Nov 6, 2004

Jenny is in a bit of pain with the ‘whole jerking out of the tube’ proceedure yesterday. Since they did not sedate her because they did not know she was conscious when it went in, I guess not being sedated to have it come out was keeping in form. At least they gave her a choice this time. She had a temperature for a short while today, but she appears to be getting better. If anything, getting rid of her feeding tube was to get rid of a reminder that she was not well. She knows she is doing better and I think it will show in her recovery. Jenny has been trying so hard to speak lately. Unitl now, any attempt to speak brought total silence until she was brought to tears by frustration. Tonight, she mouthed “I love you” and there was air and sound behind it. Making sounds is not new, but making voluntary sounds is. It was a beautiful and needed thing to have happen- for us both. Jenny does not use her eyes to speek anymore- except to tell me she loves me. I don’t miss blink spelling, but I still like to see her code for “I love you”.

2 comments

  1. Jenny…I am so excited to sound is here. I think that is great. I know how you said that it is what you miss most. But I think this will continue on a positive coarse and prove to be a huge step for you.
    I am so glad that all the tubes are out. I think that you are so amazing. What a gift to be tube free. It will definatly improve the moral even more.
    Mark…no matter how many words come with this, you both will always have your special code for i love you
    In Love and Faith
    Janet

  2. WOW! ALL I CAN SAY IS WOW. IT’S BEEN A MONTH OR SO SINCE I GOT ON MY COMPUTER. YOU HAVE ACHIEVED SOME MAJOR HURDLES. THE FEEDING TUBE OUT, OUT PATIENT THERAPY AND MASTERING YOUR COMPUTER. NOW YOU ARE REALLY ON YOUR WAY. YOU SHOULD BE SEEING A LIGHT AT THE END OF THE TUNNEL. AND MARK, FOR YOUR INFO I WAS JUST LIKE JENNY, NOT WANTING ANYONE BUT MY HUSBAND TO DO THINGS FOR ME. I THINK IT’S A TRUST FACTOR JENNY YOU JUST KEEP MAKING MY DAYS JOYOUS BY RECOVERYING THE WAY YOU ARE. IF YOU MADE IT THIS FAR THINK OF WHERE YOU COULD BE IN 5 YEARS.

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