In the beginning, I had 3 tubes: a catheter, a feeding tube, and a breathing tube. It was easy to see them and feel discouraged. But I slowly lost all the tubes that they had put into my body, & when the last tube was removed, Mark reacted a way I did not expect:

He threw a tube party. All our friends who had been there for me were invited & had to wear tube costumes, so I was the only one with no tubes. All the food was tubular shaped. & all the games were silly versions of my trials.

It was exactly what I needed.