Jenny tried out a speaking valve for her trachea today. The speach therapist was talking to her about electronic communciation and I knew what Jenny was thinking. The therapist agreed to humor us by letting Jenny try the valve. Jenny was happy to just have air return to her mouth, but I knew she hoped that she would be able to speak. She surprised the speach therapist with some ability to move her mouth and even swallow when given small pieces of ice. The ice alone was a treat. Because of this, more therapy will be applied to working on vocal speech recovery. She was worn out with the little physical therapy and sitting up that she was allowed to do.
I brought the stuff to the hospital that Jenny purchased months ago for Easter baskets. Actually, I brought stuff for Easter, Christmas, and birthdays for the next year. I needed to have Jenny tell me what was for who, and when. We sorted things out with only slight problems. Her blinks were not making sense, and after telling her that her blinks were incorrect, I found out I overlooked something and she was right the whole time. I bet she is thinking, “just trust me”, or “someone please notice that I am laying on a large plastic connection valve”. The nurse realized the valve thing, and we eventually figure out what Jenny is trying to communicate to us. Blinking words can be very difficult and it wears her out. She tries less and less to spell each day and is very concise and to the point about important things.