELP, SO I DON'T BREAK SOMETHING. IT'S A FINE LINE, & I'LL BET MY INDEPENDENCE CAN DRIVE MARK BONKERS SOME DAYS!

ON TUES., I HEARD A BILL WAS BEING DISCUSSED 2 LET LATE PREGNANCY & EARLY RECOVERY WOMEN USE DISABLED PARKING. I HAVE BEEN PREGNANT. I'M NOW DISABLED, AND THOUGH IT'S NOT PASSED, I WAS FURIOUS IT WAS EVEN BEING DISCUSSED! REMEMBER WHEN I WENT 2 A SCHOOL RECITAL & SOME1 PARKED ILLEGALLY IN THE LAST HANDICAPPED PARKING, SO WE HAD 2 GO HOME? THIS MAY SOUND HARSH, BUT I'M SORRY:

        IF U CAN WALK, NO MATTER HOW HARD IT IS, UNLESS U R IN PAIN &/OR USING A WALKER,WALK!

IT IS NOT FAIR 2 THOSE OF US WHO NEED THOSE SPACES. THERE R NOT THAT MANY & 2 SHARE THEM?!? IT DOESN'T WORK 2 SAY "IF ONLY 1 SPOT IS LEFT, DON'T USE IT"—WHAT IF 2 DISABLED PEOPLE SUDDENLY APPEAR? SHOULD 1 GO HOME BECAUSE A WALKING PREGNANT WOMAN TOOK THE SPOT SHE WAS ENTITLED 2? SOMETIMES, EVEN CLOSER SPOTS ARE CLOSER THAN HANDICAPPED PARKING!

BACK IN INDY, THERE WAS A MARSH GROCERY STORE THAT SECTIONED HANDICAPPED PARKING AT THE FRONT, BY 1 ENTRANCE. BY THE OTHER ENTRANCE, IN PINK & BLUE, PARKING WAS SECTIONED OFF 4 "PREGNANT & NEW MOTHERS." THERE WAS NO FINE 4 PARKING THERE, YET IT USUALLY WAS RESPECTED. THAT'S WHAT SHOULD BE DONE. I ADMIT, I NEVER HAD A C-SECTION, SO I MAY NOT BE FULLY AWARE OF EVERY CIRCUMSTANCE, BUT THOUGH I THOUGHT THE NEW MOM SPACES ROCKED, I ONLY USED THEM ONCE BECAUSE IT WAS HARD WITH 3 SMALL KIDS! BUT I CAN C A MOM WITH 1 NEW BABY USING HANDICAPPED PARKING, NOT BECAUSE SHE NEEDS 2, BUT BECAUSE SHE'S ENTITLED 2 IT! & THEY WON'T CARE IF THEY PARK A LITTLE ON THE HASH MARKS—THEY DON'T USE THEM, & R UNAWARE OF THE COMMON COMPLAINT THAT THEY R ALREADY 2 THIN—

One comment

  1. Jenny,
    It’s too bad that the people who really need to read this will never see it. I agree with you. I remember after I had my knees replaced, the first time I went out alone. It was a MAJOR process to get out of the car and get into the store. Sometimes, if I couldn’t find a parking place, I’d just skip the store! I’d count the steps to the store and figure out if it was worth it to try. And that was with handicap parking and a walker! That was simple compared with missing a school program, like you had to do. You’ve given us excellent information from an experienced viewpoint. Good for you! And congratulations on staying independent! It would be easy to just sit and expect someone to do EVERYTHING and not even try!
    Love, Aunt Lois Ann

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